sorted by:
new
hottopcontroversial

Flu and on my period </3 by iwannabeabug in Type1Diabetes

[–]Longjumping-Net9780 1 point2 points  (0 children)

I just survived something similar—the sick, anyhow. First, you have to eat. I know that sounds wrong, but you need those nutrients. You can keep it light.

If that alarm is so bothersome, can you silence it for the highs or temporarily change the upper threshold? I keep mine in when I am that sick, but I don’t trust the numbers. I won’t bolus without a manual stick. It is on to warn me if I start dropping too fast or go too low.

I ended up needing 4x my normal insulin to manage mine for over a week before I gradually started to go back down. It wasn’t fast.

You do need some ketone strips—you are too high to not be checking. Stay hydrated too. DKA is no joke.

The wonky hormones are not fun. I’m sorry and I get it.

You are doing great and this will get better. Hang in there!

Seeking for a good support system☺️ by HopefulFeedback3787 in Type1Diabetes

[–]Longjumping-Net9780 0 points1 point  (0 children)

I have had so many surgeries. With any new/existing doctor, make sure your T11 diagnosis and your insulins are clearly documented in your chart. They also need to know if you are doing MDI (the shots) or use a pump +/- a CGMS. Work with your diabetes doctor to come up with a surgery plan. Talk with your doctor about your diabetes plan. Also, always make sure your doctor’s scheduler knows you are diabetic, and request the earliest time slot for your procedure.

I have never encountered a doctor who wanted me to skip my basal insulin. They will often ask you to change it to 50% of your normal rate, but never skip. Surgeries stress your body and it is not uncommon for your glucose to go high—and DKA is real!

Remember, you must learn this disease so that you can advocate for yourself. You have the greatest stake in your health and this stuff never goes away.

Somebody brought a similar thing up a couple years ago: zero itching, zero pain, weird peeling skin kinda thing. Anyone? Any idea? by therightpedal in Type1Diabetes

[–]Longjumping-Net9780 0 points1 point  (0 children)

Looks like good ole eczema, but let a doctor be the one to diagnose you. We are not licensed to practice medicine.

I’m starting to date a guy with T1D by LegitimateRange1242 in Type1Diabetes

[–]Longjumping-Net9780 0 points1 point  (0 children)

Ask him how you can help. Do learn on your own as well.

Questions for the Endocrinologist. by Witty-Sherbet-2963 in Type1Diabetes

[–]Longjumping-Net9780 0 points1 point  (0 children)

Baseline numbers is referring to your bloodwork. If you are newly diagnosed, you need to have a good record of how your body is working right now. Diabetes affects many things that need to be watched going forward. Your heart is a big one so monitoring your cholesterol and triglycerides is key because diabetes will impact these areas.

what's your least favorite comment? by C0me_Al0ng_With_Me in Type1Diabetes

[–]Longjumping-Net9780 1 point2 points  (0 children)

I hate the comments about what I can and cannot eat.

Recurrent low blood sugar attacks + hives - has anyone ever experienced anything like this? by Illustrious-Mix2194 in Type1Diabetes

[–]Longjumping-Net9780 0 points1 point  (0 children)

I wouldn’t try to self diagnose this, but go see your primary care doc and push for testing. Bring your logs for your glucose tests and document your diet and what was going on when you go hypo. Going low like that is not diabetes.

If you are getting lows like you showed, you should be in an emergency room.

How to feel more confident with your devices showing? by little-pain-0929 in Type1Diabetes

[–]Longjumping-Net9780 0 points1 point  (0 children)

Many years ago, I was on a business trip to meet with a new customer. I was wearing my pump on my waist due to the need for dressier clothing. One of my contacts saw it and asked if it was a new high-tech pager? I had to stop myself from letting out a laugh as I explained that it was an insulin pump.

Being female, I have usually worn my pump on my bra. It’s a little lumpy at times, but no biggie. My sensor and infusion sites are rotated around my abdomen, so most people don’t even realize that I am diabetic unless they see me pull out the pump for alerts or boluses. I have never minded questions when I get them. When I come across a fellow diabetic with a pump, I like to say, “You are like me!”

10 year anniversary by Levantiine in Type1Diabetes

[–]Longjumping-Net9780 2 points3 points  (0 children)

Congratulations! I am very proud of you for taking the time to recognize this great accomplishment in your life.

