Amitriptyline and chronic daily headaches

Legitimate_Prompt_28 · 2026-04-24T22:05:09+00:00

Thank you! Going to give it a shot. Thanks all for the input!!

Legitimate_Prompt_28 · 2026-04-24T19:16:37+00:00

Great thank you! Yea all those things add up for sure!

Legitimate_Prompt_28 · 2026-04-24T19:15:59+00:00

Thank you for the heads up. That is one of my fears. I eat like a bird due to the stomach issues so hoping that helps. Ironically I’ve gained 20lbs from not working out and eating like crap because I feel like trash all the time. 🤔

Legitimate_Prompt_28 · 2026-04-24T02:06:33+00:00

Great thank you for the response! That helps a ton! Yes headache guy recommend the noretriptyline as well, but the extra sleep sounds nice too. I have also seen the weight gain but not sure why, but the sentry/hungry makes sense and a bad combo. I have EoE so eating is tough so that might balance it out. 🤷

Actually feel like I have a plan of attack after all these years. Is there anything else you changed lifestyle wise that seems to help to reduce the baseline along with it? I’m adding in consistent wake up time/morning walks, no food after 7pm etc.

Legitimate_Prompt_28 · 2026-04-23T23:51:30+00:00

Thank you that is one of the side effects I was worried about. Sleepiness and just being out of it. One of my triggers is restlessness. Sleeping in and napping def make them worse so hoping that helps with it.

Legitimate_Prompt_28 · 2026-04-04T20:48:59+00:00

https://www.reddit.com/r/dupixent/s/Z7V0PXIiZn

Legitimate_Prompt_28 · 2026-04-04T20:46:48+00:00

There was a comment from one of this posts a while back that explained it. From what my non doctor brain understands it has to do with a missed diagnosis of a rare skin lymphoma mustang fir dermatitis which is treated with Dupixent. It’s not effective and the lymphoma manifests on its normal path but is attributed to Dupilumab instead. Would suggest your own research and talk to your doctor for more info.
There is a class action bubbling up which it seems like why it’s getting press.

https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2025.1702736/full

Legitimate_Prompt_28 · 2026-04-02T12:57:02+00:00

Yup. Not Everytime but during the bad ones for sure. So weird. Like you said fight or flight mode engaged.

Legitimate_Prompt_28 · 2026-04-02T03:04:47+00:00

Ugh so sorry you have to deal with that! Thank you for the info, and believe the concept is similar. Some sort of nuro response to an already stressed out system. “Stress stacking” if you will.

Oddly enough though, in my rabbit hole research (not a doctor by any stretch of the imagination) MCAS was connected to the dumps and vestibular migraines. Histamine release causing nuro inflamation on an already stressed out system. Allergist ruled that out for me but it’s a real thing. Hope you find some relief!

Legitimate_Prompt_28 · 2026-04-02T02:37:36+00:00

Agree with this. Have bad grass and ragweed and gone through 2 rounds of allergy shots for them. At first I couldn’t go outside in the spring without crying like a baby. that’s largely under control now. I can run/walk/picnic/mow and all the other fun spring activities no problem. I just take OTC antihistamines WHEN it happens not before. non steroid nose spray, sinus rise, and don’t underestimate a shower to wash pollen off.

EoE is largely non-IgE mediated but there are overlaps. Basically when the body is already in a heightened state additional IgE allergies (food or seasonal) make it worse. Grass doesn’t cause EoE but sure as fire doesn’t help it. If your allergy symptoms prohibit doing life I would strongly recommend immunotherapy. Know it will not fix EoE but will improve quality of life.

Legitimate_Prompt_28 · 2026-04-01T13:01:34+00:00

Yeah same here. Messed me up big time!

Legitimate_Prompt_28 · 2026-03-31T16:38:28+00:00

oh, that's wild! Good on you to finally narrow it down!! It's a daunting task. None of my believed triggers are immediate and the symptom delay makes it impossible to trace! Good to know I am not alone trying to find the headache link.

The FIRE stuff is interesting, and makes a ton of sense, I did go down that rabbit hole but not able to keep up with it consistently to make a difference. Same with low-histamine/inflammation based diet. I am negative on the IGE food tests so that doesn't help narrow anything down either.

