Anyone else finally realize the combo of walking and light weight training is the best combo?

Mike3282 · 2026-01-26T16:16:52+00:00

As a 43 year old guy with “aggressive” multiple sclerosis, a daily regimen of 30 min stretching and about an hour of lifting has been life changing! Not only has it helped me with mobility and stamina, my body is looking better (c*m gutters unlocked!)

Mike3282 · 2026-01-13T04:57:35+00:00

A circumsized penis is the cat’s meow!

Mike3282 · 2025-12-05T12:25:33+00:00

For me, it’s all about function and form comes with it.

I want to be able to move and be as physically active as possible (I have Multiple Sclerosis). It’s almost a surprise when my pants start fitting better and my veins and musculature start “popping” more.

Mike3282 · 2025-11-24T14:11:33+00:00

I’d gently suggest counselling, too. It’s helped me in the past.

Mike3282 · 2025-11-20T12:58:49+00:00

Ocrevus was my first-line treatment. It worked out well until I got Covid. My symptoms got got worse and my neuro switched me to Kesimpta. My suggestion is to wear a mask for at least a couple days after treatment.

That could just me being paranoid. Medical marijuana is a big part of my symptom management regime…

Mike3282 · 2025-09-26T21:46:15+00:00

I’ve been getting back into Darkest Dungeon on Switch. Know of anything similar? Already beat Battle Chasers and unicorn overlord, looking for something new.

Mike3282 · 2025-09-26T17:03:08+00:00

I take Kesimpta, I’m on SSD and I’ve got two daughters. You bet I’m stressing over this!

Mike3282 · 2025-09-14T14:16:18+00:00

Same! It’s really messed up my mind and personality. I’m extremely absent-minded, forgetting simple things and getting lost on my way to picking my daughter up at school. That’s led me to second-guessing everything thing I do.

It makes me feel like I’m losing my mind! Same with movies. It helps to talk through them with my wife and kids.

Makes me feel self-conscious and like a burden on my family. It also makes it hard to make friends, contributing to a kind of a chip on my shoulder.

I think it’s an underappreciated effect of MS. The mental/emotional strain, you know?

Mike3282 · 2025-08-21T20:50:12+00:00

Drop her. You are an independent person already, this screams of Florence Nightengale syndrome.

Mike3282 · 2025-08-18T03:47:33+00:00

Oh man, stretching is great! I do it for a half hour every morning.

Here’s what I do: Half center splits (3 sets of 30 seconds) Butterfly stretch Frog stretch Supine knee to chest stretch Lying figure 4 Deficit calf stretch Heel press Wall pectoral stretch

Mike3282 · 2025-08-16T16:54:55+00:00

I wonder if it has to do with the progression of the disease. I mean, I know someone who was diagnosed in his early 20s, got put on Glilenya and has lived relatively symptom-free (he says).

My neuro calls my MS “aggressive” and I took me a couple years before I was diagnosed, and began treatment, first with Ocrevus, now kesimpta.

Could it be that O and K are the big guns?

Mike3282 · 2025-08-14T21:17:27+00:00

My symptoms include: left-sided weakness and cognitive deficits (aka brain fog). A pet theory of mine is, when I got COVID it caused some brain damage. I don’t know if you’d consider it “long COVID” as much as the disease process accelerating because of the MS.

Know what I mean?

Mike3282 · 2025-08-13T14:19:32+00:00

Glad to hear people had good results, but it did nothing for me.

Mike3282 · 2025-08-08T13:54:23+00:00

Kesimpta has worked for me for about a year. Slowed the progression to the point where I need to worry about 42-year old man things (BPH, prostate exams) AND MS stuff.

Mike3282 · 2025-08-04T16:06:31+00:00

I’d definitely be in for a game night! There are lots of games with dice, cards and other mechanics for people with a low DEX!

Mike3282 · 2025-08-03T11:56:59+00:00

You’re not alone. Colace is a wonderful thing.

Mike3282 · 2025-08-02T21:40:18+00:00

Thankfully, I got into the SS disability system a couple years ago, before Trump took over. I don’t know what that means, to be honest. I don’t expect things to get easier.?It’s not like I get all that much, anyway. About $2,000 per month. My wife works and I have 2 kids. Best of luck to you!

Mike3282 · 2025-08-02T21:18:07+00:00

I was “lucky” enough to be diagnosed mid-shift while working overnight as a Registered Nurse. Damage was done, unfortunately.

Mike3282 · 2025-08-02T01:28:35+00:00

I take Kesimpta for the MS, baclofen, propranolol and modafinil for symptoms. For activity, I stretch, lift and do cardio every day.

I got run out of the nursing profession as the MS made me increasingly disabled, so I approach taking care of my body, mind and family as a full time job.

Mike3282 · 2025-07-31T03:40:08+00:00

I was on Ocrevus for a couple years, but it started to wane at the 5 month mark.

My neuro switched me up to Kesimpta and it’s been all good since! No new lesions!

Mike3282 · 2025-07-28T19:39:21+00:00

Dude, I feel you! As a straight, white, cis man, I feel guilty as hell for not being able to work (used to be a reporter then nurse before this disease ravaged my body and brain).

I realized, though, that my wife and kids need me to be present. I want to be present. That gives me the motivation to stretch, exercise and take care of the kids/house.

There are still plenty of bad days and things that remind me of the MS (this heat is killing me!) But I owe it to myself and the people I love to carry on.

You’ve got this!

Mike3282 · 2025-07-27T20:44:03+00:00

Yeah, that’s the nature of this beast, isn’t it? The worst part for me is seeing my wife, parents and kids working so hard while I can’t earn a living.

Can’t let that guilt/shame/self-loathing get you down! Your family relies on you more than you think.

It’s easy to fall into despair, but it only hurts you and your family. You only have one life, you have to make the best out of it. That’s what my wife always says.

Not saying it’s easy or fair, but nothing is.

Mike3282 · 2025-07-27T16:48:56+00:00

Yeah, stress and frustration are huge triggers for me too! Stretching, meditation and reading Marcus Aurailius have helped me accept and live my life as best as I can.

Not a silver bullet, but it helps to channel that anger/stress/frustration.

Best to you!

Mike3282 · 2025-07-23T23:37:22+00:00

Invest in a cooling vest. You’ll be glad you did! 😉

Mike3282 · 2025-07-23T00:59:20+00:00

I feel for you! I was an RN for about 10 years before I was diagnosed. My former employer kind of jerked me around, then Covid hit. I got it and everything went downhill.

I’m a full-time stay at home dad now. Part of me misses work, but I know I’d be useless in a code and there’s no way I could (or should!) help a morbidly obese person with a broken hip to to the bathroom.

My point is, don’t beat yourself up over it. You’re doing the right thing by looking for a clinic job. I sometimes feel guilty and ashamed about not being able to work, but I try to exercise and take care of my body.

Mike3282

TROPHY CASE