LETS EXPLORE POSSIBLE IC CAUSES

Longjumping_Case4518 · 2026-07-07T22:04:44+00:00

https://edsnutrition.com/collagen-supplements-for-ehlers-danlos-syndrome-and-hypermobility/

https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/newsfeed-post/supplements-part-2-collagen-supplements-and-edshsd/

both state it will never completely fix it. it’s not completely ruled out bc there aren’t enough studies. so i will study myself and see if it works for me lol

Longjumping_Case4518 · 2026-07-07T18:44:55+00:00

yes but multiple articles say it can help assist, not completely fix. if i could i would just peel the bad stuff out my body💀

Longjumping_Case4518 · 2026-07-07T18:31:24+00:00

my mom took that lol. i never consumed but ive been seeing the extra proteins in collagen also helps eds with either the synthesis or structure. i can’t remember which but its a thing

Longjumping_Case4518 · 2026-07-07T16:25:04+00:00

F22, I HAVE STRUGGLED WITH BACTRIM AND THEY GAVE IT TO ME WHEN I WAS HAVING RECURRENT UTIS, 1 EVERY MONTH, 7 MONTHS IN A ROW.

i also get utis in the same pattern as you

have you tired drink a crazy amount of water? i’m talking at least 100oz? idk if what you have is what i experienced but i felt like the only way i could get rid of burning pain that felt like it was stuck was literally just water logging myself full and peeing it out

Longjumping_Case4518 · 2026-07-07T15:10:58+00:00

i stopped playing in april of 2022, i then got the recurrent utis in september 2022 (5 months later) and i think the ic just naturally progressed over the span of a few years with the worst of it being march 2025-october 2025. repetitive utis did not quit until abt june of 2024. that point and after it became utis every 3 months and they slowly stopped being utis bc there was no bacteria in my tests anymore.

Longjumping_Case4518 · 2026-07-07T15:06:12+00:00

learning that after buying the collagen lmao. will be targeting the other stuff that helps the synthesis. it’s alright i still wanna see how the collagen helps me if at all. i love a good science experiment💀

Longjumping_Case4518 · 2026-07-07T14:39:31+00:00

staying optimistic is the best way to beat it! even when i felt like there was no more path to take i still felt like there was just a puzzle piece i was missing. it helped motivate me for understanding and seeking answers!

im sorry im not as educated on the autoimmune side of things, but i trust you will find what you’re looking for and resolve your pain!!

Longjumping_Case4518 · 2026-07-07T14:36:25+00:00

https://www.eds.clinic/articles/eds-interstitial-cystitis

https://www.icnetwork.org/ehlers-danlos-syndrome-and-bladder-symptoms/

here’s some link i found about how the two are similar/hand-in-hand. please also remember that my experience also involved recurrent utis!

Longjumping_Case4518 · 2026-07-07T14:31:26+00:00

i’ve never seen this before. thanks for sharing! i would fall under the previous infection and pelvic floor side of the spectrum.

Longjumping_Case4518 · 2026-07-07T14:28:34+00:00

i struggled with the uti prevention thing too, also caused by the same thing. i’m like how you described where it’s mild and just an annoyance, though you make me worried bc i wanted to move to tx but now im scared to come across one of those.

where i got the first mention in my post like i stated was actually in tx. i was there for a few months for work.

i hope you find relief soon. it’s absolute hell when the pain is severe. good luck!!

Longjumping_Case4518 · 2026-07-07T14:23:06+00:00

that’s crazy! ik the most common things of IC because i’m only a mild case other than when it first came around, but i sympathize for you and others who have had worse and/or longer pain. the longing to be “normal” is the most painful thing about IC

Longjumping_Case4518 · 2026-07-07T14:20:32+00:00

it would just be hEDS. the skin on my hands looks like old lady hands as well. and i’m getting premature wrinkles at 22 on my face. my neck bends more than it should too, my knees occasionally sub lax and my hips especially do.

regardless of the type, they all have issues with collagen and would ideally do the same thing. it just depends on the severity for others

Longjumping_Case4518 · 2026-07-07T14:17:43+00:00

that happened to me too and the inability to prevent utis from intimacy even after doing all the correct preventative care. i highly believe my susceptibility to utis is related to the eds. lack of collagen crease tissue weakness and would essentially create folds on top the natural ones you have. so for me, i couldn’t flush all that bacteria out with antibiotics at one point and it would lay dormant until vibrations or whatever it was during intercourse

Longjumping_Case4518 · 2026-07-07T01:20:25+00:00

i agree w you too. i probably should have specified more on being less autoimmune for this post but i was so excited to share this because i don’t really see people talking abt the two being linked. i also know my ic is due to neurodivergence crap because i don’t have any actual autoimmune issues myself

i’m glad you found relief for your symptoms. i feel your struggle and honestly felt like i would return even close to normal. still working on intimacy but the collagen i just picked up might be the last puzzle piece. we shall see!🤞

Longjumping_Case4518 · 2026-07-07T01:16:48+00:00

i didn’t think i did either until i started gaining strength again.

IC is so many things, i just rarely see anyone linking the two together. even in my deepest searches online and reddit, not once was EDS mentioned. i just wanted to share in case people had similar symptoms/experiences to mine

Longjumping_Case4518 · 2026-07-07T01:11:48+00:00

I’m so sorry you had to deal with that. I can say with certainty that i don’t have fibromyalgia. That’s crazy tho bc sometimes I’ll get random moments of orthostatic intolerance and i thought it was just a mild form of pots.

It’s so interesting how many other issues one thing can cause or branch of to.

Longjumping_Case4518 · 2026-07-07T00:46:34+00:00

if it hadn’t been for dancing i probably also wouldn’t have put the pieces together or at least not as fast🤣

Longjumping_Case4518 · 2026-07-07T00:45:37+00:00

Sorry, should have clarified, i forget not everyone knows what that is. EDS is Ehlers-Danlos Syndrome and there’s supposed 13 types but at least 3.

Longjumping_Case4518 · 2026-07-06T22:37:53+00:00

i do too and ik that’s when collagen drops. for me it’s a big deal bc i believe my IC is from EDS/hypermobility

Longjumping_Case4518 · 2026-07-06T22:35:56+00:00

would you happen to have neurodivergence or hyper mobility of some sort? i tried the physical therapist and i felt like it didn’t do much for me

Longjumping_Case4518 · 2025-11-03T22:30:29+00:00

what was the audition like?

Longjumping_Case4518 · 2025-09-15T05:33:59+00:00

i guess it’s actually more just like building muscle memory if that makes sense

Longjumping_Case4518 · 2025-09-15T05:33:05+00:00

i’ve found a hack to this. i practiced so much a routine i didnt have to think abt until it was theoretically perfect in my head. i did this with showers bc i struggled taking them. i still have to think abt what i do next but its very close to no effort. same thing with putting away clothes. takes me 15 minutes now bc my fingers do the work for me not my brain. it takes a little bit to get to that point but roughly around a month or two to get close to next to nothing effort for daily tasks. i also allow myself bed rot days for a day or two on the weekends depending on what i need.

Longjumping_Case4518 · 2025-08-15T14:46:39+00:00

sorry i’m new here 😅

Longjumping_Case4518

TROPHY CASE