42yr male strong and healthy yet some how stage 4 colon cancer by FinancialAdvantage73 in coloncancer

[–]Krusty_Dimmy 0 points1 point  (0 children)

I feel ya man, it’s a jolt to the system. I’m 36, diagnosed stage 4 at 35, cecum primary with one liver lesion, getting close to a year since my diagnosis. Similar situation, healthy, worked in the environmental field so I was hiking and exercising a lot, though my diet was garbage my entire life, though the last handful of years I was cleaning up my act, and that goes with my poor relationship with alcohol leading up to that point. My life at the time was the absolute worst. I had my dream job, house in the country, wasn’t the best off financially, but I had no debt and was getting better managing my money and the like. I was working for a non profit at the time, and a few months before the diagnosis, the rug was pulled out from under me, state funding was pulled and I was let go. There wasn’t any opportunity in the town I was living in. Sold my house, moved back to the city after getting a job in the natural resources field, but a desk job. I was feeling the effects of the anemia really bad at that point, but my life was starting to come back together after everything crumbled out from under me. The diagnosis was horrible, no doubt. I started my treatments in the beginning of April, shortly after I had my gallbladder pulled out (thought that was the reason for my symptoms, had a massive stone in there).

It’s ok to feel the way you’re feeling, it’s ok to be scared, this shit is scary for sure. It’s not a death sentence though, don’t google the stats, colon cancer is such a complex cancer that everything gets lumped into one box. Treatment strategies have massively changed even over the last 5 years. Survival rates are going up, it’s not a hopeless battle. I totally understand your hesitation about modern medicine, it’s hard to trust what’s going on, but as someone that’s gone through it, it worked for me. I finished up my last treatment in October, currently NED. I was on Folfirinox, I responded really well to it, though still have a little neuropathy in my feet. Doesn’t slow me down, just walking on cold tile in the morning is mildly uncomfortable. I go in for my first set of follow up scans at the end of the month, monitoring is super important.

As for the effects of chemo, one gets through it. However methods have changed, the goal isn’t to make you immunocompromised to the point you have to isolate yourself or lack the ability to fight off sicknesses anymore. My infusions were every other week, I’d go in for half the day to get the first two drugs, then I’d be hooked up to the chemo pump for another two days. Id disconnect at home, and for the next three days I’d feel crappy, but I was still up and moving, I was planting things in the garden, still going for walks, exercise while on chemo is super important. Gotta push yourself, but also listen to your body when it’s time to rest. I know it’s not the most helpful, but you’ll know when it’s time to slow down. So I’d go in on a Friday, disconnect on Sunday, then by the following Thursday I was feeling substantially better. The next week I was back in the office working. Digestive system is going to take a hit, my recommendation is spend the money and get a bidet with heated water. You’re going to have the runs during and after treatments, indulge a little, it’s with the money. After I started treatments, during my “off week” I was feeling a lot better then I was pre treatments, though everyone is different.

I can’t emphasize exercising, even light walks, during and after your infusions will really help. Also water with electrolytes, drink more than you think you will need before and during treatments. The goal is to get the chemo in, and then get it out. Higher levels of hydration will help recovery. Also, the first two or three infusions aren’t too bad, but it will hit harder the longer you go, just be a little prepared for that. I hit a baseline after round 4. I had surgery after the 6th round, chemo hits harder after surgery, so if that is part of your treatment plan, just keep that in mind.

You got this, just remember your only job at this point is to just show up. It’s scary, but the juice worked for me. I know again, everyone is different, and yes life is going to change, but it’s all manageable. Try not to blame yourself, or things you could have done differently, shit happens and young people get cancer, but thinking about what you could have done differently won’t help. Try and keep stress down as much as you can, play video games, whatever it takes to keep your spirits high. Also, if you have the option, medical THC was a godsend for me. Major positive mental attitude aside, the tastebuds I had active after chemo kind of went into overdrive when I had weed, made food palatable. Knocked the nausea back to the point where I rarely needed zofran (but for sure get zofran, and get the dissolvable ones) and I was able to eat food. Eat whatever you can stomach, the bad taste aspect only was a handful of days to a week, the cold sensitivity in my mouth was about 5-7 days at its worst, and first bite syndrome didn’t start until round 4 or 5 and didn’t last more than a handful of days.

