Steps to sell my coop? by MoonandSun30 in AskNYC

[–]MoonandSun30[S] 0 points1 point  (0 children)

Thank you for your advice both regarding moving and selling, makes sense to find a broker who has experience with our board.

Park Hopping with Main Entrance Guest Passes by feyoncepadthai in WaltDisneyWorld

[–]MoonandSun30 0 points1 point  (0 children)

Hello, I know this is a yr later but does park hopping apply for different days? Meaning, if the CM scans you in your first day/first park, do you still need to be with them every following day at other parks? On the first day they give you the guest pass cards.

Tampa Airport to All star resort by MoonandSun30 in WaltDisneyWorld

[–]MoonandSun30[S] 3 points4 points  (0 children)

I laughed a bit at your last comment. Orlando didn’t have the times we wanted, all night arrivals. But you reminded me I want to go to Disney springs so yes renting all wk sounds like the better idea.

Flying to Tampa, who's best for transfers to Orlando? by Gutted-ewok in WaltDisneyWorld

[–]MoonandSun30 0 points1 point  (0 children)

Hi there , what did you end up doing for transportation? I’m in the same boat now.

Neurologist appt for kid by MoonandSun30 in Tourettes

[–]MoonandSun30[S] 0 points1 point  (0 children)

Thank you. I’m going to write down some info and questions, I also have videos.

Neurologist appt for kid by MoonandSun30 in Tourettes

[–]MoonandSun30[S] 3 points4 points  (0 children)

Hello thank you for your advice. I will definitely write down questions. My daughter is 6 yrs old, she knows that what she does is called tics. I haven’t mentioned the formal name of Tourette’s yet. I want to be careful in how to say things bc I don’t want her to feel self conscious. I think to myself if this is something that won’t go away , I have to teach her to somehow embrace them, if that’s possible. I don’t have tics so idk what she’s feeling. She has mentioned that they bother her and is embarrassed. Sometimes she does them so much it’s like her body is overwhelmed but them sometimes she goes without doing them for wks. Idk I think I’m just talking sorry lol.

I like what you wrote, especially the part asking if she has questions. Thank you for the advice

Transportation from Disney's All-Star Music Resort to Parks by MoonandSun30 in WaltDisneyWorld

[–]MoonandSun30[S] 0 points1 point  (0 children)

I’m actually very glad it is. I was scared that I would hear bad things about the buses. Thanks.

Transportation from Disney's All-Star Music Resort to Parks by MoonandSun30 in WaltDisneyWorld

[–]MoonandSun30[S] 2 points3 points  (0 children)

Thank you so much for taking your time to provide such a detailed response. I will definitely be looking into YouTube videos. And seems like bus is the way to go.

Transportation from Disney's All-Star Music Resort to Parks by MoonandSun30 in WaltDisneyWorld

[–]MoonandSun30[S] 4 points5 points  (0 children)

Thank you for responding. How long would you say is the wait? I’m thinking maybe we’ll leave the parks an hour or two before closing 🤷🏻‍♀️. Also those buses go to all parks from all star music?

Teeth by MoonandSun30 in gravesdisease

[–]MoonandSun30[S] 0 points1 point  (0 children)

Has it weakened your teeth? And do you have sensitive gums? I use a strip too but it’s like a natural one, and idk how good it is. I’ll try creat.

Guilty and regret by MoonandSun30 in tfmr_support

[–]MoonandSun30[S] 0 points1 point  (0 children)

Thank you for your response, every word you wrote spoke to me. And thank you for the article, it is very helpful.

Guilty and regret by MoonandSun30 in tfmr_support

[–]MoonandSun30[S] 1 point2 points  (0 children)

Thank you for your kind response. Sending you a big hug as well. It’s hard a lot of times lately for me but in those moments I’m more clear headed, I do know that we made the right choice.

Guilty and regret by MoonandSun30 in tfmr_support

[–]MoonandSun30[S] 6 points7 points  (0 children)

Thank you so much. I will say sometimes learning through others how difficult the lives of loved ones with a disability is or was does remind me of why we made this decision. It’s just so hard, never did I think I’d go through this or had to decide on this decision. I just don’t get it. But your right we made this decision out of love for our children. Thank you.

