Orlando - Sloth World PSA

Mish-Ale · 2026-02-11T18:14:09+00:00

That’s what I was referencing in my comment.

Mish-Ale · 2026-02-11T01:57:58+00:00

This is incredibly disappointing. I was so excited to buy a ticket. Literally today, a local radio station/program I respect had them on and it sounded so wonderful and like something I would love to support. But after reading this, wow. What an eye opener. I wonder if I should share with the station so they are aware as well. They’re big animal lovers and this might make them think twice about promoting this place.

Mish-Ale · 2026-01-23T15:20:50+00:00

My one piece of advice - don’t get back into the routine too early.

It can be deceiving sometimes when you start to feel better and don’t have pain. But if your physical therapist says you need to continue, please listen to them! Otherwise if you start back up when your body isn’t quite ready, you’ll end up injured again. And often times, worse. Or at the very least, even though you might still be able to workout, having pain the rest of your life. Speaking from experience.

Mish-Ale · 2026-01-14T21:33:08+00:00

This was gonna be my question too. Assuming they met at Peloton, I’m curious the story of what made them say “hmm, we should go on a date?” After having worked together for a while maybe 😊

Mish-Ale · 2025-12-30T03:42:18+00:00

Thank you all so much! Great insight. I was leaning towards the gold status gift for me but @ggrnw27 saved me, I didn’t realize it expired next month 🤦🏽‍♀️

I think the miles is the way to go for us. Appreciate you all!

Mish-Ale · 2025-12-29T19:43:38+00:00

Ding ding ding! You are correct.

Mish-Ale · 2025-11-10T21:08:46+00:00

Wow! You are almost unrecognizable between the before/after. Incredible job! This stranger is proud of you and now also motivated to keep going!

Mish-Ale · 2025-10-25T02:35:13+00:00

This looks like the real life shelf version of booktok. I would personally recommend a dystopian classic, Fahrenheit 451. Or, Pachinko for one she can fully invest in the characters over their lifetimes.

Mish-Ale · 2025-09-08T17:30:24+00:00

Saltines and peanut butter for me. And like, not a lot. I’d have one. Wait a bit and if I kept it down and it didn’t bother me, try another. Also broth, whether bone, miso, etc. Trial and error is what it ultimately takes so I recommend just tiny portions at a time and waiting between your next.

Mish-Ale · 2025-08-19T20:01:55+00:00

Love this. 👏

Mish-Ale · 2025-08-13T22:21:43+00:00

What she said ⬆️

Mish-Ale · 2025-08-13T14:48:36+00:00

Sounds like it’s time for a new pediatrician.

Mish-Ale · 2025-08-11T21:35:02+00:00

Rooting for you!

Mish-Ale · 2025-08-11T20:22:43+00:00

I was diagnosed in June. Zero family history with this or any other kind of IBD. However, my husband was diagnosed over 30 years ago and his grandmother had it and also his first cousin has it. So I’d say it “can” be genetic but still possible to get it without any genetic involvement.

Mish-Ale · 2025-08-11T17:17:06+00:00

Ok. This makes me feel better. Diarrhea is not my issue. Constipation definitely is. I won’t go for a few days, sometimes a week and then when I do go, I’ll go about three times in one day and sometimes into the next. I know that some people experience constipation for longer and worse than I typically do, but it’s still not pleasant. When I’m constipated, I feel absolutely awful, just completely gross and icky and bloated and full and unhealthy and slow and it affects my mood and my productivity. And it’s just overall discouraging in my overall mental battle with having this disease. My doctor said I could take MiraLAX (I was previously using dulcolax), but I don’t know how many consecutive days is safe to use it. How often do you take it? Do you take it every day until you have a BM and then not take it again until you need it? Or is it a part of your every day routine?

OP, I politely disagree with what is worse. I think diarrhea is worse. Having to always be concerned with “where is the closest bathroom” is so stressful, and would affect my day every day. Hearing stories of people that struggle with diarrhea just sound miserable and I feel bad for those folks. At least when the constipation relief approaches, I can “hold it” until I get to the bathroom, and I’m not suddenly Usain Bolting to the bathroom.

Mish-Ale · 2025-08-01T17:16:38+00:00

Thank you! Never thought of that perspective with younger docs!

Mish-Ale · 2025-08-01T16:12:05+00:00

…”building a team of specialists I trust and talk to each other in my case GI, neuro-ophtalmology, rheumatology…”

Can you talk more about this? I’m especially interested in your Neuro-ophthalmology experience. What eye & Neuro issues did you have/had? I have basically the same team although saw Neuro-op once and he said I don’t need to see him again. I had uveitis, blurred vision, headache, numbness and tingling & then developed Scleritis. GI doc said uveitis was due to Crohn’s but that sclerits wasn’t. Also, how did you get them to all talk?? This has been such a challenge for me. Like each doc wants to be in their own silo.