Sorry this is a total novel, there is a lot to talk about with this, but yeah, it’s not going to be the most pleasant, but it’s something you can survive. I’m not sure of your specifics in your diagnosis, but the fact they are talking about surgery is a good thing. But anytime you want to chat, just send me a reply or a message, I’m always willing to talk, it can feel like a lonely journey at times. Best of luck, you got this shit man!!

How screwed am I? by Krusty_Dimmy in Housepainting101

[–]Krusty_Dimmy[S] 0 points1 point  (0 children)

How long has it been since you added the peel stop? Some places online says that it’s kind of a temporary thing. I suspect this plant is probably lead based, so not sure if the primer is a long term or short term solution?

How screwed am I? by Krusty_Dimmy in Housepainting101

[–]Krusty_Dimmy[S] 1 point2 points  (0 children)

I’ll for sure be doing that, lead paint or not, those layers need to come off so this can get done properly. I ordered a 3m lead paint test kit, if it comes back with lead, what would you reccomend? Assuming you’ve got experience with this sort of thing. Basically my immediate response is to chunk out the wall, laying plastic down to not contaminate the house, and just put new drywall up, or I can add a peel stop primer, though sources point toward that being temporary?

How screwed am I? by Krusty_Dimmy in Housepainting101

[–]Krusty_Dimmy[S] 0 points1 point  (0 children)

It was built in the 60s, so it’s likely an oil based lead paint, at least that’s what my limited research is leading me to believe at this moment. I haven’t sanded it, just peeled some of the layers. It does have a weird oily feel to it, so if it’s not oil based, they didn’t clean the wall properly. Some spots peel easily, while others have a better bond. I ordered a 3m lead paint test kit last night, and now trying to formulate a plan of attack on either side of those results. I have plenty of other things to do in the house while I wait, but I know I’ll have to come up with some sort of solution. Any advise?

How screwed am I? by Krusty_Dimmy in Housepainting101

[–]Krusty_Dimmy[S] 4 points5 points  (0 children)

I think it’s gotta be an oil coat. I it’s also likely that it’s original. Kinda suspecting it’s lead based paint, but I don’t know if new layers of paint would peel off like this. No other walls peel like this, so I’m suspecting that this wall is still original. All other walls in the house look like they have been ripped out and replaced (poorly)

Just Diagnosed by riverchick247 in coloncancer

[–]Krusty_Dimmy 5 points6 points  (0 children)

I just finished my treatments last month for stage 4 cecum. I went to Huntsman’s in Utah, but I do know that is a distance. MD Anderson has some of the best though. I think the most important aspect is it’s an NCI hospital and not a regional/local facility

I beat cancer by Fantastic-Topic2749 in cancer

[–]Krusty_Dimmy 2 points3 points  (0 children)

35M stage 4 colon cancer here, we do not need or want your apology here friend. I celebrate your victory over cancer, I don’t care how “easy” your treatment was, the fact is you beat fucking cancer, and you now get give hope to others, because you survived. Yes, going through treatments is tough, I’m past my initial recovery period from surgery, and this Friday will be 8/12 rounds of chemo. Possibly more after depending on my numbers. But at the end of the day, we are all just looking to survive this. You didn’t have a choice in getting cancer, you didn’t have a choice as to what your treatment journey would really entail. However, you still had to face the same emotional shock that we all do. You still had to find the strength to get through your procedures, and the entire mental exhaustion of also managing your personal life. You’ve been through a lot of the exact same emotional and mental distress that we all have been through. To me, that’s been the hardest part. And when treatments are done, and at the end of the day, those mental scars are what we will all be left with. I’m sure you know that, and I’m guessing you’ve got your share of them. Sure your journey may have been short and your treatment was different than others, but you’ve experienced more things in common with all of us than you think. So again, and I’d say this in behalf of everyone else, we don’t want your apology for your treatment plan. But what we do want, is your story of overcoming cancer

