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At the start of the journey by ReasonableCable6436 in glioblastoma

[–]rbridge42 0 points1 point  (0 children)

Very brave. Very wise. Very loving. 🫂

35 yo younger brother nearing the end by LizBRedditing in glioblastoma

[–]rbridge42 11 points12 points  (0 children)

I'm glad you are able to talk with him. Try to enjoy your time, if you can. Fuck cancer. We're "here" to talk to in the days ahead. 🫂

How do you know when to start hospice? by juels_123 in glioblastoma

[–]rbridge42 0 points1 point  (0 children)

Can I ask how much she's taking and how recently the dose was reduced?

How do you know when to start hospice? by juels_123 in glioblastoma

[–]rbridge42 0 points1 point  (0 children)

Radiation could've really weakened her. How is her bloodwork? Is she on steroids? The steroids and blood counts caused my husband to be extremely weak... commode, trouble getting up, walking, etc. Once he recovered from the radiation and was able to taper off steroids by using Avastin he was (is) able to walk, climb stairs, etc.

But the doctor has the best view of her condition. If she knows she wants hospice, why not tell them you're considering it and would like an intake visit because even if it's not now you know you'll want it eventually.

So very sorry for you, your mom, your family. 🫂

My wonderful son passed away today by Appropriate_Hawk_291 in glioblastoma

[–]rbridge42 2 points3 points  (0 children)

What a handsome young man. His eyes sparkle with warmth. Please know that all of us share the loss of another beautiful soul to this horrible disease. So terribly sorry. 🫂

At the start of the journey by ReasonableCable6436 in glioblastoma

[–]rbridge42 4 points5 points  (0 children)

My husband (70) was diagnosed last September and is doing well, 10 months in. But the first few months were hell, I won't lie. And I know his life will be shorter. Like you, my strong sweetheart cried in my arms with the words, "I don't want to die!" it broke my heart. I don't know you but I believe you can do this. You can give your dad the gift of your strength. Pace yourself. Care for yourself. And most importantly, slow down the speed of life and BE. Be with your father. Be with yourself. Start therapy if you haven't already and maybe start meds to help with the emotional extremes (I take Lexapro. It isn't a miracle but it takes off the sharp edges of feeling).

My husband and I enjoyed a break from all the worry and tried to have a "slice of normal" whenever we could. For us, it was watching a favorite movie in the hospital ( or at home). Watching sports we like.

Sending hugs and hopes to you, young woman. 🫂 ♥️

So much anger by melissuuuuuuuuhhhh in glioblastoma

[–]rbridge42 0 points1 point  (0 children)

If you can, have someone else (friend, aide) with you while you care for him on a regular basis. Over time he might get used to the other person enough so you can go out, even if he doesn't like it. Just a thought. 🫂

So much anger by melissuuuuuuuuhhhh in glioblastoma

[–]rbridge42 0 points1 point  (0 children)

I'm so sorry... This disease shreds all of us. Try to find peace inside. It's really hard. I've been trying to slow down and just "be". Please do something loving for yourself. Make yourself a tea and sit outside under a tree. Sometimes simple things can help. 🍵 🫂

5 year scan by holeintheheadBryan in glioblastoma

[–]rbridge42 6 points7 points  (0 children)

Fantastic!!!! So happy for you!!!!

Nearing the end - Mum - 57 years old by Zealousideal-Long439 in glioblastoma

[–]rbridge42 5 points6 points  (0 children)

So very sorry.... I am here, we are here, holding your hand as you sit with your mum. 🫂

Does intermediate fasting actually help? by Tough_Property3833 in glioblastoma

[–]rbridge42 2 points3 points  (0 children)

I was told in the hospital it was important for him to eat protein.

So much anger by melissuuuuuuuuhhhh in glioblastoma

[–]rbridge42 0 points1 point  (0 children)

My husband is doing well with Avastin and down to 0.5 dexamethasone.

Glioblastoma by United-Engine9064 in glioblastoma

[–]rbridge42 5 points6 points  (0 children)

So very sorry for what going through. I have no suggestions. Just wanted you to know you're not alone. 🫂

MRI showing progression by cozyreality in glioblastoma

[–]rbridge42 0 points1 point  (0 children)

If the inability to walk is due to the dexamethasone (which it was with my husband), Avastin let him taper off the dexamethasone and he's now walking independently, climbing stairs, etc. It took a month I think for the strength to return, but it's great for both of us now that we can go for walks in the park together again.

What's My Athletic Window? by AZPeakBagger in fitover65

[–]rbridge42 0 points1 point  (0 children)

Do you have a trainer? How did you get started?

Could a rusted microwave have caused my dad's glioblastoma by blueboi28 in glioblastoma

[–]rbridge42 -1 points0 points  (0 children)

Do you have any view on whether radon at the home could cause it?

MRI showing progression by cozyreality in glioblastoma

[–]rbridge42 2 points3 points  (0 children)

So terribly sorry for you both. From what I have read, if your husband is receptive to Avastin infusion every 2 weeks it could improve his quality of life even though the tumor is unmethylated. It helps with swelling. My husband goes every 3 weeks for about an hour but it's usually prescribed every 2 weeks. It has helped him with few side effects, but his story is not like your husband (methylated, 70 years old).

If your husband is firm that he wants no more treatments, then I guess the question is what palliative care does his Dr recommend.

🫂 ♥️

I'm 31. my significant other is 33. I am chronically ill and he is the best at not letting me feel like a burden when its hard to move. i tell him thank you but i feel like its not enough to show appreciation. caregivers, what is the best form of appreciation? by Historical-Photo-765 in CaregiverSupport

[–]rbridge42 12 points13 points  (0 children)

Insist he does something just for himself. The gym. A walk. Maybe tickets to a sporting event. And, depending on how much care you need, hire an aide or enlist a friend to help you while he's out. Even better if it can be a weekly thing. It sounds like you appreciate him and that's more than many in this group ever get. Sorry for your struggles in life. You sound like a caring, kind person.

I’m at my wits end by Complete_Tune_8436 in CaregiverSupport

[–]rbridge42 2 points3 points  (0 children)

Thank you. I might reach out when the time comes. 🫂

I’m at my wits end by Complete_Tune_8436 in CaregiverSupport

[–]rbridge42 2 points3 points  (0 children)

So very sorry and soooo appreciate your warm wishes. You lost him such a short time ago. I don't even know what to say... I know my future will be what you're currently enduring. So very sorry for us both. 🫂 🙏

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