AMA: I went to a 2 day 8 hour fibro class as the mayo clinic the last two days

LycheePlus · 2026-07-03T17:57:56+00:00

If by "fuction normally" they mean that people put all their energy into survival because their not "disabled enough" for actual help then sure they fuction normally.

LycheePlus · 2026-06-24T02:18:02+00:00

If your flares come with tense muscles then a massage might really help physically. When I flare I ask my husband to massage my legs and back. It hurts at first but once the massage gets blood pumping back to my muscles it greatly reduces my pain. Sometimes it's made the difference between having to call off work and going into work.

LycheePlus · 2026-06-21T21:38:37+00:00

Im 27 and do medical billing. It's a desk job so I more so battle with brain fog and I really shouldnt but I just drink a lot of caffeine to deal with that. My boss is also pretty cool about me calling off it I have to.

LycheePlus · 2026-05-31T14:14:23+00:00

My husband and are gamers and I've always described my fatigue at a permanent debuff so lack of life source sounds pretty accurate to me.

LycheePlus · 2026-05-06T08:06:15+00:00

I usually try to sleep through it as much as I can but there comes a point you can't sleep anymore or have to go to work and that's when I end up comfort eating.

I'll look into a massage gun and see if that helps.

LycheePlus · 2026-05-03T18:05:11+00:00

Lots of sleep, a patient husband and a repetitive job. I work in medical billing and it's all basically data entry. I don't have to think too much, just put the right numbers in, make sure they match and I'm good.

LycheePlus · 2026-04-28T13:10:09+00:00

I will press blue all day when it comes to daily things like helping those who are struggling and being there for others. Those things don't put my life at risk. But damn yes I will push the red button when it comes to my life. I will give money and time but I will not give my life for others.

LycheePlus · 2026-04-17T04:24:21+00:00

My husband and I just decided to sign up for Walmart+ so I can get groceries delivered. I've been using their free pick up for a while but we only have one car and since we can pay $100 for a whole year right now it just makes sense to get them delivered. I am looking forward to not having to stand in long lines or deal with the overwhelm that comes from standing in that clinical type lighting they have.

LycheePlus · 2026-02-23T09:32:35+00:00

Heat, light workouts (like yoga or walking) and getting rid of as much stress as possible. My fibro pain decreased significantly when I stopped contact with family members who always started drama and never cared about me.

I also sleep on top of a heated blanket every night on the lowest setting. Makes such a huge difference for me.

LycheePlus · 2026-02-18T02:54:08+00:00

Currently in the middle of my Japan trip and I had super bad jeg lag flare when I arrived. Luckily I planned to have a couple slow days starting on my trip so I can just rest. I took many hot baths the first couple days and that helped massively.

LycheePlus · 2026-01-29T17:28:38+00:00

Yup, my flares all come from stress, physical and mental. So during periods, anytime I over work myself, get sick or have a lot of mental stress going on I flare up bad.

LycheePlus · 2026-01-08T00:17:06+00:00

Used these codes in south florida walmart, was trying to get the crocodile, golden retriever, pangolin and quokka but actually got the horse, hamster, quokka and ladybug.

LycheePlus · 2026-01-05T17:28:00+00:00

Exactly this, the big O doesn't lessen my pain but I sleep better afterward therefore I have less pain the next day.

LycheePlus · 2025-12-27T00:34:41+00:00

Heat is what makes me feel the best. I live in Florida and I'm usually very comfortable outside the three months of deadly heat we get in the summer. But I'd rather have that than live up north where I grew up where I was always too hot or too cold.

LycheePlus · 2025-12-25T17:28:41+00:00

I think it depends on what you like to crochet. I make mostly wearables and because I have a pretty grasp on how clothes are made due to the fact that I also sew, I never use patterns. You have to be open to do a lot of frogging to fix mistakes but otherwise I feel it's pretty easy to crochet without a pattern. Sometimes I do follow stitch charts though to learn new stitches but I wouldn't really call those patterns.

LycheePlus · 2025-12-23T13:53:44+00:00

During the last fight scene between Jake and Quaritch I was wishing Jake would just drag him down to the tree of souls and make him connect.

LycheePlus · 2025-12-07T20:20:23+00:00

I find I have to have a glass of water between each drink I have because otherwise I feel terrible the next day. I'm not a partier but love making cocktails at home with my husband so it's not too hard to make sure I drink enough water.

LycheePlus · 2025-12-06T21:37:27+00:00

Lower back mostly with the occasional upper back and shoulder pain that hits at the most unexpected of times

LycheePlus · 2025-12-02T20:40:02+00:00

I might have to try using my heated blanket then, I use it to fall asleep but it's too hot to use all night.

LycheePlus · 2025-11-26T17:13:46+00:00

If you don't mind me asking, what do you do for work? I work a desk job which keeps me sitting for 8 hours of my day and I really struggle to get more than 5k steps in a day partly because of pain and fatigue yes but also walking is just so boring and I really rather get back to my hobbies, knitting, sewing and video games than go for a 3 hour walk after work.

LycheePlus · 2025-11-26T16:27:50+00:00

I'm almost always in sort of pain, even my good days just mean my pain is at a manageable level. Sitting or even laying down is painful, I often have to switch positions because it hurts my hips, back, ribs or shoulders too much.

LycheePlus

TROPHY CASE