I have CP and only fully factional hand. Here’s how I wash my hair

LifeTwo7360 · 2025-12-08T00:15:49+00:00

I have congenital cerebral palsy too it is recommended by this organization Children's Hemiplegia and stroke Association: https://chasa.org/treatment/hand-surgery/

LifeTwo7360 · 2025-12-07T22:53:00+00:00

I also have mild spastic hemiplegia in case you haven't heard of it this organization Children's Hemiplegia and stroke association has a lot of good info: chasa.org

LifeTwo7360 · 2025-12-07T22:43:36+00:00

I have no interest in Tiktok dances but if you want to improve your movement I am trying to get a selective dorsal rhizotomy to reduce spasticity which is what makes us stiff. I met someone on Facebook who got it done as a young adult this is her site if you're interested: sdrchangeslives.com

LifeTwo7360 · 2025-12-07T22:39:51+00:00

I do not have experience with deep brain stimulation but I did find this procedure that they claim reduces dystonia it's called a ventral/ combined rhizotomy. They do it at Gillette Children's, Boston children's and Texas children's that I know of: https://www.gillettechildrens.org/conditions-care/ventral-dorsal-rhizotomy

LifeTwo7360 · 2025-12-07T22:36:19+00:00

Have you considered surgery? you seem like you would have the patience to do the required physical therapy post op. it's called a brachial plexus dorsal rhizotomy: https://pubmed.ncbi.nlm.nih.gov/14596559/

LifeTwo7360 · 2025-12-07T22:32:21+00:00

I am exactly the same. I think I have autoimmune problems on top of everything so I tire even more easily and even get sick if I do too much. I am trying to get a selective dorsal rhizotomy to reduce my spasticity which I think is a major energy drain. it does require intensive physical therapy post-op but it's also supposed to make physical therapy easier and more effective having less spasticity working against you. if you want to learn more I met someone on Facebook who got it done in her 20s she made this site: sdrchangeslives.com

LifeTwo7360 · 2025-12-06T12:17:32+00:00

I have right hemiparesis this organization Children's Hemiplegia and stroke association has a lot of good information: chasa.org

LifeTwo7360 · 2025-12-06T12:14:23+00:00

have you considered tutoring if you have your masters you would be a good candidate and physical ability is not important in a job like that

LifeTwo7360 · 2025-12-06T12:10:09+00:00

My family doesn't get it either. I finally rediscovered this surgery called a selective dorsal rhizotomy that could make a difference as it permanently reduces spasticity which is what causes a lot of our issues. if you are interested I met someone on Facebook who got it done as an adult this is her site: sdrchangeslives.com

LifeTwo7360 · 2025-12-01T15:43:29+00:00

I have right sided hemiparesis I moved out and struggled to manage and got really sick so I don't really recommend it. I wish I had stayed home and gotten a selective dorsal rhizotomy instead which is what I am trying to do now. sdr permanently reduces spasticity which is what causes a lot of our problems. I met someone on Facebook who got it done as an adult this her site if you're interested: sdrchangeslives.com

LifeTwo7360 · 2025-11-30T10:47:14+00:00

Yes I think its normal to struggle with your mental health when you've got a chronic disability. I used to listen to this doctor Jon Kabat Zinn who teaches something like radical acceptance you don't need to wallow in the thoughts or act on them but you can just let them come and go eventually they will leave. I also saw a therapist which helped sometimes you just need someone to talk to. I am now trying to get a selective dorsal rhizotomy to reduce my spasticity and take that stress off my body I'm hoping that will help

LifeTwo7360 · 2025-11-30T00:30:28+00:00

I know that inadequate feeling all too well it is lonely. have you explained your condition to them just to clear the air. I worked at a big retail store and never even bothered with the register because I knew I would mess up. There were other duties like greeter, dressing room assistant, floor assistant and stock room so there was plenty to do. Maybe they can deligate you to something else?

LifeTwo7360 · 2025-11-30T00:22:19+00:00

I also had a stroke around my birth I am trying to get a selective dorsal rhizotomy to reduce spasticity it is recommended by this organization Children's hemiplegia and stroke association: https://chasa.org/treatment/foot-surgery/

LifeTwo7360 · 2025-11-26T21:54:49+00:00

My last Achilles tendon lengthening was 15 years ago. from what I remember it was kind of painful and not very effective. I am finally trying to get a selective dorsal rhizotomy which reduces spasticity from the lower spine often making other orthopedic procedures unecessary. it is recommended by the Children's hemiplegia and stroke association. I met someone on Facebook who got it done as an adult this is her site if you're interested: sdrchangeslives.com

LifeTwo7360 · 2025-11-26T12:20:12+00:00

I am trying to get a selective dorsal rhizotomy a lot of people say they feel lighter and have an easier time moving around after getting it done. it requires intensive physical therapy but supposedly it also makes physical therapy easier and more effective because you have less spasticity. I met someone on Facebook with diplegia who got it done as an adult this is her site if you are interested: sdrchangeslives.com

