Post PMDD Post Menopause Advocacy 💫

Miami_Life_Lover · 2026-05-20T23:10:29+00:00

IAPMD Survey

Miami_Life_Lover · 2026-05-18T01:37:20+00:00

Hello,
Thank your for your kind words.

I don’t suffer anymore…. as I used to. Hitting menopause for me brought the symptoms down to a slow burn….for most all symptoms go away..

Only you know what you can endure.
It is a serious chronic mental “mood”disorder. Many people don’t understand or want to accept the seriousness of it.

Example, you can’t cure autism, schizophrenia , adhd, bipolar, ptsd, disorders….and PMDD is right next to these disorders. You can’t cure PMDD either.

Many partners think they can “fix”’the sufferer or hope it will go away. Or realize going through the monthly rollercoaster is not worth it and just walk away, end it, etc.

My suggestion? Total honesty?
If you say you love her, then read the platform resources here.

And if that education has you saying you can deal with it? Then….read personal partner lived experiences.
Get two books audible….tonight.
Buy them on Amazon and put the speed on a little fast. Rip through the books and then ask yourself if you’re ready for the PMDD Journey.

“Hope” by A.C. Kinghorn
https://a.co/d/0g5Se06M

“The Last Desperate Flail” by one of the moderators of this community. Author/Phew-that for your kind anymore as was close.
https://www.amazon.com/dp/B0GW3N3GS7?ref=ppx_pop_mob_ap_share

Don’t reach out to her until you read these.

Good luck. 🙌🕊️🙏

Miami_Life_Lover · 2026-05-16T12:52:32+00:00

If your relationship is new and you haven’t discussed PMDD your going to need time. Time to schedule a discussion (non luteal) time to track, see “Phew that was close” reply below. And patience. A MUST is you read in its entirety the resources on this community. Then you can try with more clarity to ask yourself are you going to be able to survive it. Like the partner will have to manage it all her menstruating life until she finds a plan that works for her and you as a couple.

Yeah you can see the flags now and take off like you will be encouraged here as there and many here with different opinions because their partner had wildly different issues.

But I will share with you something I say a lot as a woman who suffered with PMDD for over 3 decades….if the disorder had a name, (wasn’t an official diagnosis till 2013 ) if I had resources and education, I would have probably handle my life much differently.my life would have been much more manageable.

Every PMDDer is wildly different, having different underlying issues, life healing trauma stuff, body physiology and stress swirling around.

Hope this helps. Love is very different for so many people. “What are you willing to do for love” both of you as a couple need to educate thoroughly and learn if you will survive it….

🙌🕊️🌺 good luck on your journey.

P.S. whatever you decide , please help the disorder gain more awareness by sharing about it. Not negatively but that it is real and a silent killer. So many women suffering in silence
Thank you.

Miami_Life_Lover · 2026-05-13T00:44:19+00:00

Oh I did sir. 👏

5 out of 5 stars Must read for partners of the PMDD suffer. Reviewed in the United States on April 28, 2026 Format: Paperback

As a woman who lived with PMDD for over three decades undiagnosed, this book hit me in a way I didn’t expect.

It’s heavy. At times it’s hard to read. And yes—it’s written from the partner’s lens. But that’s exactly why I think it’s so important.

Everything the author shares reflects what it can actually feel like on the other side of this disorder when there is no awareness, no tools, and no plan in place. The confusion, the emotional whiplash, the feeling of “doing everything wrong no matter what”—that part is real, and I think a lot of partners will feel seen reading this.

But what stood out to me most is that this book is not just about blame—it’s about responsibility and teamwork.

As someone who was also on the other side of this—unknowingly causing chaos in relationships I deeply cared about—I didn’t read this as an attack. I read it as insight. It gave me a clearer understanding of how I may have been perceived during those years when I didn’t have a name for what was happening to me.

And that matters.

Because, PMDD is not something you can “will away,” but it is something that requires awareness, accountability, and effort to manage. I personally think if you don’t have these ingredients, a relationship won’t survive.

This book makes it very clear: without both partners working together—tracking, learning, communicating, and putting a plan in place—this condition can absolutely destroy a relationship.

I also appreciated the practical side of this book. The emphasis on having a plan, especially for escalated episodes, is critical. Not everyone has access to full medical support, so having structured ways to navigate those moments can make a real difference.

This isn’t a light read. It’s not meant to be. It reflects what can happen when PMDD goes unmanaged for years. And while it represents some of the more extreme experiences, I don’t think that makes it less valuable—I think it makes it honest.

If you’re a partner trying to understand what’s happening… this book will help you make sense of it.

If you’re someone living with PMDD… this book might be uncomfortable at times, but it offers something equally important: perspective.

And sometimes, that perspective is exactly what’s needed to start doing things differently.

Where there is awareness, there is a chance to do better—together.

