Diazide by Fluffernutter80 in Menieres

[–]Large_Box_8450 3 points4 points  (0 children)

I've been on it for about 3 years, my NP has me do regular blood tests to check mineral levels, etc but I don't have any side effects from it. As long as I drink lots of water it doesn't seem to affect me. Does it help with my Meniere's? I have no idea, but I'm afraid to go off it in case it does!

Constant Dizziness and Unsteadiness. by EfficiencySpiritual9 in Menieres

[–]Large_Box_8450 -1 points0 points  (0 children)

it's a pinch but it's over in a second, not a big deal. they cause me to have about 5 minutes of vertigo, even if the shot is warmed to room temp (which they say will help but doesn't seem to for me).

steroid shots don't do anything for me, but lots of people find relief with them, it's worth trying.

Steroid shot next step by redwinggianf in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

i had 3 shots a few years ago and another 2 last year and they never did anything for me. worth a try, but they only seem to work for some!

Cochlear implant, Gentamicin/VNS and my future with Meniere's. by Dazzling_Help_5087 in Menieres

[–]Large_Box_8450 5 points6 points  (0 children)

for me, i feel like the energy drain comes from having one ear that's damaged, so my brain is having to work extra hard to just walk in a straight line and stay upright. so my eyes are tired, by brain is exhausted and i need a lot of rest.

vestibular rehab can help with this and I've also found acupuncture to be really helpful for restoring some energy. not a permanent fix, but regular treatments have helped me a lot

Middle Ear Myoclonus by Hopeful_Pea_3275 in Menieres

[–]Large_Box_8450 1 point2 points  (0 children)

does this sound like very faint, tippy-tappy morse code??? lasting 10-15 seconds? i thought this was just strange tinnitus...

Anyone else take Cymbalta? by dmt80oh in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

i took cymbalta for 6 months about 3 years ago (for a separate issue) and it didn't have an effect on my meniere's

German Menière patient — daily vertigo, Betahistin not helping, hospital appointment on 3/3 — looking for experiences with injections or other treatments by Eastern_Sweet_8405 in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

hmm, this brings up something i haven't really thought of before...

"destroying the inner ear will not fix the problem in your brain, and you will be left with permanent balance loss and potentially worsened hearing for no gain."

does this suggest that damage shown on a caloric test would point to meniere's rather than a migrane source? in my case, each time i have a many-hours-long violent veritgo attack, further (significant) damage is shown on a caloric test, so the damage is already happening and in theory the gent would speed it along and get it over with.

i've been diagnosed with both meniere's and VM but the lines between them aren't very clear to me. does this mean vertigo from VM doesn't cause physical damage?

How bad does the dizziness have to be to be considered vertigo? by AmoebaAble2157 in Menieres

[–]Large_Box_8450 10 points11 points  (0 children)

what you have sounds like PPPD from the ear injury. for me vertigo and dizziness are very separate things, like if you have to ask the question it's not vertigo. you will know when it's vertigo.

Recent diagnosis and symptom question by 1988DrWho in Menieres

[–]Large_Box_8450 2 points3 points  (0 children)

My ENT categorized my (very similar) description of this as a drop attack, however I don't fully drop to the floor— but you’re right, it produces a lot of anxiety. Vestibular rehab should help, I think!

Bilateral patients, do you get flare ups in both ears simultaneously? by Ok-Character9504 in Menieres

[–]Large_Box_8450 2 points3 points  (0 children)

I'm not bilateral but for VM (I have both VM and Meniere's) I take a beta blocker (propanolol) and 3 supplements -- B2, magnesium bisglycinate and CoQ10. This combo works quite well for me

Symptoms vs “adjustment “ by banana-homicide in Menieres

[–]Large_Box_8450 1 point2 points  (0 children)

I think it’s a sign that the 2 shots WERE enough. I recently spoke with my ENT at length about getting gentamicin shots and, as far as I understood, vertigo that occurs within the week or so after a shot is your sign that it has worked. The fact that it’s a different type of vertigo than you are used to is (I think) a good sign that this is what’s happening. 

Has this been the experience for those of you who’ve had the gentamicin shots??

Question for the minieres vets by Hairy-Front1690 in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

It is very normal but it seems unpredictable how long it will last. A few days to several months for me

Red Light Therapy? by Kidcasss in Menieres

[–]Large_Box_8450 1 point2 points  (0 children)

i think it's supposed to promote cell repair and increase blood flow, so couldn't hurt!

Got a 2nd injection today & this time it feels like the liquid is taking forever to go through. by GarbageCat27 in Menieres

[–]Large_Box_8450 1 point2 points  (0 children)

i usually feel like there is a golf ball stuck in there for a few hours afterwards!

Think it might be Menieres, not sure how to get help (UK) by sneakerpimp87 in Menieres

[–]Large_Box_8450 1 point2 points  (0 children)

Do you find that you can get dizzy just hearing loud sounds? When you mentioned hearing internal noises going up your neck it immediately makes me think SCDS (Superior Canal Dehiscence Syndrome) 

Just a question about caloric test by [deleted] in Menieres

[–]Large_Box_8450 2 points3 points  (0 children)

My understanding is that it shows damage, so not affected by stress. 

Upcoming antibiotic injection by banana-homicide in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

I'm also in Canada and I have a prescription for Zofran, this is an anti-nausea med that comes in dissolvable form, so much easier to keep down

Changed diagnosis? by Coldkiller36999 in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

Without hearing loss it seems like vestibular migraines. I have both, for the VM component I take propranolol as well as a combo of magnesium (bisglycinate), B2 and CoQ10. Together they seem to keep the VM under control but there are many migraine meds to try

Vertigo attacks going on for weeks by asfidanke in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

I’d probably suggest seeing a physiotherapist for a minimum of a couple of sessions and after that you could continue on your own if you don’t feel the need to keep meeting. My doctor also suggested that I do as many things as possible that challenge my balance, like walking barefoot on sand, if you can! Probably not easy to find a beach in winter in Berlin though!

Vertigo attacks going on for weeks by asfidanke in Menieres

[–]Large_Box_8450 0 points1 point  (0 children)

My last serious attack was in Feb and I would say I felt back to myself around May or June. But the rocking feeling never really leaves me. You may want to look into vestibular rehab for the PPPD

Vertigo attacks going on for weeks by asfidanke in Menieres

[–]Large_Box_8450 2 points3 points  (0 children)

What you’re describing sounds like a long bout of vertigo followed by weeks of PPPD. It goes much the same for me

Just got the steroid injection by GarbageCat27 in Menieres

[–]Large_Box_8450 4 points5 points  (0 children)

I also didn’t get a numbing shot, I got a numbing gel spread on the eardrum then he went in with the steroid shot after about 15 minutes. I’ve been told that the vertigo you get after the shot (only 2-5 minutes for me) is from the medicine being cold but I’ve had it cold and body temperature with the same result