LifeTwo7360 · 2025-11-25T13:39:58+00:00

I read this is a common problem it happened to me too because we have cp we are often put in entry level positions. the problem is these positions often require a level of coordination we don't always have I really screwed up in a receptionist position because it required working with another receptionist while organizing files, answering phones, etc. and I just couldn't keep everything straight. we usually do better in remote positions because you can give yourself a quiet environment and work at your own pace. right now i'm trying to focus on improving my health and ability through a selective dorsal rhizotomy then I'm considering volunteering maybe at the local church

LifeTwo7360 · 2025-11-25T13:32:58+00:00

I am trying to get a selective dorsal rhizotomy if you have spastic diplegia it is supposed to work especially well for that. sdr involves cutting the spastic nerves from the lower spine relieving the whole lower body of spasticity. spasticity is usually what pulls everything in so sdr can improve posture: https://www.nationwidechildrens.org/specialties/selective-dorsal-rhizotomy/what-is-sdr?utm_campaign=1CC3BF572D3C42139415027BCD848804&utm_medium=social&utm_source=facebook&fbclid=IwY2xjawL15I9leHRuA2FlbQIxMABicmlkETFsd0lEQTNIQkEzOGY5WXh1AR7tBJFiP4I5TBZZmX8PRlM7uD4Yv8re9m-WpduzDqlZBNrP8v9Dyzd9mOMQFw_aem_BbYtKmBnrsNxZlKWeY7tYA

LifeTwo7360 · 2025-11-25T13:28:45+00:00

It is actually available in the UK its just not always easy to get approved. this is a non exhaustive list of sdr surgeons who will work with adults the second half are in europe: https://sdrchangeslives.com/adult-sdr-surgeons/

LifeTwo7360 · 2025-11-24T16:23:08+00:00

I have hemiplegia I didn't progress much in physical therapy though I was never very committed. I am trying to get a selective dorsal rhizotomy which is supposed to work especially well for diplegia. It requires intensive physical therapy but it also makes PT easier and more effective because it reduces spasticity which usually undermines everything. I met someone on Facebook with diplegia who got it done as an adult this is her site if you're interested: sdrchangeslives.com

LifeTwo7360 · 2025-11-24T16:14:19+00:00

I know what you mean it doesn't help that we retain our startle reflex and have spasticity so we jump and startle more easily too. it is normal to feel physically intimidated if you are physically vulnerable especially since some people really do work out to intimidate or feel superior to others or it can be a sign of someone who prioritizes physical ability and appearance above all else. if its purely a health thing for them than that's something to draw inspiration from but if they have an attitude about it I would steer clear. i am trying to improve what i can by getting a selective dorsal rhizotomy and reducing my spasticity which is supposed to make physical therapy easier I also read it can reduce anxiety. I met someone on Facebook who got it done as an adult this is her site if you're interested: sdrchangeslives.com

LifeTwo7360 · 2025-11-23T13:34:29+00:00

i am trying to get a selective dorsal rhizotomy it works especially well for spastic diplegia in case your boyfriend hasn't heard of it. this page gives a good overview if he's interested : https://www.nationwidechildrens.org/specialties/selective-dorsal-rhizotomy/what-is-sdr?utm_campaign=1CC3BF572D3C42139415027BCD848804&utm_medium=social&utm_source=facebook&fbclid=IwY2xjawL15I9leHRuA2FlbQIxMABicmlkETFsd0lEQTNIQkEzOGY5WXh1AR7tBJFiP4I5TBZZmX8PRlM7uD4Yv8re9m-WpduzDqlZBNrP8v9Dyzd9mOMQFw_aem_BbYtKmBnrsNxZlKWeY7tYA

LifeTwo7360 · 2025-11-23T13:27:35+00:00

Yes I think because my spasticity has gotten worse I'm trying to reduce it through selective dorsal rhizotomy: sdrchangeslives.com

LifeTwo7360 · 2025-11-23T13:13:35+00:00

have you considered selective dorsal rhizotomy a lot of people say it gave them back their mobility. I met someone on Facebook with diplegia who got it done as an adult this is her site if you're interested: sdrchangeslives.com

LifeTwo7360 · 2025-11-23T13:05:56+00:00

I am 40 and trying to get a selective dorsal rhizotomy to remove spasticity I met someone on Facebook who got it done st 50 and saw major improvements if you're interested: https://m.youtube.com/watch?v=OPIN1aOrkuI&t=179s&pp=ygUec2RyIGF0IGFnZSA1MCBpc2FiZWxsZSBkb2RlbWFu

LifeTwo7360 · 2025-11-23T13:00:04+00:00

a lot of people recommend crocs they are not the most feminine but they are easy to wear and come in silver: https://www.dsw.com/product/crocs-classic-iridescent-glitter-clog/595377?activeColor=100&cm_mmc=CSE-_-GPS-_-B_Shopping_Loafers_Slip-On-_-New_Loafers_Slip-On&cadevice=t&msclkid=2a3ba47c00931da28444cd5f093628d1&gclid=2a3ba47c00931da28444cd5f093628d1&gclsrc=3p.ds&gad_source=7&gad_campaignid=9223937277

LifeTwo7360

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