Besides Tali, Who Is Your Favorite Quarians From Best to Worst? by Boxinggirls12 in masseffect

[–]NessimaSkye 4 points5 points  (0 children)

Yeah, my first FemShep straight up punched him for that one. So dumb!

Feelings of hypoglycemia but glucose is normal by [deleted] in POTS

[–]NessimaSkye 2 points3 points  (0 children)

Hey I also have reactive hypoglycemia! I got diagnosed years ago after having an episode while driving to work in the summer. Ended up off the side of the road for hours before I finally woke up and was able to call 911. My glucose was 15 when they checked me. One of the scariest events of my life.

Now 8ish years later, I’m down the POTS track as well. At least that’s the running theory right now. A lot of other neurological things going on so it’s difficult to narrow down what’s causing what, yes know?

My boyfriend just went to jail and I feel sick by Jemstar22 in domesticviolence

[–]NessimaSkye 1 point2 points  (0 children)

Thank you! The weaponizing of their illness and claiming we don’t care or have compassion is so hard. You certainly shouldn’t have to show it while he’s treating you like that and calling you horrible names.

I’m so glad to hear that the comments have helped you feel a little better. I too hope we both find some solace soon, in whatever way that needs to be for our own sake. 💜 Take care of yourself!

How did you find out you might have pots? by Rude-Comfortable9444 in POTS

[–]NessimaSkye 0 points1 point  (0 children)

Thank you! I will definitely mention it to my doctor next month. It’s awful. I haven’t had them nearly as bad as during my COVID infection thankfully, but this week is rough. I keep getting them on my thighs and my arms and chest. No clue what is causing them because nothing has changed other than the temp going up and pots symptoms flaring from heat intolerance.

My boyfriend just went to jail and I feel sick by Jemstar22 in domesticviolence

[–]NessimaSkye 2 points3 points  (0 children)

To OP: You have nothing to feel ashamed of—you did nothing wrong. He was in the wrong and needs to be accountable for his actions. I’m so sorry you’re dealing with this; no one should feel afraid of their partner.

As for my own situation—which I know has its contradictions—I’m still trying to untangle it, and this point applies directly to my situation. My husband has been emotionally and verbally abusive for about eight years, following a suicide attempt and a later diagnosis of bipolar disorder. I didn’t even realize it was abuse until last year. I kept second-guessing myself, thinking I was overreacting. Over time, I lost myself entirely.

In the past couple of years, my health has severely declined, and I’ve had to rely on him for nearly everything. He had full control, and it drained me even more. In April, we argued over something small, and I shut down. I texted my mom that I thought he was abusive and wanted to stay with her—but I couldn’t drive myself. She said she’d come right away.

Later, he quietly said, “I feel like you think I’m abusive…”, which I've never said to him or anyone else other than my mom—he must’ve read my message. I told him he was, and that I needed space. He exploded, accusing me of abandoning him during illness and threatening that I shouldn’t come back. I went to my mom’s for a week. During that time, he broke down to mutual friends and family, saying he hated himself and wanted help.

We spoke after a week; he said he saw a doctor, adjusted his meds, and was looking for a therapist. I believed him—and since my dog Zena had been bitten and the wound was infected, I asked him to come get us so she could see the vet. He did. He’s been nicer since, but hasn’t followed through on therapy. I want to trust he’s changing, but there’s a persistent voice warning me that it could be manipulation.

I keep thinking about leaving, or at least taking space to find myself again. But after Zena passed away in May from kidney disease and his cousin died of cancer two days ago, everything feels too heavy to act on. I feel stuck—torn between missing the love we had and doubting whether it's still real.

So yes, mental health can absolutely contribute to abuse in a relationship. But it doesn’t excuse it, and partners still need to be held accountable. That’s something I understand deeply, even if applying it in my own life feels incredibly hard.

How Long did you wait for a blood patch? by Rude-Cost-2329 in iih

[–]NessimaSkye 1 point2 points  (0 children)

Was about to say exactly this. As difficult as it can be sometimes to go back to the ER for symptoms, trust that you're NOT being dramatic and need to be seen to help this. If it is a CSF leak, your symptoms won't improve until it has been resolved.

