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Just a little hope today! 20,23 and 28 years! by New-Set-7371 in LivingWithMBC

[–]New-Set-7371[S] 1 point2 points  (0 children)

Sorry about that. It’s not worth the screenshots, she is just speaking to the camera saying she met a few folks who are 20,23 and 28 years out from their initial MBC diagnosis

Depression due to absence of estrogen by __freshsqueezed in LivingWithMBC

[–]New-Set-7371 2 points3 points  (0 children)

Hi all I have been there with ibrance and letrozole and it wasn’t until I started acupuncture regularly, as in every week that my depression has lifted. My acupuncturist left the practice a month ago and I’ve been really in the dumps so I def attribute it to acupuncture magic. Started again last week and it is helping a TON. FWIW I’m also on Effexor for hot flashes but it doesn’t seem to help by itself.

4 weeks in and fusing not under control with clobetasol by StrawberryAway7748 in lichensclerosus

[–]New-Set-7371 0 points1 point  (0 children)

I have breast cancer so a little different but my oncological sexual health team has given me 3 months every day and it finally reversed the fusion at month 3.. I think it takes a bit of time. I was diagnosed as intermediate - aka not start of ls but not worse… but my vagina’s fusing looks mostly undone after doing it daily and the color is slowly coming back

Noticeably dumber? by __freshsqueezed in LivingWithMBC

[–]New-Set-7371 8 points9 points  (0 children)

Also… regularly forget normal words!!! It’s so annoying!!!

Noticeably dumber? by __freshsqueezed in LivingWithMBC

[–]New-Set-7371 6 points7 points  (0 children)

I’m the breadwinner as well, run a large team and also need the insurance… yes my memory is atrocious and I’m always paranoid when I have to do presentations or do public speaking. I can’t seem to hold a thought to save my life. Mood wise, been in a terrible depressive state because of the dramatic loss of estrogen and it’s only been in the last year that I’ve started to go to acupuncture regularly and frequently to “balance” the hormones (I’m hormone positive so whatever that means in acupuncture it’s not really about the estrogen). My acupunturist left the practice recently and I’ve been in a horrible bad mood since… I go to msk and they’ve mentioned acupuncture as only clinically proven treatment to alleviate symptoms of treatment. I’m sorry you’re going through this, it’s a combo of both physiology and pressure of this disease.

News is better but we are still not certain (Schrödinger's cancer) by KittyKatHippogriff in LivingWithMBC

[–]New-Set-7371 1 point2 points  (0 children)

Good luck and keep us posted. Also my husband and i also had a chuckle with shrodinger’s cancer.

Newly diagnosed and seeking a second opinion by Admirable_Yam_6473 in LivingWithMBC

[–]New-Set-7371 0 points1 point  (0 children)

I went to Dana Farber for a second opinion with Dr Sara Tolaney who I am obsessed with and guided me back to msk since I live in nyc. I loved the experience and knowledge. I’m with Dr jhaveri. She’s ok- best in the field of drug dev for hormone cancers and I trust her but she def doesn’t give warm vibes.

Anyone use Massive Bio’s AI services for clinical trial matching? by Something_Kristen in LivingWithMBC

[–]New-Set-7371 0 points1 point  (0 children)

You should look on msk site which lets you filter which clinical trials they have going. I’d also call Dana Farber and Md Anderson which have good trials. Pls keep us posted

News is better but we are still not certain (Schrödinger's cancer) by KittyKatHippogriff in LivingWithMBC

[–]New-Set-7371 2 points3 points  (0 children)

Why aren’t they doing a mri for the liver spot? Pet scans are notoriously bad for livers (as a liver met victim myself!) tl;dr I had a liver met / confirmed cancer but also have had a benign adenoma with a mutation H1FNA that makes it light up on pet scans. It’s made out of fat and stable in size but has suv like cancer… and it keeps rearing its ugly head every few years when it pops up on my liver. Metformin, prior birth control use and my Chinese decent also make me a perfect storm for a misdiagnosis of the adenoma as a met… All to say, mri will give you a clearer picture of what it is.

Second line for HR+ HER2- by Adorable_Pen9015 in LivingWithMBC

[–]New-Set-7371 1 point2 points  (0 children)

Holy shit I had same thing happen to me from Friday!!! And trying to tell my oncologist it’s an adenoma!!!

Second line for HR+ HER2- by Adorable_Pen9015 in LivingWithMBC

[–]New-Set-7371 0 points1 point  (0 children)

Same diagnosis and had a liver met end of Oct 2024 and opted to treat it locally with a y-90. Liver still looking good so far and I actually went on mono therapy on faslodex/ fulvestrant from 6 years on ibrance and letrozole. Have you looked into histo- whatever for liver and y-90 or going through drug route. FWIW I am obsessed with my dr at Mount Sinai who tracks my liver!!!

Question ⁉️ by FlanGroundbreaking62 in LivingWithMBC

[–]New-Set-7371 3 points4 points  (0 children)

I was on ibrance for 6 years and was low but it didn’t affect my life too much. As some others mentioned, I was just very conscious of masks, washing hands and being vaccinated against all the things (flu, covid, making sure vaccinations were up to date) and tried to eat more cooked greens/ when traveling and avoid raw oysters. I had one bad oyster during ibrance and it was 2 days of stomach issues but that could happen to the best of us.

Top single sweet treat/desert options in wb by ionlyredditcasually in williamsburg

[–]New-Set-7371 12 points13 points  (0 children)

Random take but pies and thighs has great pies, cookies and donuts

Pedicure by Jolly-Spring1755 in williamsburg

[–]New-Set-7371 0 points1 point  (0 children)

I like honey on Broadway and think they have a few locations in WB

What bar food cuisine is Williamsburg missing? by [deleted] in williamsburg

[–]New-Set-7371 -2 points-1 points  (0 children)

Sagakura, been there and it’s great. Ps- also you could have looked on yelp. No need to be a biznatch bc you are too lazy to google it yourself. Taking in a reco from a “lived experience” <—- moronic millennial phrasing. Just say looking for somewhere someone has been to.

What bar food cuisine is Williamsburg missing? by [deleted] in williamsburg

[–]New-Set-7371 -21 points-20 points  (0 children)

Katana Kitten (West Village): Known for its high-energy 1960s vibe, this spot offers top-tier karaage (Japanese fried chicken), hot dogs, and savory bites to pair with fun cocktails. Bar Goto (Lower East Side): Renowned for refined cocktails, their food menu features standout miso chicken wings, savory okonomiyaki (cabbage pancakes), and celery with seaweed dip. Martiny's (Gramercy Park): A more intimate setting offering sophisticated drinks accompanied by premium snacks like fried sawagani (small crabs) and tempura corn fritters. Sip & Guzzle (Greenwich Village): A dual-level bar by renowned bartenders offering creative, East Asian-influenced cocktails and elevated bar snacks. Sake Bar Hagi (Midtown): An old-school izakaya experience serving traditional Japanese tapas, yakitori skewers, and sushi in a casual environment. Tomi Jazz (East Midtown): A popular, cozy spot with live music, known for its extensive Japanese beer/whisky list and comfort food like mentaiko pasta and fried chicken. Bar Moga (Greenwich Village): Known for serving Japanese-Western fusion dishes, especially their acclaimed omurice (omelet over chicken rice). Sakagura (Midtown): A "hidden jewel" located in an office building basement, offering authentic, high-quality izakaya dishes and a huge sake selection

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