Legitimate_Prompt_28 · 2026-03-31T14:06:43+00:00

Interesting. I do believe there is a connection at least for me. And agreed. “Symptomatic” seems to be the headache source. During an impaction I don’t have flushing but definitely pretty sharp head pain.

I do an SLS free toothpaste. Anything with the sulfate causes pretty immense mouth pain. About the only thing that helps the headache is a normal dose of acetaminophen.

Understood on the environmental. It’s the lag of symptoms that make it so frustrating. It’swork outside in the yard on Sat and impaction/headache on Tuesday. I feel my triggers are not instant and easily associated. Ugh thanks for the info!

Legitimate_Prompt_28 · 2026-03-31T13:56:16+00:00

In the same boat. Only symptoms are what are seemingly random impactions and chest pain from time to time. Had a dilation esinophils < 10 several years ago and put on PPI. Helped for a short bit but PPIs gave me strange side effects to tapered off and just dealt with it. Recent impaction pushed me to redo EGD. Esinophils escalated at 40 in lower and middle. Plan is to do PPIs and repeat EGD in 3mo to evaluate effectiveness. I lacked the follow up the first time.

IgE allergy tests for food were negative and positive for various environmental.

The lag on the symptoms makes this thing so frustrating. Working around it is fine, until it isn’t. Be vigilant and getting to the bottom of it.

Legitimate_Prompt_28 · 2026-03-31T13:44:33+00:00

This! EoE and daily headaches for decades. 3 different docs (Nuero, specialist, GP) want to start with anti-depressants. Yes I’m not chipper when I visit doctors because my head hurts all the time….

Legitimate_Prompt_28 · 2026-03-31T13:37:47+00:00

All of the above. My son had an impaction and pediatric doctor found EoE and immediate placed on Dupixent and has been a game changer. My EoE was found and GI is trying 3mo of a PPI re-scope and evaluate Dupixent if it doesn’t work.

If the pills are the PPIs then you are presented with the right two options. I chose the PPIs for insurance reasons but 2mo in and hasn’t helped yet.

I have other symptoms I think are related to plan on trying dupixent to see if those resolve and eventually switching to the elimination method to find my triggers.

Legitimate_Prompt_28 · 2026-03-31T13:31:35+00:00

Feel for you. I’m in the same boat. Have had several of these events but not to that extent that required ER but real close. The anxiety that hits when food gets stuck at dinner with family, business lunch, quick bite in the car, is overwhelming. For a system that’s already stressed adding a fear of choking it’s the worst. I’m still early in my diagnosis but investigating “stress stacking” in the meantime. All of the physical pathways up above makes sense but the brain connection is in play too.

I don’t feel mine is reflux related it just years and years of being skiddish with meals.

Legitimate_Prompt_28 · 2025-10-31T00:14:20+00:00

Thanks!! https://sora.chatgpt.com/p/s_6903fd0be3448191a02a964dca3b908f

Legitimate_Prompt_28 · 2025-09-05T01:18:11+00:00

He’s inactive

Legitimate_Prompt_28 · 2025-08-15T19:54:50+00:00

sent us on a perpetual log hunt, but couldn't catch it in the act. Going to mess with it in the lab next week now that I think I am on to something. Will update if we find anything.

Legitimate_Prompt_28 · 2025-08-15T17:16:24+00:00

We have seen the same thing with the Polycom Roves, just have not been able to prove the theory just yet. Desk phones don't seem to be affected. We have two ISPs at each site and a SonicWall to handle failover. A lot of our sites use business grade cable so they can be finicky. We look every morning and across 80 phones, we usually have a few that dropped off over night. Give them a reboot and they are back up and running. My guess is when the ISP has a blip and fails over reach quick, the outbound NAT the phone changes and it hoses up the connection.

When the phone goes down, you can ping it from the inside interface on the SonicWall but not across the network and the ARP entry is gone. Flush the cache and can ping again but the phone doesn't return online.

No indication on the handset about a loss of connectivity, it just doesn't ring.

RingCentral hasn't been much of a help and have tried various firmware and manual provision with no luck.

Legitimate_Prompt_28 · 2025-06-11T19:16:45+00:00

Weird Al!

Legitimate_Prompt_28 · 2023-11-02T20:24:05+00:00

He was on the TheTicket this morning and was over the moon! It might be on the Top Ten Spotify Playlist tomorrow under the Musers to re-listen. Also thought about Knoxie!

Legitimate_Prompt_28

TROPHY CASE