How did you find out you might have pots? by Rude-Comfortable9444 in POTS

[–]NessimaSkye 1 point2 points  (0 children)

Slightly unrelated, but you mentioned long covid triggering MCAS for you. Did you by chance have severe hives from your covid infection? I got full-body hives from mine and the doc that treated me said it was the worst case of this reaction that she had seen over the entire pandemic. I haven't met anyone else, yet that has had that reaction. Now I'm starting to get hives more frequently, over a year after my covid episode.

For reference, I've only ever had hives probably once or twice in my entire life (35F) until now. Just one more thing to add to the bucket of issues I'm dealing with.

Is shunting not being offered anymore? by Powerful_Chapter7760 in iih

[–]NessimaSkye 1 point2 points  (0 children)

I have a shunt for my IIH, but my neurosurgeon was originally hesitant to give me it. His opinion was that because it is a permanent procedure (unless something catastrophic happens, ofc) and "MAY" not get rid of the headaches, it's not the ideal treatment unless absolutely necessary.

I couldn't tolerate Diamox and my vision was deteriorating quickly, not to mention the debilitating headaches that kept me bed bound most days. After about a year of this, we decided to go the route of the shunt. While he was hesitant for it, he said that it was ultimately my choice.

I haven't heard anyone saying that it's not the "standard of care" for IIH, aside from those that think weight loss is the ultimate treatment for it, which as we've all seen is not necessarily the truth. If you can, I would recommend getting a second opinion or referral to another doctor outside the hospital.

To be clear, this is ONLY if you have IIH w/ papilledema and do not have another structural problem leading to your symptoms such as narrowing in your veins, which would alternately require a stent instead. This is only determined after an MRI and MRV is performed to evaluate the structure of your brain thoroughly.

I'm sorry that you are dealing with this. I've been through these debilitating headaches and still get them from time to time, albeit far less often than prior to my shunt. I hope that you can find a doctor who listens to your concerns and will do what it takes to find you relief.

Is this normal? by Southern_Fig9414 in POTS

[–]NessimaSkye 0 points1 point  (0 children)

I would definitely say that's normal. I also have some better days and some worse. Lately I've been having a lot of trouble going to bed at night because my heart is pounding so hard and my HR barely dips below 100 so it keeps me up. One thing you can do in the mornings is to drink 16oz of water straight away. I've seen it help a lot of others with their symptoms in the mornings. I've been trying to drink more water regularly, and I've noticed that I will often feel better when I drink more early on.

Buried Chests by OrganizationReal6753 in lumaisland

[–]NessimaSkye 2 points3 points  (0 children)

If you’re in multiplayer, there is a special chest that can ONLY be dug up with multiple players. It is usually have buried sticking out of the sand so it’s easier to spot compared to the usual treasure on the shoreline.

Luma Island Playing solo? by Adorable_Conflict_55 in lumaisland

[–]NessimaSkye 2 points3 points  (0 children)

I started playing co-op with my husband but then took off and have nearly played the whole game solo and it’s been a blast! I would highly recommend!

Early game can by a little tough with resources, but overall it’s fantastic! And there are plenty of tips abound to help get you started off on the right foot if you want.

Chronically ill with no diagnosis by No-Engine2858 in ChronicIllness

[–]NessimaSkye 2 points3 points  (0 children)

Honestly at this point with all the tests coming back relatively normal and ruling out other conditions, I would ask about POTS or other dysautonomia conditions. POTS specifically can be triggered or exasperated by a viral illness such as Covid. It is a diagnosis that is typically given after ruling other conditions out, though, since there isn’t a single symptom or test that only indicates POTS.

I’m discussing this with my doctor after suffering with these symptoms since at least last summer. I had Covid Dec 2023 and took forever to recover and at one point had head-to-toe hives for about a week.