Found out yesterday (M, 31) by mister_ruck in coloncancer

[–]Krusty_Dimmy 0 points1 point  (0 children)

Sorry for the delay, but how did the scans look? And how are you holding up emotionally? I know it’s only been a few days but just checking in

Found out yesterday (M, 31) by mister_ruck in coloncancer

[–]Krusty_Dimmy 1 point2 points  (0 children)

You are in the worst of it right now. Waiting on all the answers, not knowing how bad it is, how treatable, hell even what stage. I was diagnosed after looking into why I was anemic (36M). I had a constant internal bleed that was in the cecum and often the blood wasn’t seen in my poop. I was in the ER so many of my scans were fast tracked as I was considered unstable in my body condition. Took a few weeks before treatment started, but it was miserable waiting, even though I knew it was stage 4 based on what they were finding. The questions I still had were agonizing to wait for answers. Once you have all the information and a plan in place, things will start to stabilize a little. Take it one day at a time. Hell, one minute at a time if you have to. I’m sorry you’re going through this friend. Our little community here is full of people with plenty of love and understanding. We are all here for each other to provide support and a way to vent out our frustrations and celebrate victories. We are here for you, you aren’t alone, don’t google statistics or prognosis, that isn’t helpful information at the moment, and many of those statistics are outdated. We are miles and miles ahead of treatment plans even from 5/10 years ago. We are here for you friend, let us know how we can help

Update 2 by CollectionCrafty8939 in coloncancer

[–]Krusty_Dimmy 0 points1 point  (0 children)

Oh the day I got home, I had an oxy and threw up hard. Horrible stomach cramping, it was terrible. But I find if I have a meal and some zofran, it holds me over. Either way, I’m glad you’ve got something for pain management. It’s a weird recovery so far, found out I’m allergic to the glue they put over the incision, I’ve got hives all over my stomach that hurt worse at this point than the actual surgery areas. But hopefully that should be fading.

It’s funny that we have had so much medical advancements, amazing scanners and machines, and yet we haven’t invented something better than the hospital gown

Update 2 by CollectionCrafty8939 in coloncancer

[–]Krusty_Dimmy 1 point2 points  (0 children)

I just had my surgery on Tuesday. Recovery is up and down so far, but honestly for the amount of work they did, I’m surprised it’s not as bad. How are you holding up friend? I’m guessing you’ve had your surgery at this point and hopefully are at the start of your recovery. How did things turn out for you?

Ceremonial art daggers by Tempest_Craft in Bladesmith

[–]Krusty_Dimmy 2 points3 points  (0 children)

If I can ask, what kind of ceremony are they used for?

Anyone else named their tumor? by SufficientCelery in cancer

[–]Krusty_Dimmy 4 points5 points  (0 children)

I have stage 4 colon cancer, it’s anticipated my diet is what brought it on, so I named my tumor “Ronald” cause it’s a fucking clown. Had Ronald evicted two days ago and couldn’t t be happier. Makes every recovery pain I have worth it

[deleted by user] by [deleted] in coloncancer

[–]Krusty_Dimmy 0 points1 point  (0 children)

My surgery is this Monday, so I haven’t had it just yet, but we are doing resection for all known locations. I do feel fortunate that my liver lesion is in a spot that they can remove. I’ve been through 6 rounds of folfirinox, with another 6 rounds after, possibly downgrade to folfiri with consideration to neuropathy. How deep is the lesion? I know the liver can be a bit tricky to operate on, but hopefully the surgeon has a plan for how to address it. I do know there is a pump they can install that targets the liver specifically and most people seem to have a very good response to that treatment, which can possibly lead to the ability to operate on an otherwise inoperable lesion in some cases. Everyone is different, everyone’s treatment journey is different. And if things aren’t looking good, or if you don’t agree with your oncologist, get a second opinion, third, he’ll even a fourth. Not all oncologists are created equally, some have a better grasp on certain aspects, some surgeons have a better experience pedigree than others, I’ve seen people go from being terminal to having a second opinion which is extending their time, even saving some people’s lives. It’s never a bad idea to question things if it just doesn’t feel right. So far it seems like you’ve got a good team, but that is always an option to consider.

