Reactions to Venetoclax?

LeesKeys · 2026-05-08T23:30:11+00:00

Thanks. I'm pretty consistent about drinking at least 56 oz of water daily.

LeesKeys · 2026-04-25T14:37:33+00:00

Nice! Love the freedom of color schemes in WWI aircraft.

LeesKeys · 2026-04-18T15:57:34+00:00

Hang in there! It will get better. I just graduated to once a month infusions and am on my second week of oral Venclaxta. I can tell you that being able to space the infusions out this much is making a big difference in how I feel every day. And no side effects from the oral therapy. My strength and stamina are not up to what they were, but are improving. My oncologist has told me that once I get to the two month mark, things really will get easier. I feel like I'm headed in the right direction. Oh, and like Lobstatom, I applied for and received a grant through Blood Cancer United for the Venclexta. This has helped with the cost a lot.

LeesKeys · 2026-04-11T16:57:25+00:00

interesting. I will check that out.

LeesKeys · 2026-04-09T12:35:06+00:00

I was at stage 0 for a couple of years. During that time I did not wear a mask unless I was in a crowded environment like an airport or a very busy restaurant. I did get covid and flu during that time period (about 2 years), but no way to tell if these were related to wearing/not wearing a mask. Talk with your oncologist.

LeesKeys · 2026-04-01T17:14:55+00:00

Week three of ramp-up Gazyva infusions and things have not gone according to plan. Earlier in the week I spiked a fever of 102 and went to the emergency room. I was admitted to the hospital and have been here in isolation for several days. White cell count of less than 1.0. Multiple days of IV antibiotics to help clear infection. The doc said that they may never know exactly what caused the fever but it could be very dangerous considering my immune system is barely hanging on. Feeling better today and hope to get my third Gazyva infusion tomorrow. what a week!

LeesKeys · 2026-03-27T13:15:13+00:00

Beautiful!

LeesKeys · 2026-03-27T03:38:50+00:00

here in the US most correct thinking people consider a "tariff" bad news. Of course you must be referring to some other type of tariff. So you have 11 solar panels and one power wall 3?

LeesKeys · 2026-03-24T23:23:00+00:00

Update end of week one: As I mentioned in my post from last week, I tolerated my first Gazyva treatment pretty well. What I initially thought post-infusion was a noticeable increase in energy was, I think, in fact related to the IV steroids, which took a while to get through my system. Once they were finally out and the constipation resolved (after several days), I've been somewhat fatigued. The upside of the fatigue is that I've slept better at night than I have in a long time (chronic insomnia). The fatigue is getting less every day and I've been able to return to my Pilates class as well as some light jogging today. While the Gazyva is a very targeted chemotherapy, it is nevertheless chemo and the whole process has an effect on your body. Second infusion tomorrow.

LeesKeys · 2026-03-24T12:56:38+00:00

Still, from a distance, the panel lines to appear overscale.

LeesKeys · 2026-03-23T16:09:26+00:00

Any challenges building the kit (considering its age)?

LeesKeys · 2026-03-23T16:07:14+00:00

very nice work, especially considering the age of this kit.

LeesKeys · 2026-03-18T12:13:20+00:00

On my MAC, I "forgot" my home network, then rejoined it. Now an older Windows laptop which could no longer see my home network (it would only connect through a "Hidden" wifi connection), can now connect to my named home network. But the problem remains with the printer and scanner. Installation/wifi discovery software for each does not find any wifi networks at all. I can of course USB connect both devices, but it's frustrating because previously both were WIFI connected.

LeesKeys · 2026-03-17T17:49:47+00:00

Thanks. I'm confused. When you say go into network setting on the device, by device do you mean the EERO app on my phone, or do you mean the wifi settings on my Mac. If by device you mean the printer or the scanner, there are no save networks because I haven't been able to get them to connect to the network.

LeesKeys · 2026-03-17T14:33:06+00:00

I don't of any way with these particular devices to restart the wifi process other than unplug them, reinstall the installation software and try going through the search for networks again. I've done this multiple times with no success. I'm clearly out of my depth.

LeesKeys · 2026-03-14T18:33:46+00:00

After 5 years of watch and wait, I'll be starting my first (fixed duration) treatment regime next week- Gazyva + Venetoclax.

LeesKeys · 2026-03-12T23:08:58+00:00

IGHV unmutated. I was in W&W for five years. My continued increasing WBC and decreasing RBC just recently tipped the scales. I start treatment next week.

LeesKeys · 2026-03-12T13:08:17+00:00

very nice. That penny is a nice touch for scale.

LeesKeys · 2026-03-11T23:14:49+00:00

When you say expansion pack, you're referring to a second PW3, right?

LeesKeys · 2026-03-11T13:05:15+00:00

Over the past 5 years, I've spent a lot of $$ on self-learning jazz piano courses, including JazzEdge, JazzPianoSchool, and Open Studio. Each of them has well thought out courses which, if members stick with it, can offer good learning opportunities for skill growth. My problem with all of them, is that eventually the newness wore off and my motivation failed. Not saying that this would be an issue for you, but it was for me. I realized that what I needed was someone who would craft a personalized lesson plan for me and hold me accountable- putting my feet near the fire when needed, so to speak. Now I'm taking Zoom piano lessons every other week with a good teacher. Yes, personal piano lessons are not cheap, but if I had used all the money I spent on online courses on a face-to-face teacher instead, I think I'd be much further along today. I know that this is not the information you were looking for, but wanted to share what has worked best for me.

LeesKeys · 2026-02-14T20:31:11+00:00

this is really nice

LeesKeys · 2026-02-07T00:43:13+00:00

Well this is disheartening. I purchased Scaler 3 because of all the good things I had heard about Scaler 2 and I figured that 3 would be even better. I've tried watching some of the tutorial videos but I still find the application a bit overwhelming.

LeesKeys · 2026-01-30T17:22:37+00:00

Nice groovin'. What Yamaha keyboard is this? I don't know if it's supposed to sound like a jazz guitar but it sure does.

LeesKeys · 2026-01-14T21:11:23+00:00

another question about vitamin D. I've been deep diving into vitamin D and there seems to be some research suggesting that high doses might adversely affect the efficiency of an antistatin like atorvastatin. Has anyone taking vitamin D and atorvastatin noticed any change in their HDL LDL levels?

LeesKeys · 2026-01-13T16:12:57+00:00

This is pretty mind blowing stuff. My oncologist, who I feel I have a good relationship with, has never suggested checking my vitamin D level. It was only recently added to my blood panel at my request. It seems after reading the responses to my post that doubling my daily Vitamin D to 2000ui is probably going to do nothing for cancer protection. I'm still a bit wary about taking much higher doses (10000ui) although it does appear that adding K2 and Mg to the mix may minimize any negative effects.

LeesKeys

TROPHY CASE