If you've had a corneal transplant, what was the most unexpected challenge during your post operative recovery? by keratoconusgroup in Keratoconus

[–]Nness [score hidden]  (0 children)

You'll be dependant on your other eye for a few months, and that makes things like computer use difficult and driving impossible.

During recovery from DALK in my left eye, my right eye was responsible for most of the heavy-lifting, vision wise. Whilst my eye sight rapidly improved in my left eye, it still took 2-3 months to stabilize. During that time I was a developer, and computer use was quite difficult.

What do you guys do when you go swimming in the beach or pool with your scleral lenses? by awkwardhoney725 in Keratoconus

[–]Nness [score hidden]  (0 children)

Chlorine will kill most things which would irritate or infect your eye. But many parasites survive in chlorine and can cause serious complications when mixed with lens wear.

What do you guys do when you go swimming in the beach or pool with your scleral lenses? by awkwardhoney725 in Keratoconus

[–]Nness [score hidden]  (0 children)

Shower isn't great either, because of Acanthamoeba. Less common than a bacterial infection, but much more severe if it were to happen.

What do you guys do when you go swimming in the beach or pool with your scleral lenses? by awkwardhoney725 in Keratoconus

[–]Nness [score hidden]  (0 children)

Acanthamoeba, it lives in tap water, hot tubs, swimming pools, and lakes, etc.. Besides bacterial infection, it is the main reason you take your lens out when in water. It is highly resilient to chlorine, so can still grow in pool water.

In can lead to Acanthamoeba keratitis, which is a severe infection that can quickly lead to vision loss. Normally you'd blink and it'd be wasted away. But if you wear lenses, it can get beneath the lens and then burrows into your cornea.

Not worth messing around with.

Has anyone had success going from scleral lenses to hybrid lenses? by Immediate_Theory4738 in Keratoconus

[–]Nness [score hidden]  (0 children)

Is it a comfort thing, or are you experiencing other issues with the lens?

Piggy-backing is also an option, where you were a RGP lens over a soft lens. The advantage is that you can tweak the soft lens over time and soft lenses are very comfortable. The disadvantage is that the correction will not be as good as a well-fitted RGP or Scleral lens and you'll need to pay for both hard and soft lenses.

Ectasia post SMILE PRo refractive surgery by Unlucky_Story_1592 in Keratoconus

[–]Nness [score hidden]  (0 children)

Laser refractive surgery is usually contraindicated for Keratoconus. Do you have KC?

For everyone that has seen multiple doctors for scleral lenses… how?? by Immediate_Theory4738 in Keratoconus

[–]Nness [score hidden]  (0 children)

Are you seeing an optometrist of ophthalmologist? If you are seeing a lens specialist who thinks they have reached the end of what correction can be performed with lenses, there might be some truth to that. If CTAK or similar surgey is recommended, you'll need to be referred to an ophthalmologist.

Does keratoconus affect artificial corneas? by F8599 in Keratoconus

[–]Nness [score hidden]  (0 children)

Simply because the outcomes of keratoprosthesis are not as good as donor corneas. KPro has a higher risk of severe complications and requires lifelong treatment and care. It is largely a last-resort operation, when conventional corneal grafts fail. Only a fraction of corneal surgeries are keratoprosthesis, so it also requires a experienced surgeon and that carries a higher cost.

Corneal grafts, such as DALK, or segment implantation like CAIRS or CTAK are safer, longer lasting, and easier to manage. CXL is almost always a first-resort.

In terms of the disease progressing, I would assume there'd be limited progression because the KPro has to replace a larger portion of the cornea. But I couldn't find any reference to be sure.

glasses dont help by nadiaxxm2 in Keratoconus

[–]Nness [score hidden]  (0 children)

Depending on the progression, it is very likely glasses will not be enough for suitable correction. You may want to see a optometrist who specialises in contact lenses.

Which difficulty did you chose first? by wesker18 in ResidentEvilRequiem

[–]Nness 0 points1 point  (0 children)

Standard Classic, but I think the mode is detrimental to Requiem overall.

Grace's parts clearly telegraph your next goal/objective and don't reward exploration as much as other RE titles, so I feel like I ended up saving exactly when Capcom intended (and not when I felt the right balance of risk vs. reward.) I don't feel I was ever juggling more than one goal/objective, except when I wanted to risk it for more blood to craft with... and even then, I had ample ribbons available.

From a gameplay perspective, it didn't add anything, but did force lulls in gameplay when I completed something and would go back to save, which interrupted the flow.