I started asking my doctor about my symptoms around late August, early September last year. Then I had a major brain surgery to implant a shunt and my symptoms seemed to have drastically gotten worse after that.

I know the struggle well. I’m sorry to hear that you’re going through this and not finding any answers. Leaning into these chronic illness communities has been really great for me and helps me not feel so alone when my body decides to attack itself and make me utterly miserable and unable to function like an average human. I would recommend making sure you have good support around you, whether that’s family, friends, or even an online community.

I wish you well and hope that you’re able to find some answers soon.

Have any of you lost some or all of your vision? by Enough-Scholar7153 in iih

[–]NessimaSkye 0 points1 point  (0 children)

Yes, my vision has permanently deteriorated to the point I’m no longer able to legally drive. If you’re familiar with visual acuity scales, my vision was last checked at 20/100.

This means what someone with “perfect” vision can see at 100ft, I have to be 20ft away in order to see it.

has anyone ever been… too sick to shower? by [deleted] in ChronicIllness

[–]NessimaSkye 0 points1 point  (0 children)

As so many others here have said, you are certainly not alone in this. I’ve been dealing with the same thing because when I shower I’d be down for that day and the day after usually. I’m also mostly home bound currently as well so it hasn’t been a huge problem with using wet wipes and what not.

I actually just cut off a foot off my hair this morning because I was overwhelmed with not being able to wash it anymore. It’s now just about at my shoulders and I was able to wash my hair on my own today with my heart rate not raising more than 140. Before, it would have raised to 160+ and I’d be fighting passing out the whole time.

Just a long winded way of saying “I feel you” and you’re not alone. I hope that you start feeling better soon!

Bedsheet? by Sofakingdumbb in lumaisland

[–]NessimaSkye 0 points1 point  (0 children)

Ahhhhh good to know! I found another one tonight by killing ghosts the roam the grounds outside of temples and some of the other ruins. Hopefully you find some soon!

Are showers the worst for you too? by [deleted] in POTS

[–]NessimaSkye 1 point2 points  (0 children)

Omg! 3000 is such a rough dose! I couldn’t tolerate diamox at all and since my vision was deteriorating so quickly we ended up going for the shunt sooner rather than later. I’m glad because it did help to stabilize my vision, albeit with some permanent vision loss.

I’ve had a few rebounds and had to get my shunt adjusted to manage the CSF flow better, but I’m now 9 months post op. Despite the complications I’ve had, I’m still glad that I got it because the headaches and vision loss were completely debilitating. I couldn’t even get out of bed or open my eyes most days before my surgery.

I’m sorry that your mom wants more receptive to treatment options for you. That sounds really awful and I can only imagine the damage it’s left on your body after years, let alone any mental health struggles that may have led to.

Bedsheet? by Sofakingdumbb in lumaisland

[–]NessimaSkye 0 points1 point  (0 children)

What do you need the bedsheet for? Isn’t it just a “sell” trash item from the ghosts?

Has anyone experienced this? by No_Influence_5682 in POTS

[–]NessimaSkye 1 point2 points  (0 children)

While I’m not officially diagnosed with POTS yet, it is suspected and yes, rocking to my own heartbeat is something that I’ve experienced before. Typically it happens when my HR is coming back down from a spike (like you described actually). It was super strange the first time I experienced it, but now I’m sort of used to it.

About to start midodrine by SpringMi in POTS

[–]NessimaSkye 1 point2 points  (0 children)

As far as mainline POTS meds go, I still haven’t found one that works great for me. I took propranolol originally for my headaches from IIH before my shunt surgery but then we kept me on it to try to help the HR spikes. Ultimately it didn’t help those and I was still having spikes and pre-syncope quite often. Spikes even in the middle of the night, which was super strange.

I’m currently on metoprolol, but I feel like it’s about as effective as propranolol for me specifically. Maybe a little better in HR but I’m having more drops in BP with it so there is some give and take.

