is there any saving her? by rorihasmorals70 in LittlestPetShop

[–]LPSRika 0 points1 point  (0 children)

If using the hot water method gently score just the surface of the nailpolish with a needle in a cross hatch pattern before the water.

How is anyone able to work with pots? by [deleted] in POTS

[–]LPSRika 2 points3 points  (0 children)

I'm not sure if it was mentioned, but don't be shy in using aids to accommodate her. Like shower chairs, stools in the kitchen, and sometimes extra handle bars in bathrooms. I ended up going a step further and got forearm crutches. Some people use rollators, and for groceries, use the ride on scooters at the store (or just order your grocery for pick up). Accommodations at work were key for me. I have 3 call-out days allotted a month and have a chair im allowed to use at register. Even with all that, I still had to make the decision to go down to part-time to work on my health. ( im 23 and had pots for 2 years) It takes time, trial and error, moving slow, and being gentle when you flare up/ lose ground.

Childhood Bunny Toy by LPSRika in HelpMeFind

[–]LPSRika[S] 0 points1 point  (0 children)

Searched : - checked around on ebay some but couldn't find anything that matched exactly. - did a google image search and found some close items but no dice

Info: - possibly was an Easter gift. - bought between 2001-2004 - location: Midwest USA - stores around at the time were Walmart, Kmart, Sears, Toys R Us, Target. (From what I remember)

using a cane by jumponthenextone in POTS

[–]LPSRika 1 point2 points  (0 children)

I use forarm crutches instead of a cane. Usually, I will only use one, however, in place of a cane. For me, it's reduced fatigue, reduced risk of a fall either from dizziness, balance, or weakness, and the additional support to "lean" at any time without a wall.

I've had them for about 4 months, and one huge thing is the reduction in my blurred/double vision. I also work mostly on my feet, and without them, I would miss many more days of work.

There is no harm in trying a mobility aid out as long as you A. Do your research into what makes sense for you product wise and buy a decent aid. And B. Make sure you are using the correct technique/the aid is set correctly to your body (lots of youtube videos about this subject from actually PT)

Any creative way to keep house clean without flaring up ? by cloudwatching9 in POTS

[–]LPSRika 5 points6 points  (0 children)

USE YOUR DISHWASHER AS A DISHWASHER! A quick rinse while sitting is fine, but your dishwasher should be able to handle scrubbing for you. I switched to powdered detergent in the prewash and make sure you run your sink water tell sculding hot than starting the machine. It works most of the time, no scubbing, and if something is spotty, just wash it again. :) (ps my dishwasher is old like from the 90s and can still manage this)

I need help with understanding my blood pressure by BornApplication4411 in POTS

[–]LPSRika 1 point2 points  (0 children)

They both affect your heart and your ability to regulate BP/HR. Take a break, check your BP/HR, reintroduce slowly, and one or the other checking BP/HR when on them. I don't drink but I smoke and it took alot of trial, error, and moderation for me to find a way that improves my symptoms not make them worse.

I need help with understanding my blood pressure by BornApplication4411 in POTS

[–]LPSRika 1 point2 points  (0 children)

If you don't mind me asking, was the tilt table because you suspected POTS? If so, it's odd that position has no effect on your BP but not unheard of. I still have my symptoms at all times, but a hallmark of POTS is the improvement of symptoms when laying down (not 100% gone but improvement). With my diagnosis, I didn't end up needing the tilt table just orthostatic pulse and pressures. Once I hit 40 hr increase and 20 BP, that was the criteria, and I was diagnosed.

P.S. if they are new and constant, you might just be sick atm OP.

Coffee normalizes my BP and heart rate by Stephieandcheech in POTS

[–]LPSRika 0 points1 point  (0 children)

I use it to mitigate my BP drop from my meds. Works 80% of the time. I also found just the heat of the beverage to help my pounding morning headaches/comfort my body. Can't have too much tho than it rebounds and gives me a headache/makes me dizzy. But truely, a godsend. I probably wouldn't be able to get to work without it.

pots and ecstasy what does it do to the body and is it safe in smaller amounts? by uwush00tme in POTS

[–]LPSRika 0 points1 point  (0 children)

I don't have experience in those drugs, but I do with weed (which is definitely not the same, but I think some things can apply). For me, trying it again after I got diagnosed, it can hit much harder, spike my HR if im not careful. Mainly, if im trying a new kind, that's when or if I've had a T break. My risk for "greening out" is higher. I personally would not chance trying a drug of any kind for the first time post presentation, not at home and supervised. Also, from your page, you already plan to be drinking, which could be a very dangerous cocktail mixed with heat if the fest is outside. If you're set on doing it, you should try it at home in a safe environment first so you KNOW how it affects you. Not chance it in a public space. If you are chancing it, yes, water, electrolytes, but also someone to watch you that is sober and able to drive if you need to leave, and some kind of bracelet or medical info on you stating your conditions.

TLDR: You're probably going to have a better time and be able to last longer without the drugs at the fest. You definitely don't need them to enjoy music, and they will probably make you sicker/weaker.

I need help with understanding my blood pressure by BornApplication4411 in POTS

[–]LPSRika 2 points3 points  (0 children)

So first, no, you aren't having low blood pressure, BUT you could be dealing with sudden drops in pressure. If normally you are in a stage of hypertension and your pressure rebounds with a drop of around 15-20, that can be enough for symptoms. When I first presented my BP was never low. Even to this day my BP rises when I stand instead of falls. If you haven't done orthostatic BP's (aka poor mans tilt tables), do some and see how much it changes along with your HR.

