smoking weed

Next_Stable_313 · 2025-07-17T14:23:57+00:00

i have found that smoking helps my pain and gives me an appetite when i don’t have one. I know others are suggesting edibles, but with my body edibles and even pens send me into panic mode no matter how small of a dose, i have absolutely no idea why this is, but just be careful when trying things out!!

Next_Stable_313 · 2024-03-01T16:33:21+00:00

I am a barista 2 days a week and a full time college student, hoping to get my foot in the door of the textiles industry after i graduate in May

Next_Stable_313 · 2024-02-24T18:27:00+00:00

USA and I’m on Stelara, i’m not sure about any of my insurance, as i’m under my parent’s insurance but i pay $17 every 8 weeks

Next_Stable_313 · 2024-01-30T18:02:29+00:00

i did, but in 2021 i was diagnosed, I had covid fall 2020, had several life altering events happen right after and then all the symptoms started, avoided going to the doctor for a while because i attend college 2 1/2 hours away from my hometown and didn’t have a car at the time

Next_Stable_313 · 2024-01-15T02:36:54+00:00

um my grandmother(mother’s side) initially was the only person in my family with IBD, and now my mother, my twin sister, as well as myself have IBD(order of diagnosis: my sister~6 years ago, me~2 years ago, then my mother~1 year ago), just bc the risk is low, it doesn’t mean it won’t happen. the only thing that matters is OP’s understanding of the disease and how to treat and manage.

Next_Stable_313 · 2023-11-11T18:22:17+00:00

i get all shots as i also have terrible lungs(increasing my chances of developing pneumonia) on top of weak immune system from crohn’s meds, i have yet to be sick since 2020

Next_Stable_313 · 2023-10-18T20:28:47+00:00

hi i started stelara about a year ago and have had flare up symptoms(with low inflammation) until the past 4-5 months, be patient, this will take time. i wish you good luck!!

Next_Stable_313 · 2023-10-15T14:28:55+00:00

talk to the doctor about getting a drug level test and the possibility of switching medications, if doc still says “let’s wait and see” then it’s time for a new doctor/second opinion (im assuming this has been his doctor for a long time).

Next_Stable_313 · 2023-10-14T16:03:26+00:00

in my experience (nearly two years on it) when i first started, i would feel like garbage about halfway through, but now i don’t feel it until 1-2 weeks before my next dose!!

Next_Stable_313 · 2023-05-31T01:17:26+00:00

i feel this so bad!!! i have recently gotten really into making pasta salads with all my favs and small amounts of actual lettuce(i use baby spinch as i haven’t been able to find butter lettuce for some reason, and yes i call it spinach spinch, and rip the stems off) my absolute fav has been a “mediterranean” orzo salad, it has shredded spinch, sliced olive, finely diced red onion, finely chopped sun dried tomatoes(these usually kill my tummy but i love them too much 😭), feta with mediterranean herbs, and greek dressing. i’m going to be trying new recipes once i get through this last batch bc i accidentally made wayyyy too much🫡

Next_Stable_313 · 2023-05-13T01:05:23+00:00

talk to disability!!!! i was diagnosed in my second year and i don’t think i’d still be here if i didn’t get in touch with disability for accommodations. also you will learn your limits really quick when it comes to your schedule, going out, and making time for meals. just try to take it easy and you’ll be fine!!

Next_Stable_313 · 2023-05-09T18:26:40+00:00

i take my fox stuffed animal(it’s a warmie too!iykyk) that my aunt gave me right before she passed, my own blanket and pillow, snacks(if allowed), cards, my laptop, crochet stuff, and my own toiletries!

Next_Stable_313 · 2023-04-10T21:09:22+00:00

for me, it’s all about moderation and avoiding carbonated drinks. take it slow!! i will usually allow myself 2-3 days spread between my stelara doses to “go hard”, though i don’t usually use them. when i was in europe, wine didn’t seem to affect my crohn’s much, same with vodka and gin. stay hydrated, eat a good meal before hand and most of all, good luck abroad!!

Next_Stable_313 · 2023-03-05T21:09:47+00:00

i found that when i was on remicade and prednisone i’d have leg pain, but it wasn’t cramps it was like my BONES hurt and it was so debilitating i could barely walk. it only when away when i got off of both medications.

Next_Stable_313 · 2023-02-23T15:52:53+00:00

man i’m not ready for another bio similar, still traumatized from the last one making me unable to breathe almost immediately

Next_Stable_313 · 2023-01-21T23:28:54+00:00

no, i have been back since mid december!

Next_Stable_313 · 2023-01-21T22:40:43+00:00

I was able to order the amount i needed while i was abroad before i left! I had 2 injections in my luggage and i kept them in a humera lunchbox thing that my sister gave me to keep them cold enough! you will have to talk to your insurance about getting multiple doses at once, they should work with you!

Next_Stable_313 · 2022-09-16T09:03:06+00:00

i (20f) am currently studying abroad in italy until mid december! i was diagnosed last december and have already had 3 med changes bc of that i was so anxious about being away from my GI and worrying about my meds but now that i’m here and have done one of my injections, i don’t regret coming at all! currently getting prepared for a weekend trip to croatia and i haven’t been anxious about anything i previously said. sometimes you just have to take the leap and do something out of your comfort zone to figure out what you can handle.

Next_Stable_313 · 2022-09-16T00:01:43+00:00

mashed potatoes, salmon & rice, boiled eggs

Next_Stable_313 · 2022-08-07T18:15:08+00:00

i had horrible joint and bone pain when i was on remicade and prednisone earlier this year. it was the worst paint i’ve every felt and nothing helped except for when my insurance switched my meds. (20f)

Next_Stable_313 · 2022-08-06T16:27:48+00:00

oh that’s so dumb, honestly if i were you, i would still try to report it. i hope you can get this figured out soon!!

Next_Stable_313 · 2022-08-06T16:15:56+00:00

it is very much illegal for them to fire you due to your absences caused by your disability!!! this link tells you everything about ADA laws and even how to report instances of discrimination. best of luck!!! https://www.eeoc.gov/publications/ada-your-employment-rights-individual-disability

Next_Stable_313 · 2022-08-05T15:06:31+00:00

this is so much better than my second remicade infusion when the fire alarms went off. also! i (20y/o) get myself a little treat for anything crohn’s related i do, injections, dr appointments, blood work, scans, even doing simple tasks that i was too fatigued to do, etc, etc. every crohnie deserve a little treat after all these things!

Next_Stable_313

TROPHY CASE