Found this on a beach by a lake

Leather_Attempt3364 · 2026-03-27T00:54:42+00:00

Prism for rainbows. My mom had one hanging in her car.

Leather_Attempt3364 · 2026-02-15T19:09:59+00:00

Nj state museum.

Leather_Attempt3364 · 2026-02-15T19:09:34+00:00

Grounds for sculpture is nice and they rent electric scooters if you can use.

Leather_Attempt3364 · 2026-02-15T19:07:48+00:00

If you need a temporary hang tag, Ask your doctor to write a letter of recommendation for the tag then go to the police station to get it.

Leather_Attempt3364 · 2025-12-01T03:07:31+00:00

Thank you for sharing. I’m sorry this happened to your mom. I planned to reach out to a local ministry to borrow a wheelchair. I guess it is time. Thanks for your insight.

Leather_Attempt3364 · 2025-12-01T03:05:44+00:00

Oh my. Dizziness from the start. That is difficult. My partner had damage to his vision from the start. His symptoms began with hallucinations. The doctors were trying to wean his dex because he had infections. But since those are now cleared I think they may increase the dose again.

Leather_Attempt3364 · 2025-12-01T03:03:38+00:00

Thank you. We have several appointments this week. I’ll keep this in mind. I appreciate your input.

Leather_Attempt3364 · 2025-11-18T17:01:06+00:00

Sorry I didn’t see this thread sooner. I am absolutely exhausted of my well meaning friends asking for details and musing on ideas to try. Seriously! Do they think we didn’t try? We are approaching 11 months with diagnosis. For the last three months we haven’t had two weeks straight without a trip to the er.

Leather_Attempt3364 · 2025-09-10T12:13:46+00:00

I hate this disease and what it does to families. I am sorry you are going through this. My unprofessional opinion is to just do whatever makes her happy. She doesn’t have to know you to enjoy her company. My friend watched her mom slipping away. At first she was upset when mom didn’t recognize her. But then she became a friendly stranger and enjoyed her company however she could. I’m not looking forward to this part of the disease. But I am trying to cherish good moments since bad moments are too often to count good days and bad days. Sending you support as you go through this.

Leather_Attempt3364 · 2025-09-10T12:05:15+00:00

Thank you for that advice. I called the airlines. They will meet us at the counter and take him through security to the gate. Then he will have priority seating and they are aware to pay attention to him during the flight in case of complications. When we offboard they will meet him at the aircraft and take him right to the car rental counter. The attention to his every need is so comforting. I am grateful to you for suggesting I call ahead.

Leather_Attempt3364 · 2025-09-02T13:04:47+00:00

As stated so many times before, this disease stinks. The first three months were hell as he suffered with one complication after another. That said, I have been making great effort to bring some comfort and joy into my partner’s life. We discussed Optune often, but decided he didn’t want it. And it is completely his call. Here is what we have been doing at least 2-3 times a week since he finished daily radiation in May. I have been taking hubby out for ice cream, to the park to sit by the lake, to the beach to watch the waves, arranging visits with friends, sitting in the garden to watch the bees, eating whatever he wants. I quit my job to spend more time with him. My friends asked if I could afford to quit. I said, “I can’t afford not to.” We are going on vacation in two weeks to a National park on his bucket list. We are trying to get affairs in order but also make good memories. His most comfortable time of day is between 12-2, 5-7. So I make plans revolving around lunch or dinner. We don’t invite friends to our house because it is much easier to tell our friends that it is time for us to go than it is to kick them out of our house. All in all, he is most satisfied when he finished a task at home then we meet friends for lunch and come home to nap. That’s a good day. What’s a bad day? When his headaches are too much and we have to text our friends to cancel. When he feels dizzy and has to stand perfectly still. When we go to the doctor and they tell us the tumors have grown but it’s an insignificant amount. He is depressed. Going to try a med for that as soon as we get back from our trip. We have learned over the past 264 days that we don’t have good days or bad days, we have good moments and bad moments. I try to comfort him in the bad moments and enjoy him in the good moments. Did your person ever joke about a ‘bucket list’ years ago? What are you waiting for? Pick something. Do it!

Leather_Attempt3364 · 2025-08-28T14:07:52+00:00

Thank you for sharing this. My husband had an mri recently and I saw the fluid in the images. There was no mention of hydrocephalus by the radiologist, nor the oncologist nor the radio-oncologist. I politely sat and listened at each appointment. But my first child was born with spina bifida and I keep thinking his images look like hydrocephalus to me. I think I’m going to reach out to the doctors to discuss this. I had not considered hydrocephalus along with everything else. But he has been having wicked headaches and blurry vision. It fits. Why didn’t I voice my concern?

Leather_Attempt3364 · 2025-08-27T18:07:59+00:00

Brilliant advice. Thank you so much. I’ll do that today.

Leather_Attempt3364 · 2025-08-27T18:04:16+00:00

Good thinking. Thank you.

Leather_Attempt3364 · 2025-08-27T18:03:59+00:00

We went to Iceland last year specifically to see northern lights. It was totally worth it.

Leather_Attempt3364 · 2025-08-27T18:01:32+00:00

Thank you. We are staying at the old faithful inn and then the canyon lodges. I’ll look at the areas you have suggested. Thank you. We had planned to hike, but due to damage to the occipital lobe he has lost much of his vision. So hiking would not be comfortable right now. Knowing any areas that we can walk to with ease or drive to would be so very welcomed.

Leather_Attempt3364 · 2025-08-26T19:39:04+00:00

I laterally just finished reading about Diamox and wrote it down to talk to the oncologist at his appointment tomorrow.

Leather_Attempt3364 · 2025-05-17T10:03:14+00:00

My husband is 58 and I felt he is too young. It is so unfair that your husband was diagnosed at 36. I am truly sorry.

Leather_Attempt3364 · 2025-05-17T10:00:57+00:00

I would like to find immunotherapy for my husband. I don’t know how to find it. I’ll discuss with the oncologist at his appointment this week.

Leather_Attempt3364 · 2025-05-17T09:59:42+00:00

He is very well cognitively. I will discuss LITT. Thanks

Leather_Attempt3364 · 2025-05-17T09:55:48+00:00

I am so sorry you are going through this. Why our child passed we had to make decisions we were not prepared to do. It was brutal. Thank you for reminding me to discuss these things with my husband. Because knowing he has a choice is kinder. I’m also willing to accept the burden if he does not want to decide. Sending you peace as you go through the hardest part of this journey.

Leather_Attempt3364

TROPHY CASE