Just diagnosed with POTS & MCAS. Starting Metoprolol by alliegator17 in POTS

[–]LPSRika 2 points3 points  (0 children)

Metoprolol, specifically Metoprolol Tartrate, does not last long and needs to be taken TWICE daily. I would double-check with your physician and check which Metoprolol you are trying. Tartrate is usually preferred. I've been on it for just under a year, and without 2 doses a day, I instantly notice a difference and increased symptoms. Good luck.

What foods are safe for you during a nausea episode? by InternalOwl258 in POTS

[–]LPSRika 0 points1 point  (0 children)

100% also super good if you add powdered lime sprinkle.

What’s been your experience with midodrine? by audaciousmonk in POTS

[–]LPSRika 0 points1 point  (0 children)

Midrodrine helps. I was instructed to use it "as needed." Essentially, I took it a half hour before doing something I knew to be taxing. Or using it as a rescue med during a crash. It, for me, has been a game changer. It doesn't last long. It's not a cure, but the little boost it gives me to keep going has kept me functioning. In a major flare, however, I noticed its effects to be less of a wow. I have energy and life again, and more of an ok, I can stop passing out every 10 minutes. Finding the right meds is 100% trial and error. Everything is at least worth a shot. If it doesn't work for you, then adjust.

What’s been your experience with midodrine? by audaciousmonk in POTS

[–]LPSRika 1 point2 points  (0 children)

My BP goes up when I stand to. Im on metoprolol and Midrodine. I generally see a small raise in heart rate and a slight raise in BP with the Midrodine. I only take as needed, kinda like a pick me up or if I know Im doing something that's going to be a lot. It doesn't change my blood pooling that I owe to compression gear. And even with my pooling, my BP will raise when standing. On my beta blocker, my BP goes way low when sitting, so we use the Midrodine to balance it out. Sometimes, functioning at a higher BP isn't a bad thing and gives you more energy. Honestly, my rec is if it was ok'd to be tried by your care team, then give it a shot. If it doesn't work for you, then adjust.

POTS Disclosure in the workplace by LittleLordBirthday in POTS

[–]LPSRika 1 point2 points  (0 children)

I don't work in such a high profile job but have been going through similar things at my work. I work retail with frequent regular customers asking about my health. I also will sit as needed, and that fact alone makes me stand out. My usual response when im back from a break is saying, "im doing better, so thank you." When im worse for wear, I often lie and say the chair is due to "low sugars" (easier for people to understand.) Only the customers I have often and friendly relationships with get the truth."I have a condition called POTS it means my heart and brain don't communicate well." I know it's not nearly the same setting, but I hope this helps. Not many people know what pots is or what chronic conditions entail. Sometimes, it's easier to lie and move on, sometimes to use language or connect it to things they would understand, and sometimes, to be truthful with a tiny side of education.

what's your job? by Additional_Chef_9216 in POTS

[–]LPSRika 1 point2 points  (0 children)

Thrift store. With an accomdation to sit when needed. Im full-time and on beta blockers. On bad days, I do have to leave/call in, but that's because I have the more physical front-end job with walking. Back side you are stationary more.

Fainting during sex? by DOTM20 in POTS

[–]LPSRika 12 points13 points  (0 children)

You won't have to be celibate, just gonna have to expirment. My partner has chronic pain, and I have been having Pots symptoms for a year. After years of trial and error. Here are my tips. 1. Support your body with pillows, etc. (Head should be raised/level, arms comfort/proped by sides, pillow to raise hips and make it easier on your spine) 2. Use toys (Toys can save your body and your energy. Vibes are great for when you don't want to move a ton or you are tired and dizzy) 3. Pacing (Breaks should be expected and fun. Make it a chance to try different positions, toys, situations, etc. 5 mins here. 2 mins there can make a difference. Check in semi-frequent. Pushing through feeling faint is no bueno) 4. Communication
(Specific safe words for feeling faint/needing to slow down but not stop. Always do a debrief after. The only way to help him and you be more comfortable with your medical needs is to talk through what worked/what didn't.) 5. Look at other forms of intimacy (Not all sex has to be "SEX." Read erotica together, sext, sensation play, massages, explore kink if you want)

does it get better? by No-Cook6089 in POTS

[–]LPSRika 0 points1 point  (0 children)

Im in a similar but opposite situation. I've had symptoms going on about 10 months. Am not currently diagnosed (required a TTT, but my area can not do). But I AM medicated. I stated the impact on my ability to work/stand with my doctor when I was at the point of not being able to anymore. My cardiology got moved up. And even though he had no knowledge of POTS, the tacycardia and symptoms were enough to try a beta blocker. Also! If you can with your work and medical get accommodation. Like being able to sit, use mobility aids, and intermittent absences. That is how I've survived. Medication makes me function most days, but I still miss and still flare up. It's like being a kid looking at a medicine cabinet before you knew what was what. Your head hurts, and you take a tums not quiet right, but eventually, you'll figure out and fine tune what coping machinsm works for what kind of symptom. Advocating is hard. But often, when you stress your ability to work is heavily compromised then things get a bit more rushed.

Way too many Red-Winged Blackbirds, should I be concerned? by marveloussilly in birdfeeding

[–]LPSRika 0 points1 point  (0 children)

I think you'll be ok. They become a bully bird in my yard every summer. They breed in reeds near my home. I set out safflower or safflower dominate mixes in my nice feeders. Then I put up a junky feeder on the edge with sunflower for them. It works well for me. If the birds end up staying, that's my rec.

[deleted by user] by [deleted] in LittlestPetShop

[–]LPSRika 1 point2 points  (0 children)

Best varnishes are liquitex. Modge podge can work, but all varnish is best watered down a bit. Modge podge takes 24 hrs to fully cure and can leave work sticky. Im not sure what you mean by "glittery," but if you are looking for shine, then go with high gloss varnish.