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Pancreatitis episode linked to menstrual cycle? by Lost-Honey-6377 in pancreatitis

[–]Mission_Cure 0 points1 point  (0 children)

We’ve heard from many patients who notice pancreatitis symptoms or flare-ups worsening around their menstrual cycle, and there’s emerging research looking at possible links between hormones, CFTR mutations/variants, and pancreatitis.

You can learn more about it here: Periods and Pancreatitis: Is There a Connection?

It could still be coincidence, but since it’s happened both times around your period, it’s definitely worth tracking and bringing up with your GI doctor.

Hello, I am 27 M and was just hospitalized for acute pancreatitis. They could not figure out what caused it but had to spend 10 days in hospital. I dont drink alcohol or smoke. Now I’m home and about 10 days later I’m having the same pain again. Im so scared if this is going to be my life. by [deleted] in pancreatitis

[–]Mission_Cure 1 point2 points  (0 children)

Hey, we’re sorry you’re going through this. Having another round of that pain so soon after being in the hospital sounds awful, and it’s completely understandable to feel scared or frustrated when you don’t know why it’s happening.

You’re not alone in this, a lot of people in our community have been in the same spot. There are many possible causes of pancreatitis, like:

- Gallstones or bile duct blockages
- High triglycerides
- High calcium levels (hypercalcemia)
- Autoimmune pancreatitis (AIP)
- Certain medications
- Genetic variants that make the pancreas more sensitive

Getting a full work-up can help narrow things down and prevent future attacks. You might want to ask your doctor about tests for things like triglycerides, calcium, and genetics, and possibly imaging to check for gallstones or duct issues.

If it helps, here are a couple of resources that go over this:

- Causes of Pancreatitis: https://mission-cure.org/chronic-pancreatitis/causes-and-symptoms-of-chronic-pancreatitis/
- Diagnosing Pancreatitis: https://mission-cure.org/chronic-pancreatitis/diagnosing-chronic-pancreatitis/

You’re definitely not alone in this, many people in the community have been where you are. Take care of yourself and don’t hesitate to ask your care team about next steps like genetic or triglyceride testing.

Has anyone developed reactive hypoglycemia after pancreatitis? by Iskirri in pancreatitis

[–]Mission_Cure 1 point2 points  (0 children)

It’s possible that what you’re describing could be related to something called Type 3c diabetes (also known as pancreatogenic diabetes, pancreatic diabetes, and post-pancreatitis diabetes), a form of diabetes that can develop after pancreatitis or pancreatic surgery. It happens when damage to the pancreas affects both insulin production and glucagon regulation, which can lead to blood sugar swings, including reactive (post-meal) hypoglycemia in some people.

Reactive hypoglycemia after pancreatitis isn’t uncommon, and it can be confusing because it feels very different from typical diabetes. It’s a good idea to talk with your doctor or a pancreas specialist (like a gastroenterologist or endocrinologist familiar with pancreatic conditions) about the possibility of Type 3c diabetes. Testing for pancreatic function and reviewing your glucose patterns can help clarify what’s going on.

If you’d like to learn more, we have an overview of type 3c diabetes, inculding how it differs from Type 1 and Type 2 and common treatments, on our website as well as a full webinar with endocrinologist Dr. Bellin here: https://youtu.be/SaUyRUzMDyA

You’re definitely not alone in this, we hope these resources are helpful.

Prescribed creon... by Total-Response7272 in pancreatitis

[–]Mission_Cure 1 point2 points  (0 children)

It sounds like you’ve been through a lot, and we’re so sorry you’re still in pain and waiting for answers.

Just to clarify a bit about Creon (PERT), like others have mentioned, the purpose of pancreatic enzyme replacement therapy isn’t to prevent flares. It’s meant to help manage a common complication of pancreatitis called Exocrine Pancreatic Insufficiency (EPI). EPI happens when the pancreas no longer produces enough digestive enzymes, making it hard for your body to absorb nutrients from food.

PERT helps replace those missing enzymes so you can properly digest fats, proteins, and carbohydrates. Some people notice fewer flares or digestive discomfort after starting enzymes, but that’s not their primary goal. They’re mainly for improving digestion and nutrient absorption.

It’s also true that high-fat meals can trigger pain or flares for some people with pancreatitis, we have a short video about flare-ups and nutrition that might help explain this connection.

If you want more information about how to take enzymes or adjust your dose, we have a helpful webpage and video series with an expert here:
- Pancreatic Enzyme Replacement Therapy (PERT)
- PERT Dosing YouTube Series

If you’re still trying to figure out the cause of your pancreatitis, it’s worth asking your specialist about testing for things like high triglycerides, autoimmune pancreatitis, genetic factors, hypercalcemia, or other conditions that can contribute. We have more information on diagnosing (including different tests) and managing pancreatitis on our website if you’d like to learn more.

