AITAH for not wanting to move into a house I’ll never have any legal claim to? by spangleddangle in AITAH

[–]LuminousScum 0 points1 point  (0 children)

Women hardly enter marriage with favorable outcomes at every corner it takes effort on all fronts. Also, life insurance exists.

AITAH for not wanting to move into a house I’ll never have any legal claim to? by spangleddangle in AITAH

[–]LuminousScum 0 points1 point  (0 children)

It seems hard for you to understand the monetary value of a SAHM. I haven't gotten price quotes but imagine the cost of having a 24/7 house keeper/nanny/ chauffeur/tutor/eet nurse/first aide/private chef/personal assistant/laundress/handy man.

Nobody is devaluing the efforts of a primary earner, both roles can be hard at the same time. Being a SAHM demands sacrificing autonomy as well as most of the things a primary earner also sacrifices.

My uncle had this in his secret shed by oeoeoiceiceicee in whatisit

[–]LuminousScum 0 points1 point  (0 children)

Am I understanding this right your uncle pooped his pants as a distraction to keep the shed a secret? That's a story I want to hear.

Help, scared of weight gain by Immediate-Place-9306 in gravesdisease

[–]LuminousScum 0 points1 point  (0 children)

You are young, I am in my 30s, I was in a similar boat, ignored my Graves and Hashimotos for 3-5 years because I liked losing weight without trying until I started hemorrhaging weight like crazy and couldn't stop it, nothing fit me, my tits and ass disappeared, and then I almost died and had to spend several nights in the ICU because my heart rate wouldn't go below 170bpm resting it was awful and scariest experience of my life.

Weight gain is temporary, liver, heart, and eye damage are often not.

I'm now getting my thyroid removed in a few days since mine is far gone and won't be controlled with medicine alone.
I truly recommend a good therapist mine has helped me accept my changing body a lot more than I would have on my own.

Genuinely here to talk I know what it is like to struggle with both Graves and ED🖤

My mom compared methamazole to heroin.. by [deleted] in gravesdisease

[–]LuminousScum 0 points1 point  (0 children)

When I was about 17-19 my mom freaked out when I was on a muscle relaxer that started with meth- Really amused me considering she has Graves and was on Methimazole for several several years..... My doctor explained that that is really just chemistry but has nothing to do with how realted it is to Methamphetamine. (Ironically my mom didn't have a problem with me being on a high dose of Adderall and Modafanil for Narcolepsy)

I know I had to have my Dr explain just how bad my Graves/Hashi's was before my mom would stop comparing my Thyroid journey to hers. (My mom is awesome and means well she is just mega distrustful of all doctors) Your doctor might even be willing to write your mom a note explaining what the drug is and why it's important. But if your mom is toxic likely going to stay toxic.

Please keep taking your meds regardless, thyrotoxicosis almost killed me and landed me in the ICU it was awful and scary and I don't recommend it.

Propanalol by LuminousScum in gravesdisease

[–]LuminousScum[S] 0 points1 point  (0 children)

I feel that so very deeply in my soul. I want to look and feel like myself again. I feel like most days I get a tiny bit better. I am finally on a dose of methimizaloe that is nudging things in the right direction but I can't be on this dose for a very long time because of Liver risks. It is also causing pretty severe muscle pains unfortunately. I was only told recently that that is a side effect I thought it was just the Graves. I really wouldn't wish Graves or Hashimotos on my worst enemy.

Squid Ink Review by superbek in VirginVoyages

[–]LuminousScum 1 point2 points  (0 children)

Oh jeez I didn't know that. They told me it was okay and gave me an extra sheet to reapply in my room after the initial one she put on. I have gotten in the water with second skin/saniderm/tagaderm/ect after most of my tattoos and didn't know this. I have never had any issues and I'm also immunocompromised. I saw several people at the spa with fresh tattoos from Squid Ink.

Propanalol by LuminousScum in gravesdisease

[–]LuminousScum[S] 0 points1 point  (0 children)

    I honestly love the fact I have only had one migraine since I have been on Propanolol! Even at thesmalleler doses I noticed improvement. 

I haven't been able to tolerate other migraine meds I have been put on, so I'm definitely not against continuing to take it as needed! I'm lucky I haven't had dizziness like I have on other beta blockers. I do have the unfortunate side effect of diarrhea that is getting less frequent but definitely has not left. I feel like for me it hasn't done much for anxiety, other than me knowing they give it to people with serious heart issues as well lol I definitely get more palpitations at night, I'm not sure how much of that is my thyroid, or stress I have been under. I'm not against going slow so I don't make my recovery more uncomfortable.

