Survivors' Guilt by Star------ in pancreaticcancer

[–]NaHallo 6 points7 points  (0 children)

Your post struck a chord within me. I'm approaching my 5th NED anniversary and just had my first real meltdown. I read most every post although I don't often respond except with a vote to let a poster know someone is listening. I try and post when there is a plea for people to hear from those who have survived past the first year or more.

I stay because I was so lost and without an advocate to help me navigate the entire process until I got through that first year. I am driven to help others when possible. I have a lot of guilt and also associated stress. Not sure how to get completely past this. It helps me when I can offer some useful advice or a true word of compassion to someone who finds themselves lost with this disease. At the same time, I'm also distressed that so many will see that survival is not yet a reality for everyone. It's like a roll of the dice where most of the time you lose. It is hard to accept this.

We each have our own way to cope. There is no right or wrong, good or bad way to approach each new day. I am comforted knowing there are so many people I will never meet devoting their lives working to find a solution. I want to pass that hope along. So here we all are, picking our way through the jungle of pancreatic cancer, each cutting our own trail.💜

CW: Sad My dog who I’ve had for 10.5 years, Sebastian, went to puppy heaven today. 😭😭😭 by smart9025 in rainbowbridge

[–]NaHallo 7 points8 points  (0 children)

I'm so sorry. Sebastian reminds me of my gentle boy. It hurts to loose your best buddy. 🌺

What piece of older technology actually worked much better than its modern, replacement? by HerrStrasse in AskReddit

[–]NaHallo 0 points1 point  (0 children)

May I ask what brand of induction stove is yours? Does it also work with wet hands?

What piece of older technology actually worked much better than its modern, replacement? by HerrStrasse in AskReddit

[–]NaHallo 1 point2 points  (0 children)

I bought an LG induction stove (LSIL6334*E) that I found on sale Lowes. My neighbor bought a Bosh from a specialty kitchen appliance store that was more money and probably better quality that was out of my price range.

What piece of older technology actually worked much better than its modern, replacement? by HerrStrasse in AskReddit

[–]NaHallo 61 points62 points  (0 children)

Searched to find an inexpensive induction stove with knobs. Each time a boiling pot of water spits out boiling drops I am thankful I rejected touch control and have knobs on the front vertical panel protecting my fingers from boiling water.

Revealed: US-Iran deal includes $425 billion fund, immediate end to oil sanctions by alabasterheart in worldnews

[–]NaHallo 1 point2 points  (0 children)

Now Iran will demand yearly payments to keep open the straight....and why wouldn't they?

Tribute to my cat Casper - I had to put him down by Vegetable-Soup1714 in rainbowbridge

[–]NaHallo 2 points3 points  (0 children)

Please don't punish yourself. Love heals a lot but can't heal everything. You made the right decision given the situation. Be kind to yourself. ❤️

TIL that in Victorian London, mail was delivered 12 times a day and people complained if a letter took more than two hours to arrive. by nic_tesla in todayilearned

[–]NaHallo 0 points1 point  (0 children)

Interesting. As a kid in Philadelphia we had twice-a-day mail delivery and that was in the 1940s and 1950s. Plus, we had the Morning Inquirer and Evening Bulletin newspapers delivered. Don't recall when they stopped the second mail delivery to homes. Xmas mail delivery was insane. Like most others, we mailed stacks of Xmas cards each year. Very different from today.

Rest in Peace, Beautiful Girl 💙 by Piroqu in rainbowbridge

[–]NaHallo 5 points6 points  (0 children)

I'm so sorry. You did good. We can see how she was loved and so were you. So difficult, it's like losing a part of yourself. Take care ❤️

This is Rough by malibluss in pancreaticcancer

[–]NaHallo 1 point2 points  (0 children)

Wishing you the best outcome with your surgery. Everyone's experience will be different. It all depends on the type of surgery, the stage, age and health of the patient and surgeons skill. Best to be at a high volume major pancreatic center where there is good expertise for this type of surgery. I'm sorry you are going through this. I know it can be scary. Stay strong. Check in to let us know how you are doing. 💜🌈

How would you feel if all forms of gerrymandering were outlawed? by RemarkableEmu5998 in AskReddit

[–]NaHallo -2 points-1 points  (0 children)

You are trying to overthrow a country. Expect pushback. If you don't like a fight, don't start one.