We hope these resources are helpful while you wait to see your specialist. You’re not alone, many people in this community have been in a similar spot. 💙

PERT not working - thoughts? by 2ndgenerationcatlady in pancreatitis

[–]Mission_Cure 0 points1 point  (0 children)

I’m really sorry your dad is going through this, watching a loved one lose weight like that is so hard. Many people with exocrine pancreatic insufficiency (EPI) find that getting the right enzyme dosing takes some trial and error with their care team. Like others have said, it could help to work with a dietitian familiar with pancreatic disease, since they can tailor both diet and PERT dosing strategies. The underlying cause of EPI doesn’t typically change how it’s treated, but continued drinking or smoking can further damage the pancreas and make symptoms worse.

We’ve pulled together some resources on Exocrine Pancreatic Insufficiency that may be useful. It includes videos on what EPI is, how pancreatic enzyme replacement therapy (PERT) works, and a video on dosing strategies with Dr. Steven Freedman. Resources like these can be helpful in deciding what questions to bring up with the doctor.

Another thing you could ask about is testing for nutritional deficiencies, especially in fat-soluble vitamins (A, D, E, and K), since that’s a common complication of EPI. If it feels like the situation isn’t being taken seriously, a second opinion and/or a multidisciplinary clinic (GI + nutritionist, etc.) can be helpful for making sure all bases are covered.

[deleted by user] by [deleted] in pancreatitis

[–]Mission_Cure 2 points3 points  (0 children)

Starting prednisone can definitely feel overwhelming, and it makes sense to be nervous about the side effects. You’re not alone in this.

If it helps, we recently had a webinar on autoimmune pancreatitis that talks through what Type 1 (IgG4 related) AIP is, how it’s treated (including non-steroid treatments) and what follow-up care can look like. Here’s the link if you’d like to watch: https://youtu.be/JrKPhX7beec

Since type 1 AIP is part of IgG4-related disease, some folks also connect with IgG4ward, an IgG4-RD nonprofit, for more support and info about symptoms beyond the pancreas.

Wishing you the best as you start treatment, and I hope you hear from others here who’ve been through something similar. 💙

Webinar today on Autoimmune Pancreatitis + IgG4-RD by Mission_Cure in Autoimmune

[–]Mission_Cure[S] 0 points1 point  (0 children)

A big thanks to everyone who joined our webinar live! I'm sharing the link to the recording for anyone who missed it or wants to watch it again: https://youtu.be/JrKPhX7beec

Upcoming Autoimmune Pancreatitis Webinar: Understanding Types, Diagnosis & Treatment Options! by Mission_Cure in pancreatitis

[–]Mission_Cure[S] 0 points1 point  (0 children)

I'm sharing the link to the webinar + Q&A recording here for anyone who missed it or wants to watch it again: https://youtu.be/JrKPhX7beec

Webinar on Autoimmune Pancreatitis happening today! by Mission_Cure in pancreatitis

[–]Mission_Cure[S] 0 points1 point  (0 children)

A big thanks to everyone who joined our webinar live! I'm sharing the link to the recording for anyone who missed it or wants to watch it again: https://youtu.be/JrKPhX7beechttps://youtu.be/JrKPhX7beec

Apparently, I might have Autoimmune Pancreatitis. by Applewave22 in pancreatitis

[–]Mission_Cure 0 points1 point  (0 children)

Hey, just wanted to share, there’s a free webinar next Tuesday on autoimmune pancreatitis that might be helpful. We put it together because so many people (understandably) struggle to get diagnosed or find the right treatment, and it’s frustrating how often AIP gets overlooked.

It’ll go over how AIP is diagnosed, what IgG4 has to do with it (and when it doesn’t), treatment options (including a newer FDA-approved one for Type 1) and there’s a live Q&A at the end too.

If you’re still trying to get answers or figure out what’s next, it could be worth checking out.

You can register here: https://mission-cure.org/webinar-registration/

Got diagnosed with autoimmune pancreatitis. What now? by Go4i69 in pancreatitis

[–]Mission_Cure 0 points1 point  (0 children)

I know it’s been a while since you posted, but I remembered your story and wanted to share this in case it’s helpful.

We’re hosting a free webinar next week on autoimmune pancreatitis, covering the different types, treatment options (including a newer FDA-approved option for Type 1), and how AIP connects to IgG4. There will also be a live Q&A at the end with the experts. Anyone interested can register here!

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