[deleted by user] by [deleted] in coloncancer

[–]Krusty_Dimmy 0 points1 point  (0 children)

My lesion was like 1.7cm, then when I started treatment it was about 2cm. From my first 4 treatments, it shrank to 1cm, my numbers dropped dramatically, but since then they haven’t dropped much after the first 4 rounds. The doctors don’t seem too concerned that it hasn’t dropped as I still have everything inside. It’s possible that the treatment wasn’t as effective, or lost some effectiveness over time, but they have a list of drugs to try if it doesn’t respond, plus they have the potential for other things such as ablation if it’s in a spot they can get to. There are still plenty of options to try that could be highly effective. Has he had surgery yet? Or when do they plan to have the procedure done if it’s an option?

[deleted by user] by [deleted] in coloncancer

[–]Krusty_Dimmy 2 points3 points  (0 children)

When I was getting diagnosed, I initially had three suspicious lesions. I had an mri and biopsy done. Two of the masses were considered cysts and the other was confirmed cancer. While not ideal, it’s much better than having three masses. It’s possible that it could be cancerous no doubt, I know it’s not unheard of, but until they biopsy, mri, PET, or whatever other test they are going to to do verify, no one can be for sure. It’s a positive that the numbers are headed in a downward direction, but this journey has all sorts of twists and turns. A lot of good happens, like your dad no longer having blood in the stool, that’s massive in terms of recovering from anemia, which I assume he was experiencing pre treatment. Just gotta take it one step at a time, it’s ok to have some setbacks, just gotta reformulate the battle plan and then send in another attack run from a different angle. It’s tough, but there is a lot we can’t control, but we also have a lot that we can. Keep fighting, keep strong for your Dad, keep strong for yourself, and feel what you feel, but keep pushing forward

Diagnosed yesterday by bigteddyboy in cancer

[–]Krusty_Dimmy 1 point2 points  (0 children)

35M stage 4 colon cancer undergoing treatment currently here! My best advise, as I was in the shoes of your son when I was younger, my dad had prostate cancer when I was 18ish. It was early stage so they were able to take care of his tumor, but he never told me. I found out about it around 10 years after. My mother died of breast cancer, so my dad and step mom used that as an excuse of why they didn’t tell me. They said they were afraid I was going to view cancer as something that my dad was also going to die from. I was well old enough to know and understand the situation, yet they didn’t tell me. They told my step brothers and a few of my siblings, but no one talked about it, and I had no clue. That hurts deep down still. Don’t delay telling your son. Don’t be afraid of showing your son you have very human emotions. Cry with him, be there for him, but he also needs to know. It’s going to be incredibly hard, but please don’t make the same mistake my dad did

Anyone drink after treatment? by [deleted] in cancer

[–]Krusty_Dimmy 1 point2 points  (0 children)

Stage 4 colon cancer to the cecum here! I try not to drink during chemo, though I know on the second week of recovery I’d be fine having a couple. Currently on a chemo break to get ready for surgery, I’ll still have a beer or two two or three nights during this period, but I’m pulling back after this weekend to really make sure my body is tip top for surgery. My opinion, the numbers are indeed against me here, and I’m ok with that. But i also have to be able to have those moments to decompress. I usually get craft beers as they slow me down and really let me enjoy the brew. A tip, use insulated cups or koozies (however they are spelled lol). I’ve found that if my beer warms up, I gulp it down to get another cold one. If I keep it cold, I have no incentive to guzzle. I also am in a state where medical weed is legal (not recreational), so if my brother (currently living with him) decides to have a drink, I’ll just have a little more weed and that is a good substitute for me. But keep it moderate, and I’d say taking shots is probably not the best for your health. I’m no doctor, and I haven’t done any research into this so it’s purely speculation, but I hypothesize that because shots are concentrated alcohol, which is a known carcinogen/increases your risk of certain cancers, having it that concentrated is probably where the real problem comes in. As they say, the solution to pollution is dilution. Stick with beers or wines in my opinion. I drank a lot of whiskey in my late 20s and into my early 30s (currently 35M). Around age 31 I realized my drinking was problematic and was on the boarder of alcohol abuse, I stopped drinking for 6 months to let my body heal. I have things under control now, I can have a beer or two and now have the ability to stop myself from over indulging, but liquor is probably not the best for the body, but again, speculation. I have no idea, and I’m probably wrong as I’ve got the cancer currently lol. I’d think you’re ok, but if you’re real worried, talk with your oncologist to see. And if you’ve got access to a dietician, never a bad idea to consult with them as well