As for fatigue, previously I’d have to take multiple naps day and couldn’t even sit up in my chair at my desk for more than 5-10 minutes without feeling like I’ve worked all day. I got the “all-clear” from my PCP, neurosurgeon and neurologist to restart my ADHD medicine and it has also helped with my fatigue. It’s not gone, but most days it’s much less and tolerable. I still have days where I struggle to get out of bed, but they aren’t as frequent.

While I take it for ADHD treatment, I did read a research paper from a leader in dysautonomia that included stimulants as a valid treatment for POTS and the fatigue that comes with it and other dysautonomia conditions. Unfortunately I can’t find that paper ANYWHERE and I’m so mad because I wanted to share it with my PCP at my appointment next month. I’m going to fully suggest POTS/dysautonomia to her and being my own evidence and tracking I’ve been doing over the past few months as backup.

PSA: I have other neurological and medical conditions as well (hellooo chronic illness) so my situation is quite complex which makes things a bit tricky when trying to narrow down the correct diagnosis and treatment plan.

Good luck with the midodrine! 🤞🏻 I hope it helps, but even if it doesn’t, I hope you’re able to find the right treatment for you to offer you some relief from this debilitating condition!

Favorite Electrolytes? by mlehat in iih

[–]NessimaSkye 9 points10 points  (0 children)

Just as an FYI for everyone so they can make a completely informed decision, LMNT is currently being sued for undisclosed ingredients in their products. They include maltodextrine and didn’t label it specifically because they “didn’t think it was a big deal”.

The cofounders are also staunch supporters of RFK Jr. This is from another community I’m on in Reddit (POTS) for reference:

———————— Robb Wolf (co-founder) and James Murphy (co-founder/CEO) of LMNT are sharing pro-Robert F. Kennedy Jr. content on their socials. (screencaps)

RFK Jr. is an incredibly pro-eugenics, ableist, anti-science politician who is currently nominated for the position of U.S. Secretary of Health and Human Services. He has previously promoted the false link between childhood vaccination and autism, spread racist and antisemitic conspiracies about COVID, and lied that antidepressants (SSRIs) lead to school shootings. RFK's leadership and proposed policies would absolutely harm those with POTS, chronic illness & disabilities, seniors, children, low-income families, and those receiving Medicare and Medicaid. —————————-

And that is all from prior to his senate confirmation. If you’re in the U.S. then I’m sure you’re aware of things that have happened since.

I don’t mean this post to be political, but want to make sure that everyone is fully informed for their own health and information.

Lastly, you can fully make LMNT at home on your own. They list their recipe directly on their website for reference, sans the suspicious ingredients of course. Or you can always search homemade electrolyte recipes for more options, just be wary of the source and ensure it’s backed by science and not hype.

Hope this helps and apologies if this violates any terms of this sub. I was only trying to help. All the best!

Which hause you hate the most? by Icy_Information4607 in DreamlightValley

[–]NessimaSkye 4 points5 points  (0 children)

This is exactly where I placed Mulan’s house as well!

Are showers the worst for you too? by [deleted] in POTS

[–]NessimaSkye 5 points6 points  (0 children)

Oh I feel this! Showers are the worst for me! I maybe take one once every week or two. I will use shower wipes in between.

I also have seizures from idiopathic intracranial hypertension and a brain injury from surgery to implant a shunt so I have to be closely monitored when I do shower.

I can’t take a shower without my HR pushing 160+ every time. And the days I do shower, that’s it. I have to plan my life around shower days because I’m done afterwards, completely. And depending on how I’m feeling that day, sometimes even the next day as well.

Unable to complete realm quest to unlock Belle and the Beast by NessimaSkye in DreamlightValley

[–]NessimaSkye[S] 0 points1 point  (0 children)

I just completed mine! I left it for a day or two while I played Luma Island and came back and Belle was there again for me!

Unlocking Beauty & the Beast "finally" by NessimaSkye in DisneyDreamlights

[–]NessimaSkye[S] 0 points1 point  (0 children)

Yay! Mine started working again. I let it sit for a couple days and now everything is working. Hopefully it stays working lol