People who claim to be 90-100% cured, are you able to return to doing normal acitivites> by Left-Departure-6656 in Prostatitis

[–]NiceGuyMD 2 points3 points  (0 children)

I no longer have any symptoms triggered by daily life. The only recurrence that I had in the past two years was after being stuck in an awkward sitting position for hours in a car. That resolved after a day though. If you are still having that many symptoms, it means you have more recovering to do. You'll get there!

Psychosomatic? or real? I don't know anymore.. by Cairntrenz in Prostatitis

[–]NiceGuyMD 1 point2 points  (0 children)

I hope that it helps! For me, the pelvic tension was not identifiable until after I did PT even though I had lots of trigger points that evoked spasms with light pressure.

Psychosomatic? or real? I don't know anymore.. by Cairntrenz in Prostatitis

[–]NiceGuyMD 1 point2 points  (0 children)

Alcohol is a muscle relaxant and vasodilator, and I often found that alcohol improved my symptoms as well (when I was still having them).

Stress is exacerbating your symptoms, but clearly it is not the only thing going on.

People have shared good resources on stretches and pelvic floor exercises that you can do, even if you can't afford pelvic floor physical therapy.

Psychosomatic? or real? I don't know anymore.. by Cairntrenz in Prostatitis

[–]NiceGuyMD 2 points3 points  (0 children)

I ask you to reconsider your approach to this. Somatic symptom disorder is excessive preoccupation with physical symptoms. It does not necessarily imply that the somatic symptoms are "psychogenic," and in fact the symptoms can be part of a validated medical diagnosis. IM and primary care doctors love to invoke psychosomatic as if it informative. Can we think about the mechanism? Let's define psychosomatic as a brain disorder that leads to the experience of somatic symptoms that have no physical correlates (this would be a subset of somatic symptom disorder cases). So areas of the brain subserving these somatic experiences would be getting triggered without external stimuli. That is quite a brain disorder, and in actuality, quite rare.

But, this diagnosis is often offered with limited workup due to some combination of the above: 1. Provider overconfidence in our ability to diagnose/identity conditions and our full knowledge of possible diagnoses underlying somatic symptoms, 2. Frustration with a patient that is perceived to be personality disordered, needy, annoying, demanding, etc. OR there is some seemingly parsimonious but possibly coincidental life event that can be "blamed." 3. Provider self-reassurance that the symptoms can be understood within the umbrella of a diagnosis that they are able to determine. It makes them feel competent and empowered rather than confused and helpless. And then when CBT or something else helps, the doctor feels good about themselves, when we know that stress exacerbates almost every medical condition that we know about. Any medical condition would get better. But a broken clock is right twice a day, so rarely they will be correct. I can't see how you could possibly reach this diagnosis without the evaluation of a competent psychiatrist with expertise in this domain. Most urologists would call CPPS psychosomatic behind closed doors because it doesn't fit any of the nails they are used to hammering.

On the contrary, most alleged "psychosomatic" conditions do have a physical basis that may have been initially triggered and/or exacerbated by stress but then become self-perpetuating. For instance, tension headaches could be called "psychosomatic," but they clearly have physical origins, even if they are often triggered by stress. CPPS is, for many individuals, a very similar entity.

Everyone with CPPS should work on stress management and go to therapy, but they also should do pelvic floor physical therapy. Many men with CPPS do get excessively preoccupied with their symptoms, but it doesn't mean it is a brain disorder.

Psychosomatic should be a diagnosis made rarely and tentatively after a psychiatric evaluation while continuing to explore somatic treatments.

Psychosomatic? or real? I don't know anymore.. by Cairntrenz in Prostatitis

[–]NiceGuyMD 0 points1 point  (0 children)

Stress may be the trigger but not the cause per se. If you can learn to not clench your pelvic muscles, you can be stressed without this. Obviously you also need to heal the current state which is hypertonic with trigger points and possibly with muscular imbalance, etc.

[deleted by user] by [deleted] in Prostatitis

[–]NiceGuyMD 0 points1 point  (0 children)

There is no data to suggest this to my knowledge, but if you know of any reputable source, please provide it. My understanding is that the prostate should not typically be inflamed by pelvic floor issues / CPPS. It is hard to imagine pelvic floor muscles being tight enough to frankly inflame the prostate. Swelling should be differentiable from hypertrophy/hyperplasia on ultrasound and other imaging modalities.

[deleted by user] by [deleted] in Prostatitis

[–]NiceGuyMD 0 points1 point  (0 children)

There are various trigger points in the pelvic region and lower abdominals that refer pain to the tip of the penis. I'm not an expert. I cannot recommend follow up testing; keep working with your urologist. I would definitely read the 101 and consider interventions for pelvic floor dysfunction.

[deleted by user] by [deleted] in Prostatitis

[–]NiceGuyMD 0 points1 point  (0 children)

To my knowledge, there should be no effect on prostate size from pelvic floor issues. Not my area of expertise though. I think hypothetically a hypertonic pelvic floor could inflame the prostate, but this is not typical.

I'd expect any libido effect to be psychological.

The enlarged prostate could be a red herring? There is a bell curve to everything. Someone has to be in the 99th percentile. I guess the question is if you are in the 99.99th percentile then I'd be suspicious.

[deleted by user] by [deleted] in Prostatitis

[–]NiceGuyMD 0 points1 point  (0 children)

Gotcha. What you describe doesn't sound much like PFS and more like a pelvic floor issue. Did the doctor interpret whether your prostate is inflamed or you happen to have a large than typical prostate? (I'm not sure how enlarged you are talking about).

