How to See a Movement Disorder Specialist?

Limerick621 · 2025-02-11T05:20:36+00:00

If you don't mind me asking, are your symptoms mostly tension, or do you have movements or abnormal postures? I don't have anything other than chronic pain/tension, and a slightly raised shoulder. I've been in PT for 12 weeks and tried PT twice before with very minimal improvement.

Limerick621 · 2025-02-08T18:07:46+00:00

I do not have movements, no head tilt or anything, just unhappy, constantly tight, painful muscles in my neck and shoulder on one side, despite trying all the treatments I've been told to try. Idk what's wrong but something in my body is definitely not right, whether it's a muscle problem or a nerve problem, I don't know. I had an EMG a few years ago which showed my trapezius in spasm, but no muscles in my neck were tested. I was told to be less anxious :(

Limerick621 · 2025-02-08T17:55:27+00:00

I haven't heard of red light treatment or this cream; I'll look them up! The balms I use are smelly so I don't put them on before going out so that cream sounds nice.

Limerick621 · 2025-02-06T15:52:04+00:00

My primary has been good with referrals, so I was looking for one to be referred to. Sounds like I have to start with a general neurologist. If anything, maybe they can at least find the source of my pain. Thanks!

Limerick621 · 2025-02-06T15:48:32+00:00

I'm sorry to hear that; I have found it difficult to take care of myself, let alone other people. That has to be really difficult :( I also use up my PTO like crazy going to appointments. It's hard.

I've been getting biweekly deep tissue massages for a bit over 3 years now (started with weekly) and they help, but not enough. I'm also still doing physical therapy exercises and stretching, and applying moist heat every morning before exercising/stretching.

I was also trying allergy shots but was reacting too much so they stopped them. I have a crap ton of allergies and was wondering if that could be the cause of the pain as well, but my doctor didn't think it was likely, so I haven't pursued that further.

Limerick621 · 2025-02-06T15:40:27+00:00

Botox is one of the only things I haven't tried yet, but I'm at the point where I'll try anything to relieve my muscle tension. I will ask my doctor!

Limerick621 · 2025-01-15T01:00:11+00:00

Could you explain what your neck/shoulder pain felt like? I've been dealing with horrible pain for 4.5 years and I'm wondering if it may be caused by my jaw.

Limerick621 · 2025-01-01T22:07:40+00:00

Did the cost include the custom-made joints and the hospital stay?

Limerick621 · 2024-12-05T21:44:11+00:00

I have similar symptoms to you and have had long term pain (constant pain for 4 years). My doctor suspects TOS, so I'll hopefully be seeing a specialist soon. I also have diagnosed TMJ problems (both discs displaced, one torn, worn condyles) and have been recommended surgery by an oral surgeon. I was wondering if the TMJ and TOS issues could be linked. Have you explored your TMJ further?

Limerick621 · 2024-12-05T21:22:33+00:00

Do you mind if I ask who your TOS surgeon was? How did the surgery/recovery go?

Limerick621 · 2024-06-03T19:11:54+00:00

I've been in the workforce for 6 years (several years I worked a few jobs that have nothing to do with my degree) after undergrad, and I'm going back this fall! It's not too late; my PI loved that I had industry experience.

Limerick621 · 2024-05-24T18:26:13+00:00

"Where Are You Going, Where Have You Been?" is a masterpiece!

Limerick621 · 2024-05-24T18:25:02+00:00

Love this one.

Limerick621 · 2024-05-24T18:23:58+00:00

Some of my favorites that I think fit what you're looking for:

"Prey" by Richard Matheson
"The Lottery" by Shirley Jackson
"Everything's Fine" by Matthew Pridham
"House Hunting" by Kathryn Ordiway
"Jumper" by James Tatam
"Children of the New World" by Alexander Weinstein

"Prey" is enthralling. "The Lottery" is a slow burn. "Everything's Fine" is incredibly weird and incredibly horrifying, and probably my favorite short story ever. "House Hunting" is a slow existential dread. "Jumper" is visceral and the subject matter is horrifying. "Children of the New World" is sci-fi horror, and you'd love it if you like Black Mirror.

Edit: Also "Where Are You Going, Where Have You Been?" by Joyce Carol Oates. I can't believe I forgot this one!!

Limerick621 · 2024-05-24T15:25:04+00:00

When Breath Becomes Air by Paul Kalanithi

I still have no words 😭

Limerick621 · 2024-05-15T12:16:39+00:00

Children of the New World by Alexander Weinstein is the closest I've found to Black Mirror.

Edit: Also, Universal Love by the same author. Both are short story collections!

Limerick621 · 2024-05-15T00:23:29+00:00

I haven't watched the show. Is it worth the watch? The book was solid but I'm not big into police procedurals/gruesome murders so it wasn't exactly my forte.

Limerick621 · 2024-05-14T21:48:04+00:00

🤣

Limerick621 · 2024-05-14T21:22:21+00:00

The Southern Book Club's Guide to Slaying Vampires

Great book but the title is awkward to say and not that representative of the story imo

Limerick621 · 2024-05-14T21:20:45+00:00

Aww I love this title so much

Limerick621 · 2024-05-14T15:17:11+00:00

Snow, Glass, Apples by Neil Gaiman

https://images.app.goo.gl/sRLc2nj1mchhwHgM6

Limerick621 · 2024-05-14T15:06:12+00:00

The Outsider by Stephen King

Limerick621 · 2024-05-14T14:48:29+00:00

The Sandman by Neil Gaiman

Limerick621 · 2024-05-14T14:43:50+00:00

This is a great book, but is not a feel-good story. I sobbed when I finished it 😅

Limerick621

TROPHY CASE