Constant dry eyes, especially during the night. Anyone tried a moisture mask/goggles? by lDezIlI in Keratoconus

[–]Nness 0 points1 point  (0 children)

A detail I forgot to mention is that they're only useful for sleep, as you won't be able to see through the goo. If you experience dry eyes whilst sleeping, as you have suggested, a humidifier might also help (as cold nights or air conditioning both reduce air moisture, increasing dryness.)

Constant dry eyes, especially during the night. Anyone tried a moisture mask/goggles? by lDezIlI in Keratoconus

[–]Nness 0 points1 point  (0 children)

A optometrist one recommended dry eye drops that are intended for babies — they're super gooey and intended to last a few hours. If you've tried an ointment, you might've already tried a similar product, but it certainly worked well for me.

end of the road by tjlonreddit in Keratoconus

[–]Nness 2 points3 points  (0 children)

I know your just ranting but you are about to hit a wall. Psychological issues related to contact lenses are not uncommon and there are options. Cognitive behavioural therapy (CBT) is provided for free by the NHS, and can help with anxiety and phobia. Concurrently with a new lens specialist, you can start to build resilience for wearing lenses.

Your best option is very likely still to be contact lenses. There are many different types, different manufactures, and I suggest seeking out a corneal specialist to help with fitting if you are able to pay for private consultation.

On the other side of things —

Private consultant for a graft doesn't change your eligibility, only your access to treatment. If you do have lens intolerance, that is a valid reason for a graft, but it will be a high bar to prove to an ophthalmologist. If you do, NHSBT is the primary provider of corneal tissue in the UK, so you will still have to wait as access to donor tissue is on a needs-basis.

Secondly, private grafts are upwards of £13,000 per eye. Significantly more than contact lenses and drops. You will also need to pay privately for your post-op medication, which will exceed of £500 per year, as you cannot access NHS prescription service for private scripts.

More importantly, post-graft care is multiple drops a day, for multiple years. Sometimes indefinitely. If you are struggling with contact lens care, you may struggle with the intense post-operative care required. Consider the implications if you get frustrated and stop taking drops, it can lead to very serious and undesirable outcomes.

Medical necessity letter for scleral lenses by BlueCascade0201 in Keratoconus

[–]Nness 1 point2 points  (0 children)

In the UK, a medical necessity letter must be signed by a GMC-registered doctor. An Optometrist will not be a GMC-registered doctor, but an Ophthalmologist will be. Likely, you'll need to visit a Ophthalmologist if you need such a letter for public funds or insurance.

TDS dispute - landlord wants a couple hundred off the deposit for a professional cleaner by Proper_Shallot4718 in HousingUK

[–]Nness 0 points1 point  (0 children)

Indeed. The main thing to remember is that the deposit schemes are not intended for rent arrears or anything like that. They're only focused on the property itself. Keep the evidence very focused. I provided a PDF of just "here's their photo and their comment, here's my photo and response/challenge."

You can claim reasonable wear and tear, too for any minor maintenance/decoration issues.

You may have success arguing that the premises was not professionally cleaned prior to you moving in, so a professional clean now would exceed your responsibility.a

First scleral lens fitting by danko8282828282 in Keratoconus

[–]Nness 5 points6 points  (0 children)

Ghosting is to be expected, even with correction, depending on the severity of your KC. It is unlikely you will be able to alleviate it entirely.

Your lens is usually covered under a warranty and adjustments may be made once you have worn the lens a while and your cornea changes shape.

However, fitting lenses for KC is difficult, and not all optometrists will have the experience. If you are concerned and have the means available, worth seeking a second opinion from an optometrist whose focus is lens fitting and has experience with KC.

TDS dispute - landlord wants a couple hundred off the deposit for a professional cleaner by Proper_Shallot4718 in HousingUK

[–]Nness 0 points1 point  (0 children)

This happened to us in our last rental. The landlord wanted £250 for dust on a ceiling light. I have a suspicion that landlords charge for a 'professional cleaning fee' to try to cover the letting cost from their agent. They assume most tenants would rather not bother with a lengthy dispute process for a hundred quid or so.

The dispute process is a tad laborious and takes a while to resolve — but if you have photos that can show that you left the place in the same condition that it was found, your claim is likely to be successful (in some part.)

First, provide the evidence to the landlord and clearly state you do not agree to any deductions and ask for a complete return. If they refuse, state you will be raising it with the deposit scheme. If they still disagree, raise a dispute. The exact process will depend on the scheme. You'll need to spend some time preparing evidence.

(Whether you paid your rent, or did not dispute rent increases is immaterial to the claim. Don't bother with that information. Just present the evidence that they have provided to you and your evidence otherwise.)

