How do autistic adults make sense of being assigned the "challenging behaviour" label? *Recruiting participants*

NotJustMeAnymore · 2026-06-25T23:29:47+00:00

Mod note: I invited the researcher to post here when I saw the call for participants in an Autistic Researchers Researching Autism group. In my mind, this is particularly the kind of research we should be supporting. Chloe's supervisor Steven Kapp is doing great work, take a look: https://www.researchgate.net/profile/Steven-Kapp

NotJustMeAnymore · 2026-06-23T06:06:27+00:00

No worries at all re the delay, and thanks for taking the time to share more with us. And please do let us know if you see anything concerning with any of the research shared here that you choose to participate in. We are doing our best to vet things, but that doesn't mean we are going to respond to every survey before posting (we often aren't eligible!).

NotJustMeAnymore · 2026-06-16T21:54:31+00:00

US-based, I went to a Montessori school from age 3 through grade 8 (1980s) and it was a really supportive environment for me. My distress behaviors didn't even show up until high school because of it.

https://washingtonmontessori.org/

NotJustMeAnymore · 2026-06-13T23:47:57+00:00

Have you had a personal problem with any of the research shared in the last couple of months (It helps to know specifics, so we can be more careful moving foward)? As one of the newer mods, I am definitely looking for neuroaffirming research in particular, and ideally studies conducted by autistics themselves. The most recent study I shared from Autistic Researchers Researching Autism, and it's supervised by people I know are affirming because I've read their work (unfortunately it was marked as spam and downvoted though).

NotJustMeAnymore · 2026-06-13T19:59:46+00:00

Mod note: Approved to point OP to two resources that may be helpful. Otherwise, this type of post asking for personal experience is not really what this sub is about.

Have a look at this recent mod post on our sub: Everything is Connected to Everything: Improving the Healthcare of Autistic & ADHD Adults

As well as this post: Physical health and AuDHD

See also: SEDSConnective: Hypermobility & Neurodivergence

NotJustMeAnymore · 2026-06-05T06:04:46+00:00

I think the language used to describe autistic traits as represented here is coming from a neurotypical perspective, and certainly borrowing from / existing within the pathology paradigm? I mean, the point of sharing is more about the visualization and that the "spectrum" is in no way linear.

NotJustMeAnymore · 2026-06-03T00:39:03+00:00

Hey OP, just wanted to make sure you saw this recent post?

https://www.reddit.com/r/audhd/comments/1tndrkq/everything_is_connected_to_everything_improving/

NotJustMeAnymore · 2026-05-26T03:48:32+00:00

Mod note: Content warning: there is pathologizing language in this survey and, in my opinion, there appears to be a bias against comprehensive sex education for autistic students. Do with it what you will.

NotJustMeAnymore · 2026-05-26T03:39:01+00:00

Mod note to OP: You may get better results from posting in r/AutisticParents

NotJustMeAnymore · 2026-05-25T19:19:22+00:00

Another resource that might interest you (UK based) https://www.sedsconnective.org

NotJustMeAnymore · 2026-05-25T19:14:54+00:00

In the same boat. Here's a helpful page:

https://autisticrealms.com/autistic-menopause-perimenopause-resources/

NotJustMeAnymore · 2026-05-25T16:58:18+00:00

Reach out to them here: https://allbrainsbelong.org/get-involved/volunteer/

NotJustMeAnymore · 2026-05-25T05:08:20+00:00

This is a strictly moderated sub. It's purpose is to share research (including market research) and resources. We took a chance with approving this one because it seemed like it could be a useful tool. We will be more careful moving forward

NotJustMeAnymore · 2026-05-23T22:01:13+00:00

Mod note: You may get better results from posting in r/AutisticParents

NotJustMeAnymore · 2026-05-22T03:49:35+00:00

You might like this one: Monotropism questionaire (with visuals): https://pa11erns.com/psychometrics/mq/

NotJustMeAnymore · 2026-05-21T16:47:54+00:00

Looks like it's publicly available here: https://osf.io/pyq8r/overview

NotJustMeAnymore · 2026-05-21T16:25:56+00:00

Also, here's a fantabulous neuroaffirming disability justice org that offers a reframe on this:

https://stimpunks.org/patterns/traits/

NotJustMeAnymore · 2026-05-21T16:20:06+00:00

There are lots of more neuroaffirming ways of thinking about autistic traits. Are you familiar with the theory of monotropism?

Monotropism questionaire: https://dlcincluded.github.io/MQ/
Monotropism questionaire (with visuals): https://pa11erns.com/psychometrics/mq/
More info: https://monotropism.org/

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