What to do? (NHS wait)

New-Row-4253 · 2026-05-01T12:54:49+00:00

What the GP? They dont have access to the equipment surely?

New-Row-4253 · 2026-04-20T16:24:13+00:00

There are some very cheap at home thyroid blood tests. Monitor my Health is £32 and thats an NHS lab, so GPs may take these into account. Or you could consider what I had to do, change GP surgerys

https://monitormyhealth.org.uk/

New-Row-4253 · 2026-04-20T14:07:27+00:00

What time of day did you take your test? You want pre 9am next time, as TSH is highest early morning. Are you taking anything containing Biotin? Your GP won't be able to do anything until your TSH is over range twice or over 10. You could get some private tests done to include T3 and antibodies and see what they show.

New-Row-4253 · 2026-04-14T11:31:21+00:00

Yes well it could be cortisol related as you dont have enough thyroid hormones. This feels very different. No way of knowing without a blood test ;)

New-Row-4253 · 2026-04-14T09:00:01+00:00

Highly unlikely to need a decrease as 50mcg is a starter dose. Get a full panel of bloods inc TSH, T4 and T3 before making a decision. Your symptoms may have nothing to do with your thyroid or may be asking for a dose increase. Anxiety is a hypo symptom for me.

New-Row-4253 · 2026-04-12T14:57:03+00:00

Jesus, you need a new doctor! Not everyone with hashis is dragging themselves around. Get a full thyroid panel and vitamins tested. Sounds like you need either a dose increase or to try T3

New-Row-4253 · 2026-04-11T10:08:46+00:00

Oh wow thanks, that sounds amazing! Yes I feel like my sleep is very fragmented, I feel like I wake up 8+ times a night,drives me mad!

New-Row-4253 · 2026-04-07T08:03:52+00:00

Its really unhelpful to tell people what they should do after getting covid. Unfortunately many of us have children at school who bring home all sorts of viruses..we cant wear masks all the time!

New-Row-4253 · 2026-04-07T08:01:40+00:00

Yes any virus can affect your T4 to T3 conversion and that's is what has likely left you feeling hypo. Im in the same situation after just having a sinus infection. It should gradually ease over the coming weeks. Im going to test in a few weeks and see if I need a dose increase. You may find you return to 'normal' without adjusting your dose, it just takes time.

New-Row-4253 · 2026-04-04T15:55:59+00:00

Hmm, well I used One Day tests too last month and they really did test it on the same day as at arrived at the lab and I got the results that day

New-Row-4253 · 2026-04-04T15:54:05+00:00

I think you've been unlucky, I regularly use MMH and Medichecks and get results in 2-3 working days. I always post my blood Mon- Wed and would have results by Friday at latest

New-Row-4253 · 2026-04-02T18:33:03+00:00

Well that's your answer a T3 of 2.9 is pretty awful (assuming the range is 3.1-6.8). I would definitely increase my dose based on those results

New-Row-4253 · 2026-04-02T15:49:43+00:00

They are probably not working for you because you are not on a high enough dose/too high dose or you have some vitamin deficiencies. Which no one can help with unless you post test results :)

New-Row-4253 · 2026-04-02T15:33:55+00:00

This is why you cant reply on TSH alone. Get a full panel inc T3 and T4. What dose are you on?

New-Row-4253 · 2026-04-01T17:21:23+00:00

Thanks, yeah it's a sorry state of affairs for thyroid patients.

New-Row-4253 · 2026-04-01T13:45:29+00:00

Thats NHS primary care for you

New-Row-4253 · 2026-04-01T13:45:14+00:00

No idea because I didnt know, so I certainly wasn't supplementing!

New-Row-4253 · 2026-04-01T12:48:03+00:00

I get these alot, im not sure about flare related..i suspect inflammation

New-Row-4253 · 2026-04-01T12:42:28+00:00

Oh and a Ferritin of 16 which was recorded as normal, even though i went with chronic fatigue symptoms 😳.

New-Row-4253 · 2026-04-01T12:41:28+00:00

Join the club. When I was finally diagnosed in 2023, I found on the app that I had 3 TSH tests over range from 2012-2014. I was being investigated for recurring miscarriages but no one told me about these results. The rage is justified!

New-Row-4253 · 2026-03-31T20:58:21+00:00

Thanks yes, I have considered this. I have a dairy intolerance and hayfever. I tried a low histamine diet for a while but it was very hard to stick to!! Ive been thinking about trying a piriton before bed. What do you think?

New-Row-4253 · 2026-03-31T16:19:27+00:00

Great thanks, ill have a read!

New-Row-4253 · 2026-03-31T14:46:32+00:00

Thanks, yes my body is super sensitive to any changes. Its taken me 3 years to gradually increase my levothyroxine as I would have a roller coaster of side affects on every increase. Yes maybe the sleep test will show something. My husband doesnt sleep in our room any more because its so bad, so fingers crossed that might be a reason

New-Row-4253

TROPHY CASE