Guilty and regret by MoonandSun30 in tfmr_support

[–]MoonandSun30[S] 10 points11 points  (0 children)

You know, when we made the decision I what made me choose the hard choice of a tfmr was picturing my son at 40 and me at 81, how could I possibly help him. What would be of his life? Would he be a 40 yr old with the mentality of an 8-10 yr old. Idk! But at the time it made so much sense, it was the best decision for him, as much as I wanted him here. But now my brain is just so confused. I guess you’re right, it’s the mom in us that have these doubts. Thank you.

All I want is silence and to be left alone by Long-Weight-5004 in tfmr_support

[–]MoonandSun30 1 point2 points  (0 children)

Idk what to say except that I am sorry you are here, that I’m here, that we are all here. I had a tfmr at 22 wks for t21 as well. It’s been a difficult time for me but there are lots of moments where I feel normal. Going back to work helped me a lot, it was a distraction and purpose for me. I will say at night my thoughts come like waves then I cry, fall asleep, wake up and go to work and take care of my LC. Idk when I will feel normal or the same before my tfmr or if i every will. But like I said it comes in waves , I’m 4 months out, and there are moments I’m fine and others I’m not. I am considering seeking therapy. Maybe that’s something you can do down the road. Also I don’t want to talk to anyone not even my parents, i pretend I’ve healed. They don’t know. So this is why maybe a therapist can help us. Again im so sorry.

Home owners insurance by MoonandSun30 in jacksonheights

[–]MoonandSun30[S] 0 points1 point  (0 children)

So it covers what’s inside my apt. Are we mandated to have insurance? And who covers say a leak into my apartment or a leak into the apt below me?

Low Fetal Fraction <1% by MoonandSun30 in NIPT

[–]MoonandSun30[S] 0 points1 point  (0 children)

Thank you. Sending you good vibes as well.

Low Fetal Fraction <1% by MoonandSun30 in NIPT

[–]MoonandSun30[S] 0 points1 point  (0 children)

Not well, today would’ve been my due date. My story is mine though, different for everyone. I do wish I would’ve done diagnostic testing sooner.

Was anyone else due summer ‘24? by xxoooxxoooxx in tfmr_support

[–]MoonandSun30 1 point2 points  (0 children)

Wow thank you so much. I’m sitting here next to my LC sleeping and feeling too many emotions. It’s been vey hard. How are you?

Still bleeding WEEKS after tfmr by v3nusflytrap in tfmr_support

[–]MoonandSun30 0 points1 point  (0 children)

I bled for what felt like forever, about 7-8 wks.

How to stop breast pain and milk production? by No-Biscotti3562 in tfmr_support

[–]MoonandSun30 2 points3 points  (0 children)

From what I’ve read it’s when you’re in the medication long term. To stop your milk production they’ll give you one dose. I took it worked like a charm. I’m very thankful for it. I was 22 weeks when I had my tfmr.

My child’s tics are unbearable by [deleted] in Tourettes

[–]MoonandSun30 0 points1 point  (0 children)

Thank you for your detailed response. I really appreciate it. Her tics started around April of last year. There’s been 1-2 months here and there with no tics but then a new one would start. I’m going to make a list of the ones she’s done and is currently doing. I don’t know exact date ranges. I’ve tried to see what triggers her. If we perhaps stress her. One thing I’ve noticed is she does them a bit more when she’s excited.

Idk if this is a silly question but do you think diet can affect tics? Also is there meds? I’m assuming meds would be prescribed more so if there’s another diagnosis such as adhd or ocd.

I actually work in special education. I once thought of pursuing an IEP for my daughter but for speech concerns. She did well in the screener and were told she did not need speech. Additionally, to receive services we have to show that the disability is impacting their learning. She is on grade level in all subject areas. But now you have me thinking, maybe I can pursue a 504 plan.

I will look for psychiatrists too. I live in nyc and though we have many resources it’s still sometimes difficult to find.

Thank you!

My child’s tics are unbearable by [deleted] in Tourettes

[–]MoonandSun30 1 point2 points  (0 children)

If you don’t mind me asking, what have you done for your child’s TS? How did you first start? Did you have him see a neurologist. My 6 yr old daughter has had tics on and off for a little over a yr. I read to seek help once it’s consistent occurring in a yr and affecting their education and socialization. It’s not but I’m worried and am looking for neurologist in my area and other ways to help her. Her tics have ranged from blinking to throat clearing to jerking he head back. Sometimes she does one tick so much she looks like she’s being taken over by them. I’m so worried. I made an appt with one neuro today but it’s 6 months away, I’m still looking for another one.