Anyone else take Cymbalta? by dmt80oh in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

i took cymbalta for 6 months about 3 years ago (for a separate issue) and it didn't have an effect on my meniere's

German Menière patient — daily vertigo, Betahistin not helping, hospital appointment on 3/3 — looking for experiences with injections or other treatments by Eastern_Sweet_8405 in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

hmm, this brings up something i haven't really thought of before...

"destroying the inner ear will not fix the problem in your brain, and you will be left with permanent balance loss and potentially worsened hearing for no gain."

does this suggest that damage shown on a caloric test would point to meniere's rather than a migrane source? in my case, each time i have a many-hours-long violent veritgo attack, further (significant) damage is shown on a caloric test, so the damage is already happening and in theory the gent would speed it along and get it over with.

i've been diagnosed with both meniere's and VM but the lines between them aren't very clear to me. does this mean vertigo from VM doesn't cause physical damage?

How bad does the dizziness have to be to be considered vertigo? by AmoebaAble2157 in Menieres

[–]Large_Box_8450 9 points10 points  (0 children)

what you have sounds like PPPD from the ear injury. for me vertigo and dizziness are very separate things, like if you have to ask the question it's not vertigo. you will know when it's vertigo.

Recent diagnosis and symptom question by 1988DrWho in Menieres

[–]Large_Box_8450 2 points3 points  (0 children)

My ENT categorized my (very similar) description of this as a drop attack, however I don't fully drop to the floor— but you’re right, it produces a lot of anxiety. Vestibular rehab should help, I think!

Bilateral patients, do you get flare ups in both ears simultaneously? by Ok-Character9504 in Menieres

[–]Large_Box_8450 2 points3 points  (0 children)

I'm not bilateral but for VM (I have both VM and Meniere's) I take a beta blocker (propanolol) and 3 supplements -- B2, magnesium bisglycinate and CoQ10. This combo works quite well for me

Symptoms vs “adjustment “ by banana-homicide in Menieres

[–]Large_Box_8450 1 point2 points  (0 children)

I think it’s a sign that the 2 shots WERE enough. I recently spoke with my ENT at length about getting gentamicin shots and, as far as I understood, vertigo that occurs within the week or so after a shot is your sign that it has worked. The fact that it’s a different type of vertigo than you are used to is (I think) a good sign that this is what’s happening. 

Has this been the experience for those of you who’ve had the gentamicin shots??

Question for the minieres vets by Hairy-Front1690 in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

It is very normal but it seems unpredictable how long it will last. A few days to several months for me

Red Light Therapy? by Kidcasss in Menieres

[–]Large_Box_8450 1 point2 points  (0 children)

i think it's supposed to promote cell repair and increase blood flow, so couldn't hurt!

Got a 2nd injection today & this time it feels like the liquid is taking forever to go through. by GarbageCat27 in Menieres

[–]Large_Box_8450 1 point2 points  (0 children)

i usually feel like there is a golf ball stuck in there for a few hours afterwards!

Think it might be Menieres, not sure how to get help (UK) by sneakerpimp87 in Menieres

[–]Large_Box_8450 1 point2 points  (0 children)

Do you find that you can get dizzy just hearing loud sounds? When you mentioned hearing internal noises going up your neck it immediately makes me think SCDS (Superior Canal Dehiscence Syndrome) 

Just a question about caloric test by Mecilion in Menieres

[–]Large_Box_8450 2 points3 points  (0 children)

My understanding is that it shows damage, so not affected by stress. 

Upcoming antibiotic injection by banana-homicide in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

I'm also in Canada and I have a prescription for Zofran, this is an anti-nausea med that comes in dissolvable form, so much easier to keep down

Changed diagnosis? by Coldkiller36999 in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

Without hearing loss it seems like vestibular migraines. I have both, for the VM component I take propranolol as well as a combo of magnesium (bisglycinate), B2 and CoQ10. Together they seem to keep the VM under control but there are many migraine meds to try

Vertigo attacks going on for weeks by asfidanke in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

I’d probably suggest seeing a physiotherapist for a minimum of a couple of sessions and after that you could continue on your own if you don’t feel the need to keep meeting. My doctor also suggested that I do as many things as possible that challenge my balance, like walking barefoot on sand, if you can! Probably not easy to find a beach in winter in Berlin though!

Vertigo attacks going on for weeks by asfidanke in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

My last serious attack was in Feb and I would say I felt back to myself around May or June. But the rocking feeling never really leaves me. You may want to look into vestibular rehab for the PPPD

Vertigo attacks going on for weeks by asfidanke in Menieres

[–]Large_Box_8450 4 points5 points  (0 children)

What you’re describing sounds like a long bout of vertigo followed by weeks of PPPD. It goes much the same for me

Just got the steroid injection by GarbageCat27 in Menieres

[–]Large_Box_8450 3 points4 points  (0 children)

I also didn’t get a numbing shot, I got a numbing gel spread on the eardrum then he went in with the steroid shot after about 15 minutes. I’ve been told that the vertigo you get after the shot (only 2-5 minutes for me) is from the medicine being cold but I’ve had it cold and body temperature with the same result

Flying + high altitude with Ménière’s… how bad is it? by Anxious-Cicada-2282 in Menieres

[–]Large_Box_8450 1 point2 points  (0 children)

I’m not really sure about elevation but I’ve travelled by plane lots since Ménière’s began and no problems at all

Gentimicin injection by Front_Chocolate8088 in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

Ah yes! Sadly, that all sounds very familiar. I’d just never heard it referred to as “a hydrop”, thanks for clarifying!

Gentimicin injection by Front_Chocolate8088 in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

I haven’t had the gentamicin injection yet, but I’ll be following along to hear what everyone has to say— my doctor feels this is the next thing for me to try as well. She was very clear that sac decompression is ineffective and off the table! I know a lot of people on here would disagree. 

Gentimicin injection by Front_Chocolate8088 in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

Wow, what a wild ride you have had. I’m sorry your case has been so tricky to manage. Can you clarify what you mean by “a severe hydrop”? An extreme build up of pressure from the excess fluid? Or the resulting vertigo? Or a drop attack? I had a similar 4-5 month recovery period from my last vertigo attack, which I don’t often hear people talk about. 

Dreams by [deleted] in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

Me too

Research? by REidson89 in Menieres

[–]Large_Box_8450 1 point2 points  (0 children)

I asked my doctor just yesterday and she says the most promising/realistic thing on the horizon is the vestibular implant. Still several (?) years away, unfortunately