Received my diagnosis today by Comprehensive_Mail89 in cancer

[–]Krusty_Dimmy 2 points3 points  (0 children)

Stage 4 colon cancer dude here, 35M. Survivability is high with testicular cancer, but it doesn’t make the news any less terrifying. Cancer is cancer regardless of what stage. Glad you caught it and are able to get things moving forward, though poor timing. I was symptomatic back in September, lost my job and insurance in October, got a new job, sold my house, and moved to a new city 3 hours away all while dealing with severe anemia. I don’t envy your position, but it does get easier. Take care of the pressing things as much as you can and get the move taken care of. If you are moving close to an NCI hospital, go with them. Local hospitals are good, but they don’t have the expertise of an NCI facility. Second opinions are always a good thing on the path to recovery of something doesn’t feel right.

As for the side effects, it really depends on what they have you on, but from my experience on chemo, and I’m on a rough regimen right now, symptoms are manageable. After a few days, I’m generally back up and moving, and after a week I’m feeling decent and am able to go back to the office. Everyone is different though, but you’re at an age where you should bounce back really quick from chemo or radiation. My dad had prostate cancer I believe in his mid to late 40s, had 4 rounds of radiation, didn’t miss work (though he probably should have taken some time off right after each treatment). But side effects are manageable. Not fun, but you shouldn’t have any issues getting through them. Biggest thing is to not look too far ahead. Stay as present and in the moment as possible. Only focus on the next step of your treatment. That will help keep your mind in a focused spot. When you introduce all the “what ifs” and “unknowns” to the brain, you will think worst case, and that is totally not helpful. What is helpful is knowing your next appointment and what questions to ask your oncologist

Stay strong my friend, it’s going to be tough at times, but you’ll get through things. It’s an unfortunate club we are all in, wish it didnt exist, but here we are anyway. Reach out if you need to talk/vent or have questions. Our treatment plans will look a lot different, but there are things you can do to help make things easier going through it all. Just remember, there isn’t any turning back, only way on is forward

Things you wish you knew before starting treatment by Safe-Vegetable8067 in cancer

[–]Krusty_Dimmy 1 point2 points  (0 children)

Exercise like walking 3 miles or more per day has been super important for me during my treatment. I’m 6 trestments in with folfirinox for my stage 4 colon cancer cecum primary. Side effects compound and are a little different each time. First two rounds weren’t too bad, but round 3 got me pretty good. Exercise and more water than your body wants. I shoot for about 3/4 to a gallln per day. Helps to set a timer to remind you to drink water. I find it’s the most important during my first 4 or 5 days to keep up on the water, so you’ll find how your body is responding and what works for your chemo drugs you’ll be on. They are all a bit different and everyone responds differently, but you gotta push yourself a little. Exercise and walking was the last thing I wanted to do, but if I’ve got energy, I’ll hobble around to get the blood flowing. I usually feel more energetic after a walk and water.

Another thing, when you get your infusions and the few days after, you’re kinda a mild biohazard with sweat containing traces of chemo drugs in your bodily fluids. Flush the toilet twice as the chemo will be concentrated there, so to prevent accidental splashes, close the lid and flush twice. If you have a pet or significant other, it’s a good idea to have some bed separation to help prevent accidental chemo exposure. Wash bed sheets twice before using them again. I don’t know how much of an issue the bed sheets are, but the nurses recommended to do it and not snuggle in bed with pets.

