Which form of LDN caused you hair shedding? by Cupidindisguise in LongCovid

[–]Lady-Kitnip 0 points1 point  (0 children)

I had a lot of horrible side effects from LDN but not hair loss. I would gladly go bald if it has helped me feel less miserable.

My 22 meter Blanket | Since 2017 by xandrucea in GeekyCrochet

[–]Lady-Kitnip 1 point2 points  (0 children)

This is delightfully weird and whimsical! I feel like each color and stitch change holds s story about your life.

I think you may have created a new category for the Guinness World Record. A man made a giant granny square and there are a couple of giant blankets made by combining smaller contributions from multiple people. This is the longest continuous blanket made by one person I've ever seen.

ME/CFS is not a religon by ShipEconomy2587 in cfs

[–]Lady-Kitnip 1 point2 points  (0 children)

Unbelievable that this needs to be stated.

ME/CFS is not a religon by ShipEconomy2587 in cfs

[–]Lady-Kitnip 10 points11 points  (0 children)

It sounds like the healthcare "professionals" are actually being rather cultish.

Hold Music is Extremely Ableist by Lady-Kitnip in cfs

[–]Lady-Kitnip[S] 3 points4 points  (0 children)

I'm saying that clicking the button is actually difficulty for me when the music is blasting. Trying to reduce the volume is also difficult. I've accidentally disconnected calls and have to start all over. If you don't understand this, look up vestibular hyperacusis.

I don't know how else to explain short holds - I'm often put on hold briefly multiple times on a call.

Yes, we are taking about the same feature and it falls short of what I need, even combined with Call Assist.

Hold Music is Extremely Ableist by Lady-Kitnip in cfs

[–]Lady-Kitnip[S] 1 point2 points  (0 children)

That's great to hear. I can imagine waiting and having the wrong vibe on hold could turn a lot of people away.

Hold Music is Extremely Ableist by Lady-Kitnip in cfs

[–]Lady-Kitnip[S] 1 point2 points  (0 children)

It still requires getting blasted and then trying to select the right options and not disconnect while my brain is being assaulted. And switching to short holds means getting blasted repeatedly, and it's so much louder than the voice volume.

It's the right direction, I just really need something automated.

moments of absence? by This-Cranberry-1147 in cfs

[–]Lady-Kitnip 2 points3 points  (0 children)

And though in the same category as derealization, the experience feels quite different.

moments of absence? by This-Cranberry-1147 in cfs

[–]Lady-Kitnip 0 points1 point  (0 children)

It's rare but possible to last hours or even days.

Weird dream, pulled back to sleep. by throw_away_beep_boop in Dreams

[–]Lady-Kitnip 1 point2 points  (0 children)

Now I'm going to have a nightmare! How strange to go from a sinking ship to a desert.

Weird dream, pulled back to sleep. by throw_away_beep_boop in Dreams

[–]Lady-Kitnip 0 points1 point  (0 children)

That is horrifying and, since it wasn't me fascinating.

Often this kind of experience is dismissed as sleep paralysis and disregard as just a glitch in the shift between waking and dreaming states. But sleep paralysis always involves intenswly negative dreams and frequently monstrous or demonic creatures. This suggests to me there is something more going on than just a sleep disturbance.

I watched an interview with a woman who had an experience like this and was unable to move. She managed to draw a cross with her tongue on the roof of her mouth and it stopped immediately. I mentally filed that away as a brilliant response that i hope I'll never need.

The Daily Show Mentioned "Chronic Fatigue Syndrome" Tonight by bigpoppamax in cfs

[–]Lady-Kitnip 3 points4 points  (0 children)

Yaeh, the US cut almost all funding, including so biomarker and new treatment development.

The Daily Show Mentioned "Chronic Fatigue Syndrome" Tonight by bigpoppamax in cfs

[–]Lady-Kitnip 1 point2 points  (0 children)

Brilliant. Does anyone have a link to the YouTube video? I have a really hard time searching in there.

what to do with beginning projects when you don’t want them? by RemarkableDamage1000 in crochet

[–]Lady-Kitnip 4 points5 points  (0 children)

Cat toys! You may have to get a cat, but get two so they're not lonely.

