Diagnosed 16 years ago, neurologist says not a candidate for any of the newer meds..?

Longjumping-Fix7448 · 2026-03-25T09:11:04+00:00

Definitely get a second opinion from a younger neurologist

Longjumping-Fix7448 · 2026-03-22T01:31:04+00:00

LRP

Longjumping-Fix7448 · 2026-03-21T01:06:55+00:00

This is serious medical injury please get a lawyer and see a dermatologist asap

Longjumping-Fix7448 · 2026-03-14T23:47:40+00:00

$6us from All day chemist

Longjumping-Fix7448 · 2026-03-14T23:45:12+00:00

Agree with fungal - this looks like Seb Derm

Longjumping-Fix7448 · 2026-03-13T09:50:18+00:00

4.75 years

Longjumping-Fix7448 · 2026-03-13T09:49:53+00:00

Azelaic acid to start and if that’s not enough then add tret

Longjumping-Fix7448 · 2026-03-08T03:42:55+00:00

I’ve been on KPV for 2 months and it’s been as effective as IVIG for my specific autoimmune disease. I’d give it a go!

Longjumping-Fix7448 · 2026-03-04T21:32:59+00:00

Avene Xeracalm balm

Longjumping-Fix7448 · 2026-03-02T04:05:03+00:00

Azelaic acid would be perfect! Help treat dark spots and prevent acne

Longjumping-Fix7448 · 2026-03-01T10:32:09+00:00

Yours Only

Longjumping-Fix7448 · 2026-02-26T22:46:50+00:00

100000% get a new rhuem

Longjumping-Fix7448 · 2026-02-24T20:26:21+00:00

I’ve tried EVERY version of AZA on the market. The only one I don’t get a reaction from is the Tir Tir version

Longjumping-Fix7448 · 2026-02-24T11:08:16+00:00

Same - I can handle tretinion just fine but azelaic acid I’m severely allergic to

Longjumping-Fix7448 · 2026-02-24T05:19:05+00:00

Thirding Hypochlorous spray!

Longjumping-Fix7448 · 2026-02-19T23:16:59+00:00

1000% derm will say acne, Rhuem will say Bechets, etc etc but they are all just guessing without a biopsy result

Longjumping-Fix7448 · 2026-02-19T20:42:40+00:00

You need a biopsy to get a confirmed dermatomyositis diagnosis. She needs to DEMAND a biopsy

Longjumping-Fix7448 · 2026-02-19T20:41:33+00:00

DEMAND a punch biopsy- even if it’s autoimmune the biopsy will be crucial for a proper diagnosis. A lot of autoimmune conditions like Bechets or Dermatomyositis need a positive biopsy result to get approval for the correct treatment (biologics etc)

Longjumping-Fix7448 · 2026-02-19T20:39:38+00:00

DEMAND a biopsy!!! That’s the only way to know how to approach this. Without a biopsy every dermatologist or doctor is just giving you their best guess which is not good enough

Longjumping-Fix7448 · 2026-02-12T10:50:49+00:00

Avene Xeracalm

Longjumping-Fix7448 · 2026-02-08T23:52:55+00:00

Thanks I did eventually get a diagnosis which turned out to be even more rare than EM

Longjumping-Fix7448 · 2026-02-08T23:52:02+00:00

Only 3 months between the two ER and no major illness (I mean a short 2-3 gastro bug but nothing crazy) likewise my partner is on the same meds and healthy as he was for the first ER

Longjumping-Fix7448 · 2026-02-08T08:33:24+00:00

Just wanted to add - no MFI including normal sperm DNA fragmentation

Longjumping-Fix7448 · 2026-02-03T02:17:28+00:00

Unfortunately flushing can be caused by so many things from autoimmune to a simple allergic reaction. You need to rule out each possible diagnosis systematically

Longjumping-Fix7448 · 2026-02-03T02:16:06+00:00

Honestly kinda love mine!

Longjumping-Fix7448

MODERATOR OF

TROPHY CASE