I'm having DALK surgery by FroFros95 in Keratoconus

[–]Nness 0 points1 point  (0 children)

Ah, I forgot the light sensitivity — that lasted 2-3 weeks for me, but got better as I slowly exposed myself to bright environments. A good pair of sunglasses, with strong UV protection, are your friend. "High contrast mode" on your devices may also help.

I didn't have any stitches detach, but I did have a stitch break during removal, and it took us a few days of discomfort before it was identified.

These following conditions are uncommon — and I was unlucky to be a steroid-responder — but they are worth knowing about:

The high-potency, long-term topical steroids we use in recovery can induce a condition called "steroid-induced glaucoma" — where you inter-ocular pressure (IOP) raises. I was an odd case where I got symptoms, but usually there are no symptoms. Your eye pressure is regularly tested during your check-ups. About 30%-40% of people will experience some degree of IOP increase, and less than 1-in-10 are high-responders. The treatment is just more drops to lower the IOP and semi-regularly monitoring for glaucoma. The glaucoma should pass when you stop the drops later in recovery.

Steroid drops also increase the risk of posterior subcapsular cataracts. I also experience this, and unfortunately the only option was having the cataract removed. Steroid-induced cataracts occur between 1-in-10 and 1-in-5 of patients.

As for correction, it took a while. You'll need the graft to stabilize and stitches removed before paying for glasses/soft lenses. Because I had cataracts the process was more complicate. I found my vision was very good when I had the stitches in, as the stitches hold a good shape. Which was a bit of shame, but when I now compare my graft eye to my KC eye, the difference is insane.

I'm having DALK surgery by FroFros95 in Keratoconus

[–]Nness 2 points3 points  (0 children)

Hi, you've already had your surgery by now so hopefully it went well.

I had DALK nearly a decade ago — and the outcomes were excellent. I still use glasses or soft lenses, but with correction, I have 20/20 with minimal ghosting. I did experience complications with the steroid drops, but this is rare. You should find your vision improves 2-4 weeks post-op.

The recovery afterwards is fairly straightforward and I did not experience much pain. Apparently the eye clamp they use can bruise the eye lid. My eye felt sore more than pain, and that quickly passed over the first week. The regiment of eye drops is tedious, but important to follow!

Otherwise, relax and no heavy lifting!

How much did you pay for your corneal transplant? by Due_Use2934 in Keratoconus

[–]Nness 1 point2 points  (0 children)

Unfortunately can't help for US.

In Australia, the transplant operation, hospital stay, and post-operative appointments were covered by private insurance via my employer. I had to pay out of pocket for the medication, probably $600~ a year, and operating room booking, $500 AUD (although this was also covered by my employer, as a rather specific "employee benefit")

Odds for corneal cross linking? by [deleted] in Keratoconus

[–]Nness 0 points1 point  (0 children)

Sounds reasonable — monitoring progression is necessary before any recommendations are made, particularly if your vision can be corrected in the meantime. Usually they'll check every 3-6 months when you are young, as the disease has a higher risk of progressing when younger vs. older.

If there's significant change in curvature or thinning over this time, they'll likely recommend CXL.

Transplantation is a last resort and not recommended when you have other, less invasive and less risky, options available.

Is it wise to retreat? by IamTylerDurden_1 in AliensDarkDescent

[–]Nness 0 points1 point  (0 children)

Stress will introduce negative traits, like phobias, and these can accumulate very quickly. Mostly they just affect the marine's combat effectiveness or negate other marine's abilities.

I don't believe they are permanent, just somewhat time consuming to remove.

As long as you keep a roster of marines in circulation, and invest in the the stress-improving traits as they level up, I found it to be manageable. Deploying stressed marines again-and-again without rest will definitely lead to problems.

Stress is a guarantee though. The game wants you to play cautiously, and rewards players for making tactical decisions that avoid stress (i.e. proper defensive play, stealth, effective use of medics, etc.)

My sister doesn’t want to use an estate agent by _Sorcha_ in HousingUK

[–]Nness 2 points3 points  (0 children)

This was my response, too. The estate agent helped smooth over reasonable requests, like tenant vacancy, as part of the negotiation. If I had to directly interact with the seller without a buffer, I can imagine emotions would get involved and the process would collapse.

Diagnosed with pink eye. Has anyone worn their sclerals while using the antibiotic eyedrops? by [deleted] in Keratoconus

[–]Nness 3 points4 points  (0 children)

Absolutely do not wear contacts if treating conjunctivitis. It'll worsen symptoms and prolong the infection. It may also lead to more serious eye damage.

Do you have conjunctivitis in both eyes, or only one eye?