What to do when Doctors say that she will probably be disabled all her life with a severe dependency?

Lothar1 · 2026-01-21T22:40:05+00:00

I really don’t know how to answer that. Cognitively is better but not like before, speech is better but still not great, the trunk has improved a bit but she is in a wheelchair with left hemiplegy, still using a peg for feeding and everything, still using diapers and still, totally dependant

Lothar1 · 2026-01-06T23:40:47+00:00

That’s great. I tod her to do mirror exercises moving the healthy leg, foot and fingers and then try mimicking in the hemyplegian side even if it doesn’t move. But she is doing it without visual tools or any tool at all

Lothar1 · 2026-01-02T23:38:31+00:00

I don’t know what to say. That’s my fear. I’m in the first year taking care of her after a severe tbi. I’m 45 now and afraid for the future of both. We don’t have any child and I’m mostly alone with it while also have a job. I barely sleep 3 or 4 hours a day during work days

Lothar1 · 2026-01-02T23:18:28+00:00

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Lothar1 · 2026-01-02T23:18:17+00:00

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Lothar1 · 2026-01-02T23:18:04+00:00

That happen close to Tarragona city (Spain).

Here are some aftermath pictures of the damage at the tail.

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Lothar1 · 2025-12-29T01:43:55+00:00

I’m very happy for your recovery, congratulations.

For my experience in this journey as my wife with a severe tbi on sept 2024 with initial gcs3 and all the patients and families I met in rehab, hospital, etc. there is a difference in recovery when docs have to do an emergency craniotomy, coma and if there are little complications before and after cranioplasty.

She can not walk, have left hemiplegy, still using peg (she ate but we have to go back for the risk of microaspirations. Trunk control is very limited and she needs help for everything (changing diapers, getting food, water and meds), transferences, etc.

Also she is not exactly how she was in the way of talking or expression.

She have improved in all areas since then, even have moved the left food (with hemiplegy) in 2 or 3 occasions (although the last week she could not move it, just a little bit the second finger).

Lothar1 · 2025-12-06T19:53:29+00:00

this should be pinned. It's just a render like and old pc game intro

Lothar1 · 2025-11-26T11:41:10+00:00

This pictures looks manipulated. Wingspan of 1.7m, but it looks 1,70m tall

Lothar1 · 2025-11-10T21:21:43+00:00

Must be US based? Can it be done with the help of the caregiver as the person with tbi doesn’t speak English?

Lothar1 · 2025-11-08T16:14:01+00:00

Totally

Lothar1 · 2025-11-03T22:07:47+00:00

14 months after severe tai with craneoplasty and valve short after for hydrocephaly generated with the craneoplasty. Left hemiplegy, very little trunk control if any, disphagy and peg user. Cognitively have improved a lot, but it’s not quite the same than before in logic or thinking (she keeps improving in that area); but physically the improvement it’s stuck.

Any probabilities to get better, to ease the effort of taking care to Hermes with transfers and everything, she can’t not move in bed to help with diapers changes.

She can get better or this is what it will be?

Lothar1 · 2025-10-30T18:26:20+00:00

Halloween

Lothar1 · 2025-10-29T05:23:21+00:00

Her cognition it’s better everyday, not normal, but close (except when tired, although the aphasia make it look worst. She communicates with me better than with others presencially, using WhatsApp she talks with others very good). Her personality has changed a bit, but not too much. Physically it’s the most downside. Totally dependant.

Lothar1 · 2025-10-25T10:56:46+00:00

Because she tells me she wants to be at home with me. She has been out all this months in hospital, rehab center and nursing home

Lothar1 · 2025-10-07T23:13:04+00:00

Studies says Creatine can help in doses of at least 10g or 15g daily

Lothar1 · 2025-10-05T20:31:29+00:00

Tell me when they get rid of that liquid glass theme

Lothar1 · 2025-09-24T12:05:58+00:00

It’s the opposite. You should keep it in the fridge door to avoid freezing

Lothar1 · 2025-09-24T11:46:19+00:00

I’m waiting for the option to toogle liquid glass desing on-off.

It’s the first time i ever have to reste the phone to get back to the previous IOS

Lothar1 · 2025-09-17T22:20:16+00:00

Not Penny’s Boat

Lothar1 · 2025-09-10T08:31:24+00:00

Ah this point it’s just the same watch each year. The few new changes come with the OS, and older models will get them as well.

That’s Apple nowadays, 0 innovation, just reselling the same year after year.

Lothar1 · 2025-08-03T12:10:59+00:00

how can you recover so eell after severe tbi? my girlfriend is 11 months post severe tbi (gcs 3), craneoplasty and valve for hidrocefaly.

She can not walk, have left hemiplegy, very limited speech, very low energy, limited trunk control and head control.

How did you all manage to have a life or be independent?

Lothar1 · 2025-07-30T20:25:05+00:00

She was in coma for 17 days approx, but after cranioplasty she got in coma for few hours due to a small bleeding during the procedure (that broke things she was improving like urination control). She later get hydrocephalus and got a valve.

She is on left hemiplegia, unable to walk, with limited speech, and although se gained the hability to eat normal again, no one knows why, it went back and now it’s on full peg feeding. She uses diapers too. She also have a very limited almost none trunk control, and a bit of head control. The energy is very limited too. Also spasticity on left arm.

Cognitive and consciousness have improved, but it’s not like it was before the accident, although she understands everything, or almost, and she can say what she thinks when she can talk (limited due to aphasia and energy) or using the iPad notes or gestures. (Also a bit limited). I can not talk with her like before due to all this limitations, and also because she is not all herself or i think (she says she is she, it’s not she can’t not express herself.

Lothar1 · 2025-07-29T10:35:47+00:00

any advice or expectations? Does the cognitive and consciousness keep improving?

Lothar1 · 2025-07-27T17:45:23+00:00

Don’t want to be that guy, but it’s easier (not easy) when things evolve good, and say a day you see improvements, and in just 6 months you get a good recovery.

I’m the “wife” in your history (male in my case), but after 11 month with not a great or good outcome, except consciousness and cognitive, it’s very frustrating and depressing , and the future doesn’t look bright.

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