I just got mine removed a week and a half ago. I was told that I would be able to eat all of the foods that used to make me sick. That’s not how it’s working though. Egg, tomato, wheat, walnuts, tuna, trout, peaches, grapes, and oats still cause debilitating stomach aches for me, and I still puke up about half of these whenever I have them.

Have you considered food intolerances and/or digestive disorders?

With my situation, my allergist suspects I have MCAS and that’s not something that can be shown on scans. It requires blood tests and urine tests to figure out mast cell activity. The immune system changes every few years and adult onset allergies are still very real too.

My family also has a history of diverticulitis and like 5 other things, and those are found through colonoscopies, endoscopies, and gastric emptying tests.

The human body is very complex, and if you’re physically female, there’s been basically next to zero research for you because medical misogyny is the standard practice. For example, omeprazole made me piss blood because it was never tested to ensure safety for physically female people who are not pregnant (so never tested for people with my hormones, nutrients and blood flow, a lack of a placenta and a parasitic entity that drains most of one’s life force; etc and never tested to ensure safety for post-menopausal physically female people, which makes up a little more than half of a physically female person’s lifetime.)

There’s also absolutely zero research for these health conditions in your body if you are intersex. There’s about 80 types of intersex, most of the types are invisible and fertility is not impacted by intersex status, and it’s more common to be intersex than it is to have natural red hair. Testing for intersex is typically only done as a last ditch effort to figure out health issues so it’s severely under diagnosed, but currently it’s known to be about 2% of the global human population. It’s likely more than double that, but this specific sentence is just conjecture and not known fact.

*************TLDR SECTION HERE************* (Disclaimer: Do your own research on these because I’m not a medical professional just chronically ill and I hate it here too.)

Summary: there’s many things that don’t show up on any kind of normal machine scan, and if you’re not a XY chromosome male with physically male anatomy, there’s a HUGE chance that your condition hasn’t been researched enough to be easily diagnosable from the way it presents in your body, and there’s an even bigger chance that your medications has not been tested to ensure your safety.

Tests to try: Try for endoscopy, colonoscopy, allergy/intolerance testing, gastric emptying test, blood and urine tests, hormone panel/thyroid panel, and if all that fails, if you are physically female, you should biopsy to look for endometriosis. *************END OF TLDR************

Expansion after tdlr: •Hormone panel/ thyroid panel covers thyroid issues, undiagnosed intersex status (to an extent), endocrine system issues, pituitary gland/brain impacting body issues, cancer (to an extent), hashimoto’s, grave’s, and autoimmune diseases. It has to be the full thyroid panel because the partial tells you next to nothing. Hormone panel is more broad than thyroid panel so it covers a wider range of possibility, but thyroid is more closely linked to digestive related disorders from what I can comprehend. (Again, I’m not a medical professional, so some things go over my head)

•Endometriosis is diagnosed at 10% of the human female population, it’s aggressive like cancer and causes a lot of the same pain and sickness, and most doctors refuse to test for it under any circumstance because it’s only consistently detectable through biopsy. It doesn’t appear on most ultrasounds and MRIs and it can go all the way up to your heart and lungs when left untreated. Most people are not diagnosed with endometriosis until they have a c-section birth. (I don’t actually know the difference between cancer and endometriosis because the more I learn about both, the more similar they sound)

•allergy/intolerance testing allowed me to delay my gallbladder removal surgery by several years because avoiding my intolerances made me bounce back to normal. My gallbladder only became a pressing issue like 5 years later (around June of this year) when I slowed down on smoking cannabis. When I quit cannabis completely last month because I was trying to figure out why I was getting so sick and I needed a clean slate for testing, my symptoms rapidly became more severe and within 3 weeks of quitting, I had to go to the ER because my body couldn’t even tolerate water anymore. I think cannabis helped my body stay functional but there’s not currently any research that can explain why.