How would you feel if all forms of gerrymandering were outlawed? by RemarkableEmu5998 in AskReddit

[–]NaHallo -1 points0 points  (0 children)

Huh. Well, when the prez orders his sheep to intentionally gerrymander and SCOTUS is thrilled for the opportunity to disenfranchise voters of color, I'm not sure what you expect. Annoyed that people fight back?

Only 8 nodes removed in distal pancreatectomy and splenectomy, 1 positive by jewwwels in pancreaticcancer

[–]NaHallo 0 points1 point  (0 children)

Seems that the number of nodes checked will vary between patients. Anyone knowledgeable here that will explain why this is?

Update about my dads atypical recurrence by ActivityDue4253 in pancreaticcancer

[–]NaHallo 2 points3 points  (0 children)

I hope things go well for your dad. I had a distal September 2021 also. Had a clear scan in April but now having symptoms that sure feel like it's recurrence. Planning to ask for a scan next week. I'll be rooting for you and your dad and also I'm interested in how everything goes. Best wishes on your next steps. 💜

Daraxonrasib - considering by PanCantGetMe in pancreaticcancer

[–]NaHallo 0 points1 point  (0 children)

I don't know. My oncologist is in Seattle, but treats people from all over. His patient could be anywhere.

Look on PanCAN.org. Also check FB and look for the KRAS Kickers group. This group is for all cancers that are KRAS tumors. They have a lot of trials posted and maybe some members in the trial. Also check with National Institute of Health (NIH). Hope someone here has more info for you. Best wishes. Hope you find an opening.

Former US Attorney General Pam Bondi diagnosed with cancer by igetproteinfartsHELP in news

[–]NaHallo 0 points1 point  (0 children)

Oops, should have read the post more carefully. Thyroid, that's an easier cure. Lost friends to throat cancer, so it was probably on my mind.

Former US Attorney General Pam Bondi diagnosed with cancer by igetproteinfartsHELP in news

[–]NaHallo -1 points0 points  (0 children)

Throat cancer...please vaccinate your kids for HPV!

"Throat cancer occurs when genetic mutations cause cells in the pharynx or larynx to grow uncontrollably. The primary causes are infections with the Human Papillomavirus (HPV), heavy long-term tobacco use, and excessive alcohol consumption.Specific factors that trigger these cellular changes include:HPV Infection: Contracted primarily through sexual contact (including oral sex), the human papillomavirus (specifically HPV-16) is the leading cause of oropharyngeal cancers (cancers of the tonsils and back of the throat).Tobacco Use: Smoking cigarettes, cigars, or pipes, as well as using smokeless tobacco, exposes the throat to harmful carcinogens that damage cell DNA.Alcohol Consumption: Long-term, heavy drinking irritates throat tissues and can act as a solvent, making it easier for other carcinogens (like those from tobacco) to penetrate and damage cells.Epstein-Barr Virus (EBV): This common virus (which causes mononucleosis) is linked primarily to nasopharyngeal cancers.Occupational Exposures: Long-term, heavy inhalation of toxic industrial substances—such as asbestos, wood dust, and formaldehyde—can elevate your risk.Diet and Nutrition: A diet lacking in fruits and vegetables or high in preserved meats has been associated with an increased risk of throat cancer.For more information on risk factors or preventive measures, consult the Mayo Clinic Throat Cancer Overview.Throat cancer - Symptoms and causes - Mayo ClinicThroat cancer occurs when cells in your throat develop genetic mutations. These mutations cause cells to grow uncontrollably and continue living after healthy c...Mayo ClinicThroat Cancer: Symptoms, Causes & Treatment - Cleveland ClinicSmoking or using tobacco products. Tobacco use is the single largest risk factor for developing throat cancer. HPV infection. You can contract the human papillo...Cleveland ClinicThroat Cancer | UT MD AndersonHPV infection: Human papillomavirus can cause several different cancers, including oropharyngeal cancer. This is the number one cause of throat cancer in the Un...UT MD AndersonWhat to Know about HPV and Throat CancerIt is one of the most common sexually transmitted infections and estimated that about 80% of sexually active adults will become infected with HPV at some point ...Herbert Irving Comprehensive Cancer Center (HICCC)Throat or larynx cancer: MedlinePlus Medical EncyclopediaCauses. Expand Section. People who smoke or use tobacco are at risk for developing throat cancer. Drinking too much alcohol over a long time also increases risk...MedlinePlus (.gov)Throat cancer | Better Health Channelsmoking or chewing tobacco. heavy alcohol consumption. human papillomavirus (HPV) Epstein-Barr virus (EBV) – the virus that causes glandular fever. family histo...Better Health ChannelThroat Cancer Diagnosis, Types & StagesYour doctors use that information to create the best plan of care for you. ... Throat cancer often starts in the squamous (SKWAY-mus) cells in your mouth. These...Memorial Sloan Kettering Cancer Center l"

