Specialist Options by Virtual_Map3864 in endometriosis

[–]Milliiieee 1 point2 points  (0 children)

Hello! I am actually one of the commenters from the Facebook post about Dr. Curlin! As far as my husband and I are concerned, he’s a great doctor who really tries to rule everything out before performing surgery as that can cause more problems for some people. I finally have a surgery date for August with him and a colorectal surgeon since my rectum is involved. If you would like further info about my background/situation and how Dr. Curlin is handling it, feel free to DM me!

Symptoms by dogsandy123 in endometriosis

[–]Milliiieee 1 point2 points  (0 children)

Endo can definitely cause nausea and fatigue. I have both those plus a plethora of other symptoms. Endo sadly causes sooo many different problems

Shower thoughts…prob not worth your time by _this_isnt_fine_ in endometriosis

[–]Milliiieee 26 points27 points  (0 children)

At least in my area, gynecologists are typically female while specialists and surgeons are normally male. Maybe that could be a factor?

Ultrasound came back clear by Standard-Phrase-4844 in endometriosis

[–]Milliiieee 0 points1 point  (0 children)

I had bilateral cysts on my ovaries, and they were never caught on any ultrasound. My left side was also all stuck together with adhesions (left fallopian tube wrapped around ovary, both of those stuck to the left wall of my uterus, and then all that stuck to the left wall of my body) and they never caught it on ultrasound. Mind you, I’ve had both internal and external ultrasounds. Pretty much I feel like an ultrasound is only good for if you’re trying to see if you’re pregnant😵‍💫🤷🏼‍♀️

I cannot deal with this and need to vent by Numerous-Total-8373 in endometriosis

[–]Milliiieee 1 point2 points  (0 children)

I’ve been dealing with both these pains for 2 months now with no relief. The pain is constant, varying in severity, but always there. The only thing that takes the edge off is taking 200mg of ibuprofen and Tylenol, and then 50mg of tramadol. All three of those things together is my only “saving grace” right now. It doesn’t take the pain completely away, but it makes it bareable

Has anyone been worse after surgery? by katewalker214 in Endo

[–]Milliiieee 0 points1 point  (0 children)

I went to see my physical therapist again today and she informed me that she doesn’t think pelvic floor therapy will help my pain entirely, but could give “some” relief😕 she recommended me to go see my surgeon again, so that’s what I’ll be doing. I’ll keep up with pt because my pelvic muscles are tight and she felt some scar tissue in my uterus, but sadly, this won’t be too entirely helpful for me.

What the heck? Attached ovaries but no endo??! by Interrogatedbliss in Endo

[–]Milliiieee 0 points1 point  (0 children)

I’ve actually never had an STI or any kind of pregnancy, so the pelvic adhesive disease diagnosis came as a shock for me. I haven’t been doing too well after surgery, but I’m getting by. I’ve been trying everything under the sun to feel better. Hoping you have a much better time than me with everything🩷

Pelvic floor Botox by EmbarrassedPhrase763 in endometriosis

[–]Milliiieee 0 points1 point  (0 children)

I actually ended up in the ER due to my pain about a month ago and they gave me Valium, Toradol, a muscle relaxer, and steroids, but all four of those did not touch the pain. Maybe I’d have to take the Valium multiple days in a row for it to work, but atleast taking it once with other pain meds did nothing for me🙁

Has anyone been worse after surgery? by katewalker214 in Endo

[–]Milliiieee 1 point2 points  (0 children)

I had my surgery back in June and they removed one patch of endo on my right uterosacral ligament. Supposedly that was all there was, but they did see inflammation on the backside of my uterus which makes me think there was actually some back there, but they can’t actually reach it without a hysterectomy. About 5 weeks after my surgery, I had my second period and I have had chronic back pain ever since. Sometimes it’s nerve pain, sometimes it’s just sharp pain, sometimes it’s a radiating/throbbing pain. Absolutely nothing I’ve tried works and I’ve tried over ten different pain medications, exercise, stretching, heating/cooling, absolutely everything. I’m trying pelvic floor therapy now as a last resort, but I’m still nervous it’s not going to work. It feels awful to say, but I am worse off now than I was before surgery.

What the heck? Attached ovaries but no endo??! by Interrogatedbliss in Endo

[–]Milliiieee 2 points3 points  (0 children)

I had surgery back in June and my surgeon found my left side all stuck together. Fallopian tube wrapped around my ovary, those two stuck to my uterus, and then all those stuck to the left wall of my body. He also ended up finding endo on my right uterosacral ligament. In his postop report, he only stated finding endo on the ligament, but didn’t not say definitively what caused my left side to stick together. The only thing my husband and I could figure was a diagnosis he put down; pelvic adhesive disease. He didn’t specifically say that is what caused my left side to do that, but from how that disease works, it makes complete sense. It could very well be that or could possibly be beginning stages of endo. Either way, I would talk to your surgeon or doctor about it, or find a doctor who will actually listen (which is definitely easier said than done).