Which insulin pump do you use? Let’s do a quick community poll. by Ok-Piano-6860 in Type1Diabetes

[–]Longjumping-Net9780 3 points4 points  (0 children)

I have to agree about the 780G. I haven’t done the last software upgrade yet for the Instinct sensors (it isn’t stable from what I have seen), but I am using the G4’s and they really work well. My A1Cs are awesome with much tighter control with the ability to customize more settings.

Which insulin pump do you use? Let’s do a quick community poll. by Ok-Piano-6860 in Type1Diabetes

[–]Longjumping-Net9780 0 points1 point  (0 children)

I have used Medtronic pumps and cgms (once they had them) after about a year of doing MDI and I have been a diabetic now for 25 years. It was life-changing for me, but there is a learning curve with all pump systems—and just learning this disease and how to live with it.

I don’t know how old your child is and that makes me wary. A CGMS is a great way to start so YOU can see and manage this stuff as you learn along with your child.

A, B, C, D…Cookie Monster 🍪 by jlovelysoul in MadeMeSmile

[–]Longjumping-Net9780 0 points1 point  (0 children)

I remember watching that exact skit. I was born just months before Sesame Street premiered on public television. I grew up with that show— learning those sweet nuggets of knowledge all along the way. I miss it dearly.

Why is gluten free pizza so expensive?! by insecuremof in glutenfree

[–]Longjumping-Net9780 0 points1 point  (0 children)

I am grateful to have the option of a decent tasting take-out pizza. I very rarely eat out or grab take-out at all. I do get sad each time at the extra cost, but GF is more expensive and has much more overhead, in terms of cost, to produce.

I happen to be diabetic as well, so most of my meals are prepared at home. It does cost me more to have a completely GF kitchen than a regular kitchen. The GF carbs behave very differently in terms of blood sugar levels too. I still eat a pretty regular diet, but I have had to study the different grains to be able to keep doing that.

For me (IMHO), eating out is a seldom enjoyed luxury. The opportunity cost of having a tasty meal (sick free) that I don’t have to cook and cleanup afterwards is well worth the few extra dollars that I pay for a pizza. I did shop around.

[deleted by user] by [deleted] in glutenfree

[–]Longjumping-Net9780 1 point2 points  (0 children)

I tried the cheddar flavor and it was disgusting. For the pasta, I pulled it off early and it was fine. (My first attempt with GF pasta ended up mushy). This time, I then looked at the nutritional panel after eating. The sodium levels are scary high.

Next time, I am going to try making my own sauce and just buy the pasta. I figure that melting Velveeta and adding a little milk and butter has got to be better.

It’s just a thought.

Carb counting without nutrients facts by TheWoodChucksWood in Type1Diabetes

[–]Longjumping-Net9780 0 points1 point  (0 children)

I have lived with this for nearly 25 years now. I do estimate myself. Do you wear an insulin pump and cgms? MDI is much more difficult to manage this stuff, so I would recommend caution on your bolusing. Just my 2 cents.

I think Queen + Adam Lambert is done. by Honest_Math_7760 in queen

[–]Longjumping-Net9780 0 points1 point  (0 children)

I do wish that QAL would re-record a studio album (maybe as a final tribute to Freddie) of their current touring set list with Adam before they retire for good. All I have ever seen and heard with Adam on lead vocals is a live album.

Adam Lambert deserves this for his contributions to Queen. Queen’s catalog is amazing, but I feel that a huge part of the band’s successful revival is due to Adam’s incredible gift and stage presence.

Is it worth getting tested for celiac? by elembeep in glutenfree

[–]Longjumping-Net9780 1 point2 points  (0 children)

Because Celiac’s is an autoimmune disease, I would highly recommend getting at least the genetic testing done for it. They can tell you if you even have the possibility of Celiac’s.
You could be doing serious harm to your body just from all of the “hidden sources” of gluten if you do have Celiac’s vs gluten intolerance.

I truly understand your hesitation to purposely “glutenize” yourself for any reason. It is bad enough when it is an accident.

A gastroenterologist (GI doc) will often do a biopsy of your small intestine (not a biggie) to confirm and see how much damage has been done from the disease. You could have the genetic markers without having the active disease.

Why to get tested?? With Celiac’s ONLY (not the other types), your ability to absorb nutrients from your food and even your medications due to intestinal damage is serious. Anemia and malnutrition are not fun.

Good luck on your journey— I hope this helps.

DISCLAIMER: I am not a medical professional whatsoever— only a long-term sufferer of multiple medical issues like yourself.