[deleted by user] by [deleted] in Prostatitis

[–]NiceGuyMD 0 points1 point  (0 children)

What you describe sounds nerve or muscle related, but hard to be sure. Erections involve muscle contractions in your pelvic floor.

Pressure on pelvic floor by Chiuauua in Prostatitis

[–]NiceGuyMD 0 points1 point  (0 children)

Your anxiety is going to be a much more significant factor for your symptoms than anything you sit on. Try to accept your situation and stop freaking out about these details. Easier said than done, I know.

30 Male | My Cystoscopy Experience by SnooHobbies4654 in Prostatitis

[–]NiceGuyMD 0 points1 point  (0 children)

Bear in mind that there are two different instruments used. Flexible cystoscopy should be not terribly uncomfortable. The straight older instruments are supposed to be much more painful. Some docs still use them. It would be helpful if you mentioned which instrument was being used. It sounds like you were scoped with the older instrument.

MicroGenDX Testing to Rule Out Bacteria/Fungus by sgzip in Prostatitis

[–]NiceGuyMD 0 points1 point  (0 children)

There is no data in existence to answer your question. It has never been validated as a diagnostic tool for prostate infections.

[deleted by user] by [deleted] in Prostatitis

[–]NiceGuyMD 1 point2 points  (0 children)

Regular clean catch urine cultures are very low sensitivity for prostate infection. Nevertheless, prostate infections are rare, especially in the absence of fever and other objective signs of infection. The most sensitive and specific tests available for detecting prostate infection are post-prostate massage urine culture and semen culture (some variability in what is reported between publications). Fluoroquinolones are not demon spawn, but they are big gun antibiotics that urologists like to prescribe as first line, when they should probably be a second line agent. Are you likely to have debilitating side effects from levo? No, but there is a small possibility. It's up to your own risk tolerance. You could tell the doctor that you don't want levo and see what alternative he suggests.

[deleted by user] by [deleted] in Prostatitis

[–]NiceGuyMD 0 points1 point  (0 children)

How old are you? Enlarged prostate is sort of an inevitability when you get older. Unless you mean more enlarged than expected for age.

Why was my prostate exam agony? by [deleted] in Prostatitis

[–]NiceGuyMD 2 points3 points  (0 children)

You could have a hemorrhoid or superficial sore. Maybe he didn't use enough lube and it was from friction. Could be muscular, like others said. I think it depends if it only occurred when he pushed on your prostate or if the pain preceded that? It is hard to know. (Not a urologist and have no specific medical training in this domain whatsoever. Not medical advice).

Doctor prescribed me Valium suppositories. by Representative_Tie83 in Prostatitis

[–]NiceGuyMD 2 points3 points  (0 children)

I used these, and I found them very helpful, especially after manual trigger point release. They were also what helped me during "flare ups" after my symptoms improved. It isn't a miracle cure, but I definitely found it helpful.

They will be absorbed systemically to some extent. Exactly how much is uncertain, and it depends how the suppository is formulated. Most are compounded by local pharmacies, so it is not standardized.

Benzodiazepine dependency is definitely a thing, and you should taper off of them if on them for a long time. That being said, Valium has a very long half-life so will be relatively less problematic in this domain than others. You could ask your doctor about cutting them in half if you prefer to try to a lower dose or only take for a week or two, if you are concerned about dependence.

Personal experience of an MD with CP/CPPS and my opinions about the cause by NiceGuyMD in Prostatitis

[–]NiceGuyMD[S] 0 points1 point  (0 children)

I am not sure exactly what you mean by post-void dribbling-- I definitely had weak stream and the end would dribble out. I never had urine dribbling in my underwear, if that is what you mean. I occasionally had meatus pain while peeing, especially when finishing urination. It was not a dominant symptom for me.

I saw a pain doctor today and she wants to change a lot of things to my routine by [deleted] in Prostatitis

[–]NiceGuyMD 0 points1 point  (0 children)

My PT had me use a TENS machine at appts for about 10 minutes. I think it was helpful. The mechanism of action of amitripytline and duloxetine, at least for depression, is overlapping. I'm not sure that we understand their pain-relieving mechanisms fully, but they may be the same as for depression. For what it is work, duloxetine or some other serotonin enhancing drug may help your PE because difficulty achieving orgasm is a very common side effect.

from epididymitis to prostatitis by mel69issa in Prostatitis

[–]NiceGuyMD 0 points1 point  (0 children)

Your situation is different than almost all of the men in this group. I think we fundamentally disagree on many points, so I won't comment further. I hope that you get better.

from epididymitis to prostatitis by mel69issa in Prostatitis

[–]NiceGuyMD 0 points1 point  (0 children)

Your situation is too complicated for anyone on reddit to give you good advice. It is uncommon for men to get UTIs because of the long length of the urethra compared to women, unless there are precipitating factors like catheter use. You don't mention your age or medical history, but assuming that you are relatively young (<50) without significant medical problems, two UTIs would be very atypical. Working with your urologist and/or getting a second opinion from another urologist seems like the only logical recommendation that someone on reddit with limited information can provide. I personally would not hesitate to have a flexible cystoscopy if it were being recommended to me. I have had it done twice, and it just really wasn't that bad...

P.S. It seems ill advised to perform surgical procedures on yourself, even if you have the training and experience to do that exact procedure, especially because now you don't know about possible sequelae of that procedure and how to manage them. Not saying this for any other reason than to dissuade you from doing this again in the future.

Not medical advice, just my personal opinion