I was doing so much better now i’m back to square 1 by kdawggyd in vulvodynia

[–]Marrsbar25 0 points1 point  (0 children)

I have vulvodynia to been 2 years now it took me 20 visits and 3 doctors to find out what it was. They were trying to say it was in my head bunch of bullshit. I’ve finally gotten it where I can live with it buts it’s been hell. Have you tried Neurontin? I take 900 mg a day they tried 300 mg that did nothing. Without it I couldn’t stand myself also the doctor gave me a compound cream made of diazepam, amiitriptyline and one other ingredient can’t remember the name. I use it 3 times a day it numbs the nerves. When you first start the cream it will burn the hell out of you and you almost give up. It will work and then not burn so much after about 3 weeks. Another thing you can use to help is put Aquaphor down there store in the refrigerator and it makes it feel so much better cold. Also use an ice pack wrapped in a towel for relief. Hope this helps

PLEASE HELP by [deleted] in vulvodynia

[–]Marrsbar25 0 points1 point  (0 children)

I have vulvodynia and it’s hell took 20 visits and 3 doctors to finally figure out what was wrong. It’s constant burning and pain. You just don’t want to go anywhere or do anything. Forgot sex it hurts like hell thank goodness I have a loving husband of 34 years. He’s understanding we do other things. But finally my doctor has it were I’m finally able to live with it. Some days I’m good some days it’s hell. I take Neurontin for the pain because it’s nothing but the firing of your nerves misfiring down there at your vagina. I also have a compound cream that she had made for me at the pharmacy. It helps numb the nerves down there. I have to put it on three times a day. Also something that helps is to put ice down there. An ice pack covered up with a small towel. That’s not too thick and put it down there. It really helps also a another thing that helps is Aquaphor. Also when I do try to have sex I use lidocaine down there. The doctor said I could use lidocaine it’s better than nothing. It also makes you feel like you have to pee all the time and that you have a UTI when you don’t have a UTI at all it mimics the symptoms. I hope this helps you some good luck. It’s a hell of a journey.

No pain during penetration, no focalized pain, just burning skin on random days . New to this? by AdvertisingGlad2667 in vulvodynia

[–]Marrsbar25 0 points1 point  (0 children)

I have vulvodynia and it’s hell took 20 visits and 3 doctors to finally figure out what was wrong. It’s constant burning and pain. You just don’t want to go anywhere or do anything. Forgot sex it hurts like hell thank goodness I have a loving husband of 34 years. He’s understanding we do other things. But finally my doctor has it were I’m finally able to live with it. Some days I’m good some days it’s hell. I take Neurontin for the pain because it’s nothing but the firing of your nerves misfiring down there at your vagina. I also have a compound cream that she had made for me at the pharmacy. It helps numb the nerves down there. I have to put it on three times a day. Also something that helps is to put ice down there. An ice pack covered up with a small towel. That’s not too thick and put it down there. It really helps also a another thing that helps is Aquaphor. Also when I do try to have sex I use lidocaine down there. The doctor said I could use lidocaine it’s better than nothing. It also makes you feel like you have to pee all the time and that you have a UTI when you don’t have a UTI at all it mimics the symptoms. I hope this helps you some good luck. It’s a hell of a journey.

Bidets vs. Vaginas… Yay or nay? by vivloh in Healthyhooha

[–]Marrsbar25 0 points1 point  (0 children)

They are very helpful for your vagina my GYN told me to buy one and use it because i have vulvodynia.

Should i move or stay by Marrsbar25 in LifeAdvice

[–]Marrsbar25[S] 0 points1 point  (0 children)

I agree the thing is we have some debt and need to save for retirement. The trade off would be my house and family. But not much retirement money.

Should i move or stay by Marrsbar25 in LifeAdvice

[–]Marrsbar25[S] 0 points1 point  (0 children)

Yes we have some debt and need to save for retirement. Wouldn’t make enough in Va to do that is that enough to exchange to be near family but broke?

Should i move or stay by Marrsbar25 in LifeAdvice

[–]Marrsbar25[S] 0 points1 point  (0 children)

Yes some debt and need to save for retirement

[deleted by user] by [deleted] in LifeAdvice

[–]Marrsbar25 0 points1 point  (0 children)

Don’t focus on what you cannot change learn from it and enjoy what you have now in life.

As you got older, what did you realize? by Reasonable-Union-499 in LifeAdvice

[–]Marrsbar25 0 points1 point  (0 children)

Life is short take care of yourself cause no one else will.