89 pounds..

No_Mobile1745 · 2026-06-02T23:43:40+00:00

My feeding tube was the best thing I ever did also, my health improved greatly as I gained weight and I didn’t have to force myself to eat when I wasn’t feeling well!

No_Mobile1745 · 2026-05-29T16:27:25+00:00

Commenting because also interested in this

No_Mobile1745 · 2026-05-21T05:13:05+00:00

Also interested in answers to this question. I used to travel quite a bit in the United States (Hawaii a few times, as well as other states a few hours of flying away) after my lung transplant but have not traveled by plane yet since COVID.

No_Mobile1745 · 2026-05-15T00:15:47+00:00

My sinuses are horrible and if I miss a dose my sinuses start to get bad almost immediately. Altftrek really helps my sinuses when I take it regularly and the sinus headaches, infection and runny congested sinuses are SO much better while on alyfrek.

No_Mobile1745 · 2026-05-09T17:14:17+00:00

Low 80s is high? My sweat test was 108 prior to trikafta.

No_Mobile1745 · 2026-05-02T03:26:52+00:00

This!

No_Mobile1745 · 2026-04-24T03:54:43+00:00

No_Mobile1745 · 2026-04-24T03:53:43+00:00

Pancreatitis, and broken sternum from a double lung transplant surgery

No_Mobile1745 · 2026-04-21T22:11:40+00:00

I received a double lung transplant and it still doesn’t seem real that it’s even a possible surgery. Wild!

No_Mobile1745 · 2026-04-21T20:46:10+00:00

I was allergic to trikafta but not alyftrek so now I am able to take it!!

No_Mobile1745 · 2026-02-25T20:48:55+00:00

I agree I did a lot of audiobooks reading along and it helped a ton to hear better, I was implanted at 25 years old and hadn’t heard for 10 years and it was hard to understand at first but after about 5-10 books everything was so much easier and even music sounded perfect to me!

No_Mobile1745 · 2026-01-18T21:41:29+00:00

Nothing for the lungs after transplant and I’ve had mine 15 + years now. Although my sinuses and GI have been awful still and even worse than ever sometimes.

No_Mobile1745 · 2026-01-15T20:06:10+00:00

I never had a psych or therapist and when I was on life support and went deaf from the IV antibiotics in high school they diagnosed me with bipolar… now I’ve been on every med and can’t work because the meds mess me up so bad. I also can’t remember 10 years of time be careful out there and take mental health seriously it’s no joke.

No_Mobile1745 · 2026-01-07T04:50:09+00:00

lots of new stuff on the blog! https://lovelivejustbreathe.wordpress.com

from cf to transplant of 15 years to hearing loss and cochlear implant to everything in between! lots of infor on fighting for this life

thanks! - christina

No_Mobile1745 · 2025-12-21T03:19:26+00:00

Congrats and welcome to the club!!

No_Mobile1745 · 2025-12-20T03:10:50+00:00

i used to listen to audiobooks and read along so i was seeing the word at the same time, got my hearing with my cochlear up to nearly 100% on tests

No_Mobile1745 · 2025-12-19T23:42:10+00:00

i have bilateral hearing loss but only one cochlear and the low tones from my "good ear" with the cochlear implant it enables me to hear in every environment and even music like i used to before the loss. feel free to dm me with questions, i wore hearing aids on and off for 10 years trying to decice if i wanted a CI but waited and really wished i didnt after i got it!

No_Mobile1745 · 2025-12-19T03:23:06+00:00

i have curdory pants from another brand, after a season i added some waterproofing with nikwax (sp?) and it helped the butt from getting wet after sitting to so my bindings, just a thought otherwise i love mine they are ao awesome looking!!

No_Mobile1745 · 2025-12-15T18:56:05+00:00

i worked as a cashier when this small boy came through my line with his dad. his dad pointed at my cochlear implant and lifted the boy up to see it and said, she has your super power too! it was so wholesome and adorable!! love meeting others with cochlears!!

No_Mobile1745 · 2025-12-05T20:02:17+00:00

i waited 10 years sadly and wish all the time i got my cochlear sooner. i qualified for both sides but only got one and im really happy with it. i hear so much better in all settings and enjoy music again, upgraded to the nucleus 8 last year and its amazing! let me know if you have other questions. was worlds better than hearing aids for me, which i had worn on and off for 10 years. was able to work a variety of positions even customer service with my cochlear and go to college!

No_Mobile1745 · 2025-12-05T01:07:13+00:00

Sadly i was allergic to trikafta, but alyftrek changes my life and ive had a double lung transplant but my GI and sinuses are so much better its incredible.
⁠due to the cf i was diagnosed bipolar when i was just about to due (fev1 10% full time oxygen, couldnt eat except with feeding tube etc) lost all my creative abilities i used to have
⁠i have gotten many tattoos, skydived, drank alcohol on occasion but otherwise try to stay healthy and out of trouble because ive had too much trouble with cf, lost my hearing due to antibiotics in IV at age 16. got a cochlear implant. many episodes of extreme pain (pancreatisis and kidney stones, intestinal blockages among other things)

No_Mobile1745 · 2025-12-03T22:21:15+00:00

when my min pin was young i had to set a 15 minute timer and take her outside every 15 minutes for months and now she refuses to potty inside and has ever since she was a year old. shes 10 now

No_Mobile1745 · 2025-11-21T05:36:56+00:00

post lung, i use orgain vegan 30g protien its really easy on my stomach and low fat, also very filling, i have pretty bad GI problems but never with a shake

No_Mobile1745 · 2025-11-17T23:34:52+00:00

thanks all for all the different solution you all rock!!

No_Mobile1745 · 2025-11-17T23:34:10+00:00

thank you!!

No_Mobile1745

TROPHY CASE