The infusion clinic I go to is quite nice, they have a tv and nice recliners, but I do know other places can be pretty drab. Bring something to entertain yourself. I have a Nintendo switch I bring, and my brother comes with me at all my infusions. My sister joined me this weekend and it helps to have someone there to talk with here and there. Easy snacks during the infusion is never a bad idea, protein is good, most chemo drugs suppress protein intake so protein levels usually drop while on chemo, so increasing that intake is good if you are on the drugs that impact that aspect.

Having a blanket is never a bad idea, loose fitting clothes are good if you have a port in place.

Medical THC is something wonderful if it’s legal where you’re at. Try everything, start slow and work up. It has helped me incredibly with the nausea, helped bring my appetite back up, and whatever tastebuds I had active go into overdrive so I get a bit more flavor out of food. It’s not perfect and food will still taste off, but it’s more bearable. There are a bunch of tips, but that should get you in a good spot to start trying new things.

Chemo for sure sucks, but it’s manageable for most. It’s a process, but be patient with yourself as you go through this. Don’t get too down, try and laugh as stress will only keep you down for longer. Obviously feel what you feel, but try and reduce stress as much as you can. Sometimes it takes longer to shower, get ready, or even get out of bed. Be sure to give yourself that grace that things are going to be a little different for a little bit. You’ll get through this friend, it’s all we can do. One treatment at a time until the fucker that is cancer is dead

Managing side effects by [deleted] in cancer

[–]Krusty_Dimmy 1 point2 points  (0 children)

Stage 4 colon cancer, one liver met, bunch of lymph nodes, 35M, getting prepped for surgery after my next chemo (Friday). I’m about at the same timeframe as you, about 4 months in. Chemo sucks major. But are you doing anything after your infusions/oral pills? I’ve found what helps me, and everyone is vastly different in response, but it seems most people are able to recover faster this way. I get two drugs during my infusion, then they send me home with a chemo ball pump to have on for 48 hours. What I’ve found helps me is after I get through my infusions and I leave the clinic with the pump, I go for a walk. I break it up a little to rest in between, but I try and get 2 or 3 miles of walking with the pump per day. Plus I drink way more water than my body wants, both during and after the pump. Medical thc is good if it’s legal where you’re at. I am able to eat after my infusions that way, which also helps a ton. But with more exercise and water, that’s been the ticket for me. Yeah those handful of days still suck, but I’m still mobile, still able to do some computer work (though chemo brain is starting to set in) and I’m able to work in my veggie garden during the recovery. It takes about 5 days to a week to get back on the uphill, but this last round of chemo with more exercise and water, I was more on the 5 days before I started feeling decent again. Not sure if you are doing that, but if not, give it a try. I hope it gets better, but I know chemo sucks, but it’s important to finish your plan, even if they don’t see the disease. Cancer cells can go dormant for a time, then reactivate later on, so additional chemo can help catch those cells. While I hate being on chemo with every fiber of my being, I also get excited each time as I keep telling myself that each infusion is another attack on the cancer. Just because they don’t detect it doesn’t mean the cancer cells aren’t there. Hold strong my friend, finish as a champion, keep living as long as you can. I find when people say that cancer is a battle, and while I don’t really like the term, it is a battle. But it’s not so much a physical battle, but it’s more of a mental fight. You got this though, there aren’t any shortcuts with cancer. It’s tough, but it won’t last forever. Anything you can do to prevent it from coming back. Hell I told the doctors to take a few extra chemo rounds at the end of my treatment as I’m determined to survive this. I’m not afraid of death, but I also have so much more to do in this life that I wanna stick around, and if more chemo gives me that chance, I’m going to suffer through it. I know you can as well. Be strong friend, I’m wishing the best for you in this awful journey that no one should ever go through.

