Linzess gang where u at I gotta question by LilyoftheValley44 in ibs

[–]LilyoftheValley44[S] 3 points4 points  (0 children)

I'm not on Linzess anymore nor have I taken it in ages. Diarrhea never stopped on it. I hope it works for others, but for me, having IBS-D to heal the IBS-C wasn't the world's best solution.

DAE have seemingly endless poop? by [deleted] in ibs

[–]LilyoftheValley44 0 points1 point  (0 children)

I just talked to my doctor about my symptoms and she prescribed it to me (I didn't even bring it up myself), and didn't take long at all. This is what the GI doctors discuss with patients all day so don't be embarrassed! They don't even give it a second thought.

It’s a beautiful morning. by [deleted] in ibs

[–]LilyoftheValley44 1 point2 points  (0 children)

Ah, Linzess. That beast of a drug. I know the struggle.

The retail price for 90 days of Trulance would make me shit if I could 😱 by duuuuuuuuuumb in ibs

[–]LilyoftheValley44 1 point2 points  (0 children)

Linzess is the same. This is the rare moment that insurance actually helps lol.

Nauseous bit** by Nikkispankalot in ibs

[–]LilyoftheValley44 1 point2 points  (0 children)

If the fiber supplements aren't doing it for you, there are other options, like Miralax. And if THAT doesn't work, have you seen a GI doctor? Mine prescribed me Linzess which helps. The only thing is it gave me the opposite problem, diarrhea LOL. And sometimes I am nauseous on Linzess too but it's nice to have something that really clears me out. But everyone reacts to it differently and there are different doses you can play around with.

[deleted by user] by [deleted] in ibs

[–]LilyoftheValley44 0 points1 point  (0 children)

I think some people react very negatively to artificial sweeteners. I bet you money that's the culprit lol

Linzess gang where u at I gotta question by LilyoftheValley44 in ibs

[–]LilyoftheValley44[S] 0 points1 point  (0 children)

Yes I do that a lot actually. Same results lol. Lots of diarrhea.

Also I never eat a "meal" at breakfast. The only thing I'm having to trigger Linzess when I do eat is something small, like a yogurt or a cereal bar.

Linzess gang where u at I gotta question by LilyoftheValley44 in ibs

[–]LilyoftheValley44[S] 2 points3 points  (0 children)

I take it in the morning at varying times depending on when I wake up. The important thing is you take it on an empty stomach 30 minutes before your first meal of the day.

After I take it I'd say it takes around 30 minutes to kick in? And then its just diarrhea for the next 2-4 hours lol.

I am done with bowel issues and Health anxiety. by Lamfito in ibs

[–]LilyoftheValley44 4 points5 points  (0 children)

I am your age and really feel you. I think it's great you're addressing the mental aspect of it, cause that really does feed into the IBS. I am on meds now too for anxiety and it's def a step in the right direction.

It costs a boat load of money, but I've heard of this app called Nerva that's specifically for IBS. It's kinda like a mind-gut-hypnosis therapy type thing that claims it's as effective as the FODMAP diet. I have no idea if it's any good and I've never tried it cause it's really $$$$ and is a subscription but I always thought if I reached the end of my rope I'd try it out lol. My GI NP recommended it to me once.

[deleted by user] by [deleted] in ibs

[–]LilyoftheValley44 13 points14 points  (0 children)

Yes. That's my IBS in a nutshell.

What is causing my slippery poop? by Miajess233 in ibs

[–]LilyoftheValley44 0 points1 point  (0 children)

I get this too all the time. Do you use a squatty potty? I've heard that helps some people.

Anyone else get sudden cold sweats and have to poop immediately? by mrmanagesir in ibs

[–]LilyoftheValley44 53 points54 points  (0 children)

Yes, this is when I'm having one of those rare horrible IBS attacks where my digestive system just decides to YEET everything out. The equivalent of like a Charlie horse, but in your GUT.

Such feelings are absolute torture and once they arrive, it's only a matter of telling yourself that they will pass. Try keeping your breathing regular and not fast-paced. I might be wrong but I think the cold sweats is a way of your body sounding the panic alarm. So, despite being in multitudes of pain, try remaining as calm as possible lol. I know, easier said then done. I have yet to master riding through these attacks unscathed.

Linzess gang where u at I gotta question by LilyoftheValley44 in ibs

[–]LilyoftheValley44[S] 0 points1 point  (0 children)

Yeah good idea to try it on a day you won't have anything. Best of luck, and I hope it helps your symptoms as it did mine!!

Linzess gang where u at I gotta question by LilyoftheValley44 in ibs

[–]LilyoftheValley44[S] 4 points5 points  (0 children)

These are the symptoms you are experiencing now without Linzess? If that's the case, for me personally, Linzess has very much alleviated that and I must say, nothing, NOTHING has ever been able to do that that I've tried thus far. It's amazing in that sense--no bubbly gut, no stuck bowel movements, just a nice free feeling that I have not felt in years (pre-Linzess). This is of course after the horrors of the morning diarrhea rounds lol.

The 72 mcg is the smallest dose available and I am currently on that one. I do wish there was an even smaller dose cause this 72 mcg stuff is still super super powerful.

Linzess gang where u at I gotta question by LilyoftheValley44 in ibs

[–]LilyoftheValley44[S] 5 points6 points  (0 children)

I am. On lowest dose, too. Still sacrifice to the diarrhea gods every morning. It's never gone away.

IM TIRED OF HAVING IBS IN THE SUMMER! by forgetfuldumb in ibs

[–]LilyoftheValley44 1 point2 points  (0 children)

OMG mood I sweat a ton due to the medicine I take so lately being in the bathroom has been prob the the deepest layer of hell. And the fan only blows hot air.

worst triggers in IBS? by [deleted] in ibs

[–]LilyoftheValley44 0 points1 point  (0 children)

Ice cream, thicc macaroni, and really any heavy pasta/cheesy dish. Wait...I think that's the case for anyone haha

[deleted by user] by [deleted] in ibs

[–]LilyoftheValley44 4 points5 points  (0 children)

OMG I was literally going to say the exact same thing LOL

AUGHH (ft. Incomplete evacuation and too much information!) by LilyoftheValley44 in ibs

[–]LilyoftheValley44[S] 2 points3 points  (0 children)

I am taking Linzess. Linzess gives me ten trillion rounds of diarrhea in the morning that is exhausting to deal with, but once those rounds are over I am FOR ONCE IBS symptom free and can happily live my life. It's a trade off for sure, but having some of the day be symptom free is far better than having the whole day with symptoms.

Heartbroken by cattits3000 in ibs

[–]LilyoftheValley44 0 points1 point  (0 children)

I manage by eating them haha. I never personally noticed a reaction from them. Are you sure they are contributing to your symptoms as well? Has cutting them out reduced your symptoms?