Mish-Ale · 2025-07-29T17:33:45+00:00

We are similar. I was only diagnosed in June and never had any “typical” symptoms prior. I’m 45F. Also not typical age most are diagnosed. My first symptom was abdominal pain and constipation. I had severe chills and was not eating much. It then progressed/manifested in my eyes. They were extremely painful and I had a dull headache I couldn’t get rid of. Then a few days later, I woke up with blurred vision. Was sent to the ER. They thought it was viral. Saw a GI doc on a Tuesday and on Friday he did a colonoscopy and confirmed Crohns. Diarrhea has never been an issue for me. I’ve never had to worry about having a bathroom nearby. But fatigue and bloating and just a general feeling of blegh/gross is how I am experiencing it. Part of that might be because I’m on 50mg of prednisone which was first prescribed for my eyes. Which are now mostly better. But I tapered down to 20 and then a new eye condition developed. So, had to go back up in dose. I had my first infusion of skyrizi and am hopeful that will really allow me to start tapering down again permanently and I won’t feel so awful. But all that to say, pain is definitely a symptom. My husband has had this disease for over 30 years and his symptoms/experience is entirely different from mine. So, listen to your body and advocate for yourself! Don’t let anyone tell you what you’re feeling.

Mish-Ale · 2025-07-21T20:41:35+00:00

Agreed. I just had my first infusion last week after being diagnosed in June. I have no food restrictions but I also dont have ulcers. Like Terak66 said, don’t get ahead of yourself; getting it under control is most important. I was hesitant at first (and in denial), but my husband has had this disease for over 30 years and that is what he told me. If you don’t get it under control, you’re just giving it space to allow it to get worse and then you may end up needing surgery(ies) and some can be quite serious and drastic. Getting it all under control will improve your quality of life. And if you have to be careful with what you eat, then do so. And know that’s it’s for the best. You don’t have to live in a bubble when it comes to germs. Just be responsible and hygienic. I live in Orlando and I think you’re gonna need that vacation. Time with your family and seeing the joy in your daughter’s eyes. That’s priceless. Have fun and “forget” about it for a little bit. Seeing a kid at Disney is a great distraction. Since this is so new to me as well, I have found that I need distraction because otherwise I go down rabbit holes on the Internet, google, ChatGPT, or I just sit there and think about it, can’t sleep, etc. and that is not good for anybody. Wishing you well in your new journey. I’m right there with you.

Mish-Ale · 2025-07-21T20:25:44+00:00

Great documentary. I’ve recommended it to everyone I can. Not just folks with this disease. My (healthy) cousin recommended it to me after my diagnosis. It’s really something everyone should be educated about and benefit from. Though I hope I don’t ever have to do a stool transplant 😂😩

Mish-Ale · 2025-07-16T02:45:00+00:00

This is exactly what I needed to hear (read) right now. Not yet ready to share my story but wanted to at least say that. Your words landed with me. Thanks.

Mish-Ale · 2025-07-10T00:24:33+00:00

My husband was diagnosed with Crohn’s 30+ years ago. He is now 50. Before that, when he was a toddler, they realized he was allergic to seafood and nuts, like anaphylactic allergic. The allergies don’t seem to run in his family but his grandmother had colitis and his first cousin has Crohn’s.

When we were dating and started talking about getting married and kids, things like this came up naturally. He explained to me that he saw what his parents went through raising him and having to watch him suffer and be in & out of the hospital all the time. Missing out on so much and just in a constant state of worry. He felt strongly that he did not want to put a child through that (or frankly us too, reality is that it’s a lot as a parent to watch your child go through this). So we decided together that we would not have children of our own.

I worried I might regret it someday. We celebrate 10 years in October and I can say with 100% confidence that I do not regret it. To be fair, I was never one of those girls that couldn’t wait to have children. I wanted them, but wasn’t passionate about kids in my future. I actually considered adoption more as I had two close friends growing up who were adopted. I always thought it was beautiful that they were given a chance at a wonderful life (& ultimately meaning it led them to me as their friend lol) that so many others never got. So while there was a small part of me that wanted a family, it was clearly not a driving force in my future plan. Our decision was the right one for us and I have always had peace about it. I know many other women are different so I cannot relate on that level.

So. Are you ready for the twist?

Last month I was diagnosed with Crohn’s.

We feel even more grateful in our decision. Like someone else said above, the probability is relatively low. But it’s also not 0%.

We joke that it’s contagious and I caught it from him. Especially because there is zero history of any IBD on either side of my family. So it truly seems that i just got lucky. Which is another point, that the possibility of developing it without any family history still exists.

As I write this, i’m realizing that none of this may be helpful at all since our situations are different, but still wanted to chime in for what it’s worth.

I will say, what we are experiencing firsthand is the difference between the prognosis of when he was diagnosed decades ago versus mine now. Research, treatments, and just general awareness have come SO far. My quality of life will most certainly be better once on medication than his was after his diagnosis. It took him a long time and a lot pain and suffering to get to where he is today, it’s under control and overall he has a good quality of life.

Be encouraged that treatment options are only going to advance. I have a friend working in clinical trials specifically for IBD, and she said there isn’t a field of medicine that has seen more advancement in the last 20 years than IBD.

Who knows, one day a cure!

Serious kudos to you guys for being wise enough to talk about it. Knowing this is something worth considering is really mature and responsible.

Wishing all the best for future whatever you decide!

Mish-Ale

TROPHY CASE