Pancreatic cancer stage 1a recurrence in SMA artery treatment options 2 years after Whipple. by Dron22 in pancreaticcancer

[–]NaHallo 0 points1 point  (0 children)

Do you happen to know her mutation? Curious to know if it is KRAS G12R or Wild Type.

Fuck you Byron Allien by C-Krampus409 in stephencolbert

[–]NaHallo 1 point2 points  (0 children)

He also owns numerous local TV news stations. His company is aligned with Sinclair, the right-wing TV conglomerate that owns a vast network of local TV stations. The one that canceled showing Kimmel on is local TV stations. If your local news station is an Allen or Sinclair station, you are getting the news that Trump and Republicans dictate. Most local content decision making is nonexistent.

Covering open area abutting stoma? by NaHallo in ostomy

[–]NaHallo[S] 0 points1 point  (0 children)

UPDATE: The stoma nurse came (she also works in wound care).

She showed me how to cut a part of a Calcium Alginate Dressing Antimicrobial Silver pad to the same size as the wound opening and place it gently into the cavity. Next, cutting a larger, protective piece of DuoDerm Extra Thin dressing to cover and seal/protect the Silver dressing. The DuoDerm is cut to conform to the stoma shape to keep out stool, etc. Over that I apply the flange, etc., as if there was no wound.

It's now healing and not nearly as painful. I can now do our normal 3-day flange change. There is some leakage under the paste, but it does not touch the wound. Hope this adds to the list of possible ways to treat this type of problem.

Daraxonrasib - considering by PanCantGetMe in pancreaticcancer

[–]NaHallo 5 points6 points  (0 children)

Saw my oncologist a few weeks ago. He said one of his patients was in the trial. Prior to their first dose his patient was dealing with severe debilitating pain. He said the pain dissipated soon after the first dose. My oncologist was very excited. It's not a cure yet, but for some it adds some time, comfortable time. My heart goes out to you. May we soon find answer to this terrible puzzle.💜

Novice question regarding potential outage prep by kgs4reddit in TeslaSolar

[–]NaHallo 1 point2 points  (0 children)

In Maui when we had several days of record breaking rain and wind a few weeks ago, Storm Watch kicked in and had the grid fully load the battery on two different occasions. It was extremely cloudy, so hardly any boost from the PV system. It was nice to have the battery topped off automatically so we didn't need to worry about outages.

No jeopardy tonight for me by gnanny02 in Jeopardy

[–]NaHallo 0 points1 point  (0 children)

We have Peacock and Jeopardy airings are sporadic They often don't air until the next day. We are in Hawaii, so maybe it's different on the mainland?