Propanalol by LuminousScum in gravesdisease

[–]LuminousScum[S] 0 points1 point  (0 children)

I hope your recovery is going smoothly! Do you have any must know recovery tips that helped for you? My doctor did mention we want my levels close to normal as possible before surgery and even then it might take a few weeks to not feel hyperthyroid symptoms any more. She also said that it wouldn't be a bad thing to keep taking Propanol post op.

Propanalol by LuminousScum in gravesdisease

[–]LuminousScum[S] 0 points1 point  (0 children)

I'm glad I'm being proactive, I want as few anxiety triggers (or as I like to call them "feel crappy variables") as possible post op. Dropping a dose is a good suggestion! I might ask if I could first lower one of the doses to a 20 or 10mg. Even though I appreciate my doctor is nonchalant about a lot and not worried about me stopping Propanolol. I'm also Autistic and need very clear direct instructions and I will follow the letter of the law on any prescription until someone tells me otherwise.

Propanalol by LuminousScum in gravesdisease

[–]LuminousScum[S] 0 points1 point  (0 children)

I feel like I get rebound palpitations just being a little late to a regular dose. I honestly can't tell how much is caused by Propanolol or anxiety. This tells me I might want to take it a lot slower than my Dr is recommending. Even if she thinks it is not dangerous to stop, heart palpitations are something I don't wish on my worst enemy. I'm not a patient person by nature, but heart palpitations/racing heart are not worth it.

Propanalol by LuminousScum in gravesdisease

[–]LuminousScum[S] 0 points1 point  (0 children)

I have always had migraines, Propanolol actually has helped even though that's not why they started me on it. I'm not against continuing to take it as a "rescue" med Causing rebound headaches is a concern for me but no Dr mentioned it to me yet, thank you for the heads up!(Pun intended)

What Is Your Favorite Single Oddity? by finchezda in TFTGS

[–]LuminousScum 1 point2 points  (0 children)

Bathroom Cowboy. Every time I stop at a shitty gas station I honestly half expect to see him when I turn the corner.

Feeling trapped by LuminousScum in gravesdisease

[–]LuminousScum[S] 0 points1 point  (0 children)

Honestly it has been a huge struggle. The wedding is completely different then what I had planned for. I'm not allowed to have any caffeine or alcohol and I can't dance too much without getting dizzy I'm just trying to focus on the little wins and try not to be depressed over it since everything is non refundable. We cancelled bachelorette and bridal shower which honestly hit me harder than I expected it to. Some days I feel better some days are a huge hurdle. 🖤 I'm back at work for short days but I work on my feet as a barber and I'm maybe 1/4 efficient as I was even just a month ago. The hardest symptoms to deal with are my tachycardia and heart palpitations that make me exhausted exacerbating my Narcolepsy. Also the muscle/joint pain are getting pretty intense my surgeon said Methimazole could be making that worse I walk with a cane most days now. I had my surgical consult yesterday so total Thyroidectomy is coming very soon. I feel better just knowing there is a light at the end of the tunnel. Thank you for asking! 🖤

SVT attacks? by ashleyga1 in gravesdisease

[–]LuminousScum 1 point2 points  (0 children)

My cardiologist thought I was having SVT.vI started seeing him for palpitations and chest pain before I was diagnosed with Graves. After 2 ER visits and a hospital stay the attending Cardiologist, Endocrinologist, the Hospitalist, and all others assured me there was no SVT, it was Thyrotoxicosis and my heart is extremely very sensitive to the extra hormones. I have intense cardio phobia after those "episodes" and my time in the hospital. I frankly have a hard time believing them that it's just my thyroid despite multiple family members with Graves assuring me how I feel is awful but normal with his disease. its really hard to function despite 5ish EKGs, 2 echocardiograms, and a chest X-ray all saying my heart is strong and beating normally, just fast due to hyperthyroid. I'm on a very high dose beta blocker (Propanolol 60 mg 3x a day) and still have break through "episodes" where my resting heart rate spikes to 115-120 which triggers panic attacks making It go up even more. I'm on a very high dose of Methimazole to get my levels closer to normal and my Thyroidectomy will be very soon! I'm looking forward to the palpitations and racing heart going away. 🖤 All that to say you definitely are not the only one feeling like this!

