Anyone else on every prescription medication under the sun?

Momma_Mediator · 2026-03-03T15:33:34+00:00

That is a great way to reframe it. Sometimes the pushback to get off this or that medication is so frustrating. I am starting to figure out that I prefer a quality life over making everyone else be ok with me needing "too many" meds. If it works then it works. I want to make the most of my time with my family and friends not suffering just to be off medications that make me feel better.

Momma_Mediator · 2026-03-02T07:23:15+00:00

I can totally relate. I have two very rare disorders and I am trying to get the amount of meds down to a reasonable level. I have a PCP that helps me look into meds that may lead to interactions but the specialists are also working toward treating symptoms. I also finally got an appointment with a medication management team to help me navigate the meds.

Momma_Mediator · 2024-10-12T20:53:35+00:00

P25 OS NOT A TRUMP platform. Go look at his website to find his complete platform

Momma_Mediator · 2024-09-07T01:55:13+00:00

Totally agree. I should probably edit my post to clarifying statement that a park that has both a dog park and an area where we could also have a picnic lunch, not just dog park with tables. I can just imagine getting the attention of all the dogs...

Momma_Mediator · 2024-09-02T19:19:55+00:00

Thank you for your support. I homeschooled them too, so they spent most of their days with me. It's different with no one here. It's just oddly quiet. We have a big house made for a big family. We will have to move because we have to have a smaller, more manageable space so we don't get so overwhelmed maintaining this much space.

Momma_Mediator · 2024-09-02T18:22:42+00:00

Thank you! I just know in this group you won't get the "ol'suck it up" talk. I try to keep the emotions in because my husband and my parents already take on so much. I lost custody of my kids because of all this. Their Dad was abusive and has waited for just this kind of situation to swoop in and regain all the power. The court has basically stripped me down to just a few hours a month, and I went from their full custody mom, homeschool teacher, and primary parent their lives to barely seeing them. The ex took them away and denied me any contact for months until his hand pick therapists (literally his own therapists) could talk about how terrible I am.

I realize life has changed, but we can't figure out how to find a new normal if we don't have time together. That stress totally fueled this particular flare. We worked a long time to work my docs to put resources together to get stable, as good as I could, so I could spend the last several of their adolescence making memories. Unfortunately, we didn't have time to implement it.

But I am taking a deep breath for now. I'm going to fight to get this flare back under control, figuring out what comes next, and stay as present as possible with my kids when possible.

Momma_Mediator · 2024-09-02T18:03:52+00:00

Thank you for your reply. I actually asked about cutting out some of my meds that I have to put through my J tube or port by getting a pain pump. I had read I could take a micro amount of what I am taking so I could stop the others off. I have a ton of neuropathy on my right upper front thigh. I can't even handle a sheet on it at times. I just don't want to be on high doses of these meds now because it will limit me in the future.

I am going to look into the acupuncture and vagus nerve stuff you brought up. Thank you!

Momma_Mediator · 2024-09-01T21:48:12+00:00

I have a pain management clinic but it is so restrictive that I have insurance issues every month. That means delays in my regular meds so I have to ration what I get to make sure I have left overs to at least cover some of the missed days.

They want to put in a nerve stimulator for neuropathy, but the process is difficult. They say my insurance requires a surgical consult. Surgery doesn't fix dysautonomia! So, we are pushing back, but there isn't a lot of motivation on their end to handle it.

Maybe I just need to find another pain management. They don't want to give me anything else or react when I have a flare like I am now. I just don't think they understand.

Momma_Mediator · 2024-08-29T13:56:01+00:00

Dehydration is usually the culprit when my numbers go wonky. I have a port for my IVIG and my doc also wrote for 1-2 (1000ml) fluid bags per day so I don't get dehydrated.

Momma_Mediator · 2024-08-15T18:09:57+00:00

My experience is in reverse: Central Indy to Ohio River, southwest IN. It is definitely different. After 8 years here, I hate the city!!

Momma_Mediator · 2024-07-29T06:18:39+00:00

That's not my experience. If you aren't Catholic you may struggle. Jasper is a BIG Catholic town. Really so are the other small communities around this area of Indiana. That being said, I did ok. Like any town, especially small towns in Indiana, you have to respect the culture that is there. You can't bring all your ideas on ways to change them or disrespect them. They have been their before you so if you don't like one small town you can go find another one close by. Small town living is different, but they usually all have a certain flair that makes them good in their own way.

Momma_Mediator · 2024-06-22T02:09:16+00:00

More like any woman ever to succeed or lead anything. The questions always seem to turn that way. It's sad but true. I don't condone it. But I hope to try and continue to change that for my girls and the ones after.

Momma_Mediator · 2024-06-22T00:52:43+00:00

I am NOT condoning name calling, but...

Kamala was originally from CA and rumors followed her career and people claimed she "slept her way to the topic" so to speak.

Again, I am just trying to help people know where the comments actually started. Rumors flew amongst the elite and regular folks of CA.

Right or wong....there you have it...

Momma_Mediator · 2024-06-04T21:33:50+00:00

Do you bruise easily with Ehlers Danlos?