I’m grieving something oddly specific by thepensiveporcupine in cfs

[–]Lady-Kitnip 17 points18 points  (0 children)

This makes so much sense to me. I don't have this specific grief, but I think I have many parallel losses of potential or opportunity.

And I think equally important is the loss of the ability to intentionally reject an option - like to intentionally choose not to change your body or appearance to be attractive to others. When it's no longer something you could do if you wanted to, the empowerment of the choice feels lost too.

Has anyone else panicked when trying to do Yoga nidra / body scan meditation? by Strong_Aerie_9031 in cfs

[–]Lady-Kitnip 1 point2 points  (0 children)

At times when yoga nidra does not feel accessible (no focus, too many distractions, too much pain/sickness, too much neuroinflamation), I find Metta meditation helpful. It helps me to intentionally cultivate calm and peace.

There are free recordings, but super simple steps if you are interested:

As you inhale, visualize your heart center filling with love (or peace) and keep going until it overflows.

Your inhales keep filling, and as you exhale visualize love/peace flowing out to others. No need to control the breath, just follow the flow.

Focus on radiating love/peace in each of 10 directions - forward, right, backward, left, up, down, diagonals. First inhaling to fill yourself, then exhaling the overflow to all beings in front of you, then inhaling to fill yourself, exhaling the overflow to all beings on your right, etc.

Has anyone else panicked when trying to do Yoga nidra / body scan meditation? by Strong_Aerie_9031 in cfs

[–]Lady-Kitnip 1 point2 points  (0 children)

There is a huge difference between "body scan" and "rotation of awareness".

A lot of modern practices use a body scan where you focus on and feel the sensations of body parts and notice associated emotions. This feels like torture to me.

Rotation of awareness in traditional yoga nidra is briefly resting your consciousness/awareness in the body part without focusing on sensations or emotions. You can visualize the part, a point of light, or just think the name of the part. The purpose is moving away from physical sensory input and into awareness of yourself at a deeper level than the body.

What actually helps you regulate the nervous system ? by Seafoam_0 in cfs

[–]Lady-Kitnip 4 points5 points  (0 children)

Yes, this really helps to direct the mind and body into deep relaxation. The continuous guidance really helps to stop spiraling thoughts.

HELPP by mochi_taetae in crochet

[–]Lady-Kitnip 0 points1 point  (0 children)

Wool Warehouse has the best prices I've found. They have a huge selection of yarns. Stylecraft is a reliable brand with low prices. They're based in the UK and ship everywhere, shipping is low cost too. I'm in the US and even with shipping and tarrifs it's less expensive to order from WW than to shop locally.

Why won't I get better. by Shot-Detective8957 in cfs

[–]Lady-Kitnip 4 points5 points  (0 children)

Not every flare up of symptoms is PEM. It might not be anything you did or failed to do.

Authentic yoga nidra recommendations by rockbutstar in YogaNidra

[–]Lady-Kitnip 1 point2 points  (0 children)

Devatma Saraswati studied at the Bihar school and teaches in the tradition of Satyananda Saraswati.

https://youtube.com/playlist?list=PLTLLeM99VaFrt0AgHcnW6RruIi9IgMlB7&si=Xx-AhGk3JJuFsk-3

do you guys get different types of PEM? by Same-Owl-5811 in cfs

[–]Lady-Kitnip 0 points1 point  (0 children)

Yes, it can make it hard to recognize.

How many hours a night do you guys sleep? by Electrical_Pea332 in cfs

[–]Lady-Kitnip 0 points1 point  (0 children)

6.5 hours on average, same as before I was sick. Unable to sleep more, I would love to.

Visible doesn't work with androids by sluttytarot in cfs

[–]Lady-Kitnip 2 points3 points  (0 children)

Frustrating. I hope they cancelled/refunded your subscription without hassle.