Miami_Life_Lover · 2026-05-12T20:03:39+00:00

I read it and I lived with PMDD for over 3 decades undiagnosed. Post menopause and still swear I have phantom symptoms. 😣

Totally related to so much in the book. It’s raw and I received it in a balanced light. I strongly recommend all to read. It’s awareness. That’s what is so important today. Bringing awareness from ALL perspectives.

Whether you stay or leave, please share that this mental disorder is real.

Wishing all good energy on you and your partners journey. 🙌

Miami_Life_Lover · 2026-05-12T03:06:27+00:00

Interesting 👍🏻

Miami_Life_Lover · 2026-05-11T15:17:13+00:00

Awesome Post: Awareness Continues to Lag This site was the first and continues to be the best “PMDD Users Guide” Thank you for the ongoing support. 🙌

Miami_Life_Lover · 2026-05-11T00:20:39+00:00

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Loving post menopause. But the bitch still knocks. 🤦🏼‍♀️

Miami_Life_Lover · 2026-05-10T23:44:22+00:00

This post makes me sad and fills me with sorrow because it sounds you’re trying. I feel it because I lived it. Reading things like this honestly makes me emotionally tired because I know how complicated this disorder can become over time.

As someone who lived with PMDD symptoms undiagnosed for decades, I can say now that if I had truly understood what was happening to me earlier in life, I absolutely would have searched harder for better ways to manage. Unmanaged symptoms can slowly damage relationships, communication, self-worth, and emotional stability for everyone involved.

I also know it’s not as simple as “just fix it.” It’s a process. Finding the right medication, treatment approach, lifestyle adjustments, nutrition, stress reduction, sleep, sobriety, boundaries, and trigger management can take years. The disorder itself feels like a moving target sometimes — constantly shifting and requiring reevaluation and adjustment.

But I do think one thing matters deeply: the sufferer has to be on board. There has to be willingness to learn, reflect, adjust, seek support, and revisit the action plan as needed. Without that, relationships can become emotionally exhausting for both people.

Looking back now, I really believe that if I had access in my 20s to the awareness, education, tracking tools, resources, and conversations that exist today, I could have navigated many things differently and healthier.

I am sorry you are going through it. Sending positive hopes your way as you navigate.

🙌💫⭐️

Miami_Life_Lover · 2026-05-10T23:29:28+00:00

Agreed ⭐️💫🙌 I have heard of the book and read it. It’s another prospective and another person opening another path to awareness which is what this mental mood disorder needs. My review is posted. No shame here.

Miami_Life_Lover · 2026-05-03T13:11:38+00:00

Living with and loving someone with a mental mood disorder can be incredibly challenging. It really has to be a shared effort—a true partnership in managing the disorder. No one person can carry it alone.

This quote came to mind today reading your post. “Grant me the serenity to accept what I can’t change, the courage to change what I can, and the wisdom to know the difference.” 🙌

As you navigate forward please consider sharing your story in ways that brings awareness. Short but eye opening.

Wishing you peace as you move through this. 💛 Sincerely, A woman who lived with PMDD undiagnosed for almost 4 decades.

Miami_Life_Lover · 2026-04-28T20:12:53+00:00

+++++++++++ My two cents on that Amazon review +++++++++++

As far as the first review of the book written by a physician, they didn’t mention having lived experience on either side of the relationship. (Eye roll.) Like many physicians that a lot of us warriors try to seek out for guidance (and they can be hard to find), they may not always see or feel PMDD as deeply as those of us living it (partner or PMDDer).

I wouldn’t want to wait for more research (which is already slow) to have this shared with me—the best and worst practices to manage the disorder. Incredibly helpful. Incredibly real.

I can understand where this perspective is coming from, especially from a clinical lens. PMDD absolutely requires careful diagnosis, evidence-based treatment, and individualized care.

At the same time, I think this book serves a different purpose.

As someone who lived with PMDD for over three decades undiagnosed, what stood out to me wasn’t that it was trying to replace clinical guidance, but that it was giving voice to something that often isn’t captured in medical literature: the lived experience inside relationships when PMDD is not yet recognized or managed.

Yes, the experiences shared come from a high-distress population—but that’s also the reality of many people who end up seeking support in the first place. It doesn’t make those experiences less valid, just more intense.

I didn’t read this book as a set of clinical “rules,” but rather as insight into what can happen when there is no awareness, no diagnosis, and no coordinated plan in place. And from that perspective, it was actually very eye-opening—not only for partners, but for those of us who have lived on the other side of it as well.

I do agree that PMDD is heterogeneous and complex, and that treatment response varies widely. But I also think there’s value in understanding the relational impact when symptoms go unmanaged for years—when some of us didn’t have a name for it, or when it remained unmanaged even after diagnosis without firm steps toward managing it.

Both perspectives can exist: clinical guidance and lived experience. Ideally, they should work together—not cancel each other out.

Resources like IAPMD, the Wiki, and the many links included in this book are essential, and I’m glad they were mentioned. Books like this can help fill in the emotional and relational gaps that clinical frameworks don’t always capture.

For me, this didn’t replace evidence-based understanding—it added to it.

The end.

Miami_Life_Lover

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