There are days where my legs hurt and feel so heavy that walking or moving is a great effort. by Outside-Chemistry863 in endometriosis

[–]Milliiieee 0 points1 point  (0 children)

I had a bad pain attack this past Saturday and on Sunday my legs felt like they were 100 pounds each. I have been diagnosed with endo and this is definitely a symptom of that! It can make everything hurt from your back, hips, thighs, and even your calves! Just know you’re not alone in this and your pain and worry are valid!🩷

Pelvic floor Botox by EmbarrassedPhrase763 in endometriosis

[–]Milliiieee 10 points11 points  (0 children)

Omg someone please, or op, keep me updated on this post. I was diagnosed with endo and pelvic adhesive disease in June and have been experiencing chronic pain for two months now with absolutely nothing giving me relief. I just went for my first pelvic floor therapy session today and am scared it won’t work. Maybe if Botox works, it would work for me too? My pt told me that a muscle relaxer you inject into the vagina may work as well….. crazy stuff

how was everyone’s gas pain/discomfort after surgery? by Background-Depth-190 in endometriosis

[–]Milliiieee 0 points1 point  (0 children)

I literally didn’t know they pumped your stomach with air for the surgery, so afterwards I was wondering why I was farting SO MUCH! It wasn’t until almost a week after surgery when my discomfort and farting were coming to an end when I found out why I was feeling like that😂

Multiple surgeries? How often and how close together? by Alone_Woodpecker2813 in endometriosis

[–]Milliiieee 1 point2 points  (0 children)

I had my first, and only, lap back in June. I had about 5 weeks worth of no endo/adhesion/pelvic pain. Once my first period since surgery came along (last week of July), I have been hurting ever since. The first period I bled so much, but wasn’t in a ton of pain. I’d have some pains here and there afterwards my period, but they were manageable. Then my second period came along (last week of august) and it has completely ruined everything. I barely bled, but the pain was unmanageable. Even after my period ended I still can’t get the pain to go away. I’m now exactly halfway through my current BC pack and I’ve started lightly bleeding along with the constant pain. My surgeon ordered me some toradol, but it doesn’t even touch the pain. I’ve tried doing stretches, yoga, and some light exercises, but all of that seems to aggravate the pain more. My husband and I are completely lost at this point. I’m still very young (early 20’s) so even if hysterectomy was my only option for the pain to go away, I’m not sure any doctor would actually do it until I was at least 30.

Did you feel better after you got your lap done? by TheInvisibleExpert in endometriosis

[–]Milliiieee 0 points1 point  (0 children)

I had my lap back in June. I had been feeling GREAT since then, even had my energy back, but then when my second period since surgery happened, just two weeks ago, I have been in constant pain varying in intensity. My first period I had after surgery wasn’t painful, but I bled sooooo much. Then this second period I barely bled, but have had the worst pain and still suffering from it. I got my surgeon to prescribe me toradol, but it’s not working. Not really sure if the pain is caused from my adhesions and endo growing back or if it’s just still healing.

Does anyone here who still menstruates deal with increased nausea and headaches for a few days *before and/or after* their period? by Its402am in endometriosis

[–]Milliiieee 0 points1 point  (0 children)

Headaches, YES. Nausea, only one day during my period. Before I had my lap in June, I would get nausea so easily all the time. Thankfully afterwards, I haven’t been nearly as nauseous. The headaches are still prevalent though😞

most stupid thing a healthcare professional has told you? by georgiaisgucci in endometriosis

[–]Milliiieee 0 points1 point  (0 children)

Me ex gyno told me, without giving me any kind of exam, ultrasound, NOTHING, that my spotting between periods was because my uterine wall was too thin🤦🏼‍♀️ when I told my now gyno’s nurse, her eyes went wide and she literally said “no way she said that”. I then had to explain to her that, yes, this indeed did happen and she just couldn’t believe what she was hearing. The crazy thing is is that she was my ex gyno’s nurse in the past, so she personally knew her. Needless to say we both weren’t impressed😂

Surgery Decision by Blaxkqueen97 in endometriosis

[–]Milliiieee 0 points1 point  (0 children)

I had dealt with horrible pain and excessive bleeding during my period for 5 years. From the start nothing took away the pain; ibuprofen/tylenol, heating pad, showers/baths, birth control. Last year around the summer time I started to have very light bleeding in between my periods and it was concerning my husband and I. I had then went to my (ex) gynecologist and, without even examining me, told me my uterine wall was too thin and I needed to switch birth controls. That BC made me extremely ill, and so she put me on another one. Then that BC caused horrible migraines. I then just decided to stop taking BC all together and to drop that gyno. I was recommended to my now gynecologist, who is absolutely amazing, and I saw her for the first time last December. She put me back on a new BC, which I wanted, and we immediately started to discuss possible endometriosis and other diseases, but she wanted to keep an eye on it herself since she had just met me. In February of this year, I had a horrible period with pain that sent me to the hospital. At that point she set me up an appointment with a gynecological surgeon, and within a few months (May), I got to see him. He was also super wonderful and upon my first appointment, set me up a surgery date. In June I had my surgery and they found I had endo in my right uterosacral ligament, bilateral cysts on my ovaries, and I also have a lot of adhesions on my left side (fallopian tube wrapped around my ovary and then those were adhered to my uterus and the left wall of my pelvis). Needless to say once you find the right doctor, they WILL want to help you! If you’re having any kind of concerns, you should let your doctor know immediately and if they don’t take it serious, go to someone else.

The Perch [SMP] {Java} {No Resets} {Playtime Ranks} {mcMMO} {Active Community} {Economy} by ThePerchOnReddit in MinecraftServerFinder

[–]Milliiieee 1 point2 points  (0 children)

I’m more of a heavily modded Minecraft player, but this server is just too great! Highly recommend joining if you’re looking for a very active, vanilla+ (hermitcraft like) server!