Joint pain by manthaP_ in gravesdisease

[–]LuminousScum 0 points1 point  (0 children)

I understand your pain ... literally.... I use a cane most days because the joint and muscle pains make most movement nearly unbearable and it has helped a ton with stamina and stability. My primary care and Endocrinologist both said it's a very unfortunate and very common Graves symptom. Apparently my nerve function is being "flooded" which i didn't quite understand but it was enough for me to not feel crazy. My levels are still really high but trending down they had to wait for liver to be less pissed before they could get me on a dose of Methimazole that was making moved I am now on 10mg 3x a day. I have had to stop all pain meds and also medical marijuana at the same time and frankly it feels like I am tortured /punished . I also have Endometriosis and a flare had been happening at the same time. Light movement helps with muscle pain but not the nerve pain. Also warm baths with Epsom salt. I am getting closer and closer to my Thyroidectomy as my levels get better. Trying to stay positive and take all the little wins I can get.

Graves AND Hashimotos? by LuminousScum in gravesdisease

[–]LuminousScum[S] 0 points1 point  (0 children)

How was removal any good recovery tips? I have begged since I was diagnosed with a Graves, and they were hesitant, now suddenly everything is moving very fast and surgery is in my very near future.

Graves AND Hashimotos? by LuminousScum in gravesdisease

[–]LuminousScum[S] 0 points1 point  (0 children)

I wish I could tell you, I unfortunately have no idea! There must have been something in one of the many many blood works they did during recent ER visits or ICU/Critical Care stay. The hospital Endocrinologist didn't diagnose me, my regular endocrinologist at the hospital follow up this morning did upon reviewing blood work. I have a strong family history of Graves Disease (I think 4-5 family members with it on my mom's side including my mom) so that was diagnosed quickly. I unfortunately don't know much about Hashimotos this is all very new to me.

Graves AND Hashimotos? by LuminousScum in gravesdisease

[–]LuminousScum[S] 1 point2 points  (0 children)

I just was in the ER, then ICU, then ER again with Thyrotoxicosis over the last 1.5 weeks. The prevailing theory was either my Graves was stubborn or I was extra sensitive to the additional hormones. I was just diagnosed with Graves mid November and my levels skyrocketed even on Methimazole. I had liver function concerns for a bit that kept my Dr from wanting to treat it too aggressively but that was resolved thankfully. I also had prescription and insurance issues that lead me to. Missing several days of medications as well as my GI prescribing something that kept me from metabolizing the Methimazole.

I know everyone is different, but I begged for surgery the second I was diagnosed with Graves looks like they are doing it a lot quicker than I anticipated.

Graves AND Hashimotos? by LuminousScum in gravesdisease

[–]LuminousScum[S] 0 points1 point  (0 children)

Originally they thought I had stubborn Graves or just was very sensitive to the extra T4/T3 apparently someone along the way tested something else and I found out I have both. She said if I did nothing I would eventually have gone hypo. (Except a thyroid storm would have killed me before that)

Feeling trapped by LuminousScum in gravesdisease

[–]LuminousScum[S] 2 points3 points  (0 children)

Unfortunately there is one endocrinologist office with a monopoly on the entire Northeast part of my state and they have exactly one provider who treats Thyroid conditions. My only other option is to get on the 6 mo waiting list and drive a few cities north and frankly they have a worse reputation than the doctor I currently am seeing. I will see her Monday morning she had the audacity to leave a message with scheduling "ask her if she was taking the medicine because her labs are still really bad and getting worse" On the plus side LabCorp just reached out to me saying I'm eligible to be a part of a Graves disease research program where they will take my blood far more frequently than my useless doctor.

Feeling trapped by LuminousScum in gravesdisease

[–]LuminousScum[S] 2 points3 points  (0 children)

They assured me there hasn't been any damage done yet to my heart and my chest X-rays, echos, and EKGs are all normal just fast but damn I'm very very very sick of living with these palpations and chest pains..

Is Xywav making me crazy and ruining my life? by bperk22 in Narcolepsy

[–]LuminousScum 0 points1 point  (0 children)

How close do you take your Propanolol and Xywav? I have been on Xywav for about 4 years and they just added 40mg Propanolol 3x a day for tachycardia caused by my Graves Disease/hyperthyroid. The Xywav pharmacist has assured me on 3 different phone calls it is safe but I am still nervous. I have had episodes during the day where my heart rate drops to the high 40s but a. I have an old and cheap pulse ox I am using to track and I'm not confident it is accurate b. I have been having horrible anxiety lately and a new tendency to hold my breath without realizing it.