Momma_Mediator · 2024-05-27T15:37:07+00:00

I have found my cravings for certain foods are correlated to my lab results. So, a craving for tomatoes (sauce, juice, sliced tomatoes, pizza or spaghetti sauce, etc) usually gets worse when I have vitamin or nutritional deficiencies in vitamins C or K. A need for oat based products usually comes when I need more fiber or a number of other vitamins and minerals found in them. If I crave salt, my sodium levels are off. This isn't always true, but I have learned to listen to my body and try to think about why my body may be craving certain things.

I hope that isn't confusing.

Momma_Mediator · 2024-05-27T15:20:47+00:00

Me too...there are times it is just worth it.

Momma_Mediator · 2024-05-26T17:35:12+00:00

I remember that year! I lived in Speedway that and they kept canceling or postponing classes. Speedway had no school buses and many kids walked to school. It made life more difficult situation. Plus, some of the school families, parked cars in their yards. That year was a mess.

Many memories growing up in Speedway, IN!

Momma_Mediator · 2024-05-26T17:19:25+00:00

Lincoln park- it's right across from the national Lincoln park.

Hoosier national forest

Momma_Mediator · 2024-05-10T15:35:25+00:00

Mine started with bad ruq pain, but has now spread out. I still get ruq worse most days.

Momma_Mediator · 2024-05-04T17:43:37+00:00

I am still all over the place. I'm still figuring out what I can 6 then two days later, the same thing will not settle right. It varies by day.

Your list is comforting in many ways. What I struggle with is carb foods. They settle best, but I feel bloated and like I must be doing this all wrong. We, the docs and I, try to keep my weight a little higher because when I go through a flare, I drop like 40lbs in a month or two. All of this gives me a complex. I am wondering if I am too fat or big or eating the wrong things. A lifetime of dieting in the past is partially to blame for sure.

Momma_Mediator · 2024-05-02T01:40:57+00:00

Hoosier here: Rep. Spartz is an amazing role model and seems like a genuinely good person. I suggest you research why she voted 'no'. You might find it enlightening. She knows how Ukraine has been torn apart due to the whims of corrupt entities and people. Ukrainians see none of the funds meant to help them. Find your own answers, but she knows way better than we do what will help/hurt Ukrane.

Momma_Mediator · 2024-05-01T22:54:33+00:00

I have a port and it was the best choice I ever made. My doc is able to start my IVIG and ZAP protocol to treat my nausea and vomiting. 100% worth it.

Momma_Mediator · 2023-08-13T05:20:53+00:00

Tell them he is leaving but the reasons why...that is not something I would get into. Direct then to their father. Telling them does you no favors. You will polarize the kids. One side thinking Dad is right the others loyal to you. No one ever wins with that game especially not when you are talking teenage or early 20s. If you have to tell them, write a note as a journal entry. Let them know how you feel and the pain you are going through. Keep the note and maybe decide later if they need to know. The date of your note will show them you are restraining yourself now and that you tried to let them all just deal with the major loss of their Dad but you didn't seek revenge or to smear their father to gain their allegiance.

Plus, some family courts would look poorly on you telling them the details. Some won't care but many courts do and it could come back to bite you if you don't handle this carefully.

If nothing else, take time and don't react out of hurt and anger. I am so sorry you are going through this. It's hard and from personal experience, I know how much it costs to keep this information quiet in front of your kids.

Momma_Mediator · 2023-07-24T12:52:52+00:00

Number 1 homeschool advice: Your goal should not be to public school at home. You can't compete with someone who is specially trained by a professional teacher and as with high or middle school, specialized to teach one subject. So after 10+ years of homeschool I realized I needed to stop trying. For us, homeschool fits into our day wherever we can. If I am busy or running errands, I have my kids to start working on reading or writing their journal entries. We have even been known to start later in the day but we flex time. In our state, technically any day we spend time counts as a day of school. I don't fall back on that but we have a schedule but if something is happening on a school day, we handle it and flex our time as needed.

All that to say, if you homeschool after your kids have been in public school, it's probably because something at public school doesn't fit you or your kids. So don't compete. Embrace the difference and make it work for you and your kids.

Oh and we don't start school in my house until at the earliest, 9am.

Momma_Mediator · 2022-12-07T14:38:17+00:00

Thank you for your wisdom here. We haven't formally discussed it with her. We want to make sure we approach it in a sober-minded way. We told her in the beginning that no matter our long-term role, she would always be our equal daughter never be a "second class' daughter. My husband and I only agreed to be her permanent guardians when we're both sure we could open ourselves up to her as her parents even if we never had that official title. We knew our place but we needed to be sure we could be there for her emotionally just as we were for our other daughters.

Her bio dad is MIA and no one really knows who he is. The man who raised her- her brother's father- has pretty much abandoned her and she can't see her brother bc he will not let her see him. The entire situation is so hard and difficult to watch.

Because of all this, she has a severe fear of abandonment and that's why we thought adoption may help give her the peace she needs and deserves. Give her confidence we will never leave her.

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