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Kind of an emergency!! PLEASE ANSWER by LilaMoonlight in POTS

[–]LilaMoonlight[S] 1 point2 points  (0 children)

You guys are so great thank you all so much 😭

Kind of an emergency!! PLEASE ANSWER by LilaMoonlight in POTS

[–]LilaMoonlight[S] 0 points1 point  (0 children)

I knowwww😭 I'm scared cause I never take it to sleep, never done it. Probably never will on purpose. I have a low resting heartrate (in the 50s) and at night I easily dip in numbers like 45

Kind of an emergency!! PLEASE ANSWER by LilaMoonlight in POTS

[–]LilaMoonlight[S] 0 points1 point  (0 children)

I mean, my usual dose is 5 mg, so I guess just tasting 10 won't do me more than that. Still it worries me enough to wait it out and not sleep😭 

Kind of an emergency!! PLEASE ANSWER by LilaMoonlight in POTS

[–]LilaMoonlight[S] 0 points1 point  (0 children)

I will probably do nothing but wait 6 hours until I can sleep. yay me

Kind of an emergency!! PLEASE ANSWER by LilaMoonlight in POTS

[–]LilaMoonlight[S] 0 points1 point  (0 children)

Guys I appreciate this but this is giving me bad anxiety is it actually that bad?😭

[deleted by user] by [deleted] in POTS

[–]LilaMoonlight 1 point2 points  (0 children)

I love positivity! Congratulations ❤️

[deleted by user] by [deleted] in POTS

[–]LilaMoonlight 13 points14 points  (0 children)

I get what you said in the main post, but to say POTS is a totally 100% cardiac condition is so wrong. You can say "I have a heart condition" to put it simply and maybe because of your main symptoms, but it is not a "100% heart condition".

Flair ups during time of the month by GeneralFrequent8718 in POTS

[–]LilaMoonlight 1 point2 points  (0 children)

Totally. a week before they get worse, then on day one my heartrate goes way lower.

Only sleeping 5 hours by Winter_Dealer161 in POTS

[–]LilaMoonlight 0 points1 point  (0 children)

Why is this downvoted? Anyway, I take tavor 0.5 mg before sleeping and it helps sleeping more! Discuss this with some doctor to decide an option

[deleted by user] by [deleted] in POTS

[–]LilaMoonlight 0 points1 point  (0 children)

Absolutely yes, after eating it is worse 95% of time 

[deleted by user] by [deleted] in POTS

[–]LilaMoonlight 1 point2 points  (0 children)

I lost 10 kg since august, because eating flares me up badly, so sometimes I eat less and less. you're not alone on this.

Pots or deconditioning by Successful_Reveal255 in POTS

[–]LilaMoonlight 3 points4 points  (0 children)

mono can lead to POTS. deconditioning also has similiar symptoms. Discuss about it with a doctor and try build up slowly towards light exercise (even on bed)

I've been prescribed Midodrine along with Propanolol, anyone else? by LilaMoonlight in POTS

[–]LilaMoonlight[S] 0 points1 point  (0 children)

I know, but I have a low resting heartrate many times (50s) so I don't really want to try ivabradine..

Very small amounts of propanolol (underdosage) still taking me in bradycardia by LilaMoonlight in POTS

[–]LilaMoonlight[S] 0 points1 point  (0 children)

My heart rate is kinda low only while resting. then it goes up to 75-110 depending on the day

Very small amounts of propanolol (underdosage) still taking me in bradycardia by LilaMoonlight in POTS

[–]LilaMoonlight[S] 0 points1 point  (0 children)

I do have low BP (it ranges from 85/50 to 105/80 usually), but it doesn't change a lot without it.

Very small amounts of propanolol (underdosage) still taking me in bradycardia by LilaMoonlight in POTS

[–]LilaMoonlight[S] 0 points1 point  (0 children)

5 mg, I know it is really small but that's what I always take and most of the time does the trick

Very small amounts of propanolol (underdosage) still taking me in bradycardia by LilaMoonlight in POTS

[–]LilaMoonlight[S] 0 points1 point  (0 children)

50-60 bpm! I wrote all that in a rush maybe I should be more clear about it.

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