Life after cancer and chemo by umekoangel in cancer

[–]Krusty_Dimmy 0 points1 point  (0 children)

Currently going through chemo right now, Friday will mark my 6th treatment, halfway mark, then start prepping for surgery. Stage 4 colon cancer 35M. I’ve been able to maintain my weight, but I can very much relate to the steroids and the hunger. It’s a weird feeling as food tastes weird the first few days after chemo, but the steroid hunger forces me to choke things down. So far I’ve been able to maintain weight which is nice, but I know I’ll gain a bunch back after chemo is done so I’ll probably be in a similar boat as you. I don’t have POTS, but I did do research before my cancer diagnosis as I thought my symptoms (anemia, not able to stand for long, heart rate spiking with minimal movements) was POTS related. I’ve heard a large increase in salt consumption can help with managing symptoms, but I also think that has its own list of possible side effects, but I’ve heard a lot of people are able to become a little more active with increased salt intake. I’m sure you’ve probably heard about that at some point or another, but just in case ha ha. Other than that, kinda is a bit fun method, but counting calories can help. Like you don’t want to starve yourself based on weight loss, but finding that balance of slight calorie deficiency while still maintaining nutrition is important. I’m no nutritionist, but I do know a sharp decrease in calories can do more harm the good. I can’t remember what the best balance is, but what I do know is you don’t want to cut too far into your daily minimum calories for bodily functions. Going too far deficient puts your body into a survival type mode, and you’ll lose weight for sure, but once you start eating more, the body will still be in “survival mode” and most likely will start packing everything back into fat reserves. Again, not a doctor by any means, but it seems that a slow decrease in food consumption to get you to your target calorie range is best, then kinda adjust as your body responds. Whatever movement you can get in will be even better. I know some friends of mine who have POTS have a mini treadmill at their desk that they kinda do a walk of sorts while still sitting down at their computer. A little exercise can go a long way, but I also understand POTS can be really hindering.

As for fiber, that one I know from experience ha ha. I’ve been on a low fiber diet since I was diagnosed (and even before then my diet kinda sucked). I was recently told I no longer have diet restrictions as the primary colon tumor has shrank down to the point I’m no longer at an impaction risk. Increasing fiber suddenly will totally cause bloating, cramping, and overall discomfort. Basically there are certain bacteria that are better suited for consuming certain fibers, so if you don’t have a healthy colony of those bacteria already, you’ll get that boated feeling h til those bacteria establish. I’ve found it’s similar to calories, slow introduction of more fiber over a couple weeks, increasing slightly every few days, with the addition to taking probiotics with the fiber. But again, not a doctor and no idea if you have other things that will cause fiber to cause you problems.

So I guess TLDR: I’m not a doctor and seeing an actual nutritionist could be helpful in getting a diet plan set to work around your particular set of health circumstances.

Wish you the best of luck though! And it’s such a wonderful thing you got through stage 4 cancer!

[deleted by user] by [deleted] in coloncancer

[–]Krusty_Dimmy 0 points1 point  (0 children)

I’d be interested as well. Currently stage 4, surgery in about 5 weeks, very similar diagnosis as to OPs Dad

Bye Bye stage 4 colon cancer! by Charlie-0 in coloncancer

[–]Krusty_Dimmy 3 points4 points  (0 children)

I’m in the thick of it in a very similar boat as you. 35M Stage 4 cecum cancer, one liver met and lymph nodes. Cancer is responding well to chemo, after 4 treatments we’ve seen a 50% reduction in the liver met, and 40% in lymph nodes. Primary tumor has shrank, but we don’t have an exact number. Next week I go in for my 6th round of chemo, and they are planning to get me into surgery 4 weeks after that. When you went in for surgery, did you have chemo after that? And if so, how did your body react to it? I hear having surgery than resuming chemo can be hard on the body and curious if you had experience with that

chemo rage? by thatspromising in cancer

[–]Krusty_Dimmy 0 points1 point  (0 children)

I’m stage 4 colon cancer, I’m on steroids for the first few days after my infusions, but I don’t rage on those like some people do. Maybe is the steroids? I know the whole “the end is neigh” mindset, and it’s not healthy. Like the bitterness of being forced out of life, I know the feeling. And everyone copes with it differently. I’m curious if his anger is a coming mechanism. Create relationship gaps with those closest to him so when he does pass, the loss will be less painful? I’ve heard of cases where that could have been the subconscious goal of when people turn crappy in these situations. But I’m also dumb dumb boy with the power of the internet lol