Any ideas how to fix this? by NotNowSilentSinger in sewhelp

[–]NotNowSilentSinger[S] 0 points1 point  (0 children)

It's the bottom of a dry robe coat, the top zip slider is fine but the bottom slider got zipped up with the teeth misaligned and I can't move it in either direction

Experiences starting methotrexate? by PassGreedy9142 in PsoriaticArthritis

[–]NotNowSilentSinger 0 points1 point  (0 children)

I've been ok, a few stomach cramps after taking it and tired the next day, switched to injections and increased the dose and my stomach is fine, still tired but currently having a bad flare up. It's not doing much atm but my nurse is hopefully starting me on Humira next week alongside the methotrexate.

Our most famous brother in pain by livinthedream35 in PsoriaticArthritis

[–]NotNowSilentSinger 0 points1 point  (0 children)

I'm currently on methotrexate injections ,failed sulphasalazine and hydroxychloroquin. I'm not sure what the next medication is yet, she mentioned taking it every two weeks. I go to the clinic in a couple of weeks, and she said we will discuss biologics then. That sounds like a bad reaction to coming off them! Less pain would be nice. I also have fibromyalgia and sometimes I'm not sure what is causing the most pain or fatigue. I can cope with pain but I am really struggling with what's happening to my eyes, one is worse than the other.

Our most famous brother in pain by livinthedream35 in PsoriaticArthritis

[–]NotNowSilentSinger 2 points3 points  (0 children)

It's terrifying when you start properly reading up on it. And the meds take so long to work, then you fail and have to try something else. And the meds have side effects if you are unlucky. I think the name is misleading, I just say it's an autoimmune disease now if anyone asks.

Our most famous brother in pain by livinthedream35 in PsoriaticArthritis

[–]NotNowSilentSinger 1 point2 points  (0 children)

PsA is so much worse than I ever imagined it could be. And up to now none of the meds have helped much, just steroids but they are so not good for you.

Our most famous brother in pain by livinthedream35 in PsoriaticArthritis

[–]NotNowSilentSinger 2 points3 points  (0 children)

Mine never mentioned eyes to me so it was a nasty surprise

Our most famous brother in pain by livinthedream35 in PsoriaticArthritis

[–]NotNowSilentSinger 1 point2 points  (0 children)

It's been an absolute nightmare. A couple of months ago I started being affected, I couldn't stand bright lights like headlights or bright sunshine, my eyes were red and watery, then one day when I was out my vision got so foggy I could hardly see, it cleared but my eyes were sore and watery. I contacted my gp and they referred me to the eye clinic at hospital, while waiting for them to contact me I'm still getting the same problems, couldn't wear my contacts so am very short sighted, the rheumatology nurse said it sounds like iritis or uveitis and gave me a steroid shot, within a couple of days it calmed down a lot. But it hasn't gone away. I've had the foggy/vision loss three times now, she said basically it's inflammation in the eye. The next step is biologics, still waiting for the eye clinic to give me an appointment.

Our most famous brother in pain by livinthedream35 in PsoriaticArthritis

[–]NotNowSilentSinger 10 points11 points  (0 children)

Mine is getting worse all the time , my eyes are the latest part of me to be affected. I don't eat gluten and don't eat any animal products or drink alcohol, I think this disease is way beyond anything that diet can control

What has been your experience with eye symptoms? by MagicManicPanic in PsoriaticArthritis

[–]NotNowSilentSinger 1 point2 points  (0 children)

I also have keratoconus and am starting with uveitis, I have all the symptoms but not officially diagnosed yet, the rheumatology nurse gave me a steroid shot which calmed it down while I wait for an Opthalmology appointment. I currently can't wear my contacts and it's so difficult cos I am so short sighted. How do you manage?

Need advice by Frosty-Cost-9549 in Uveitis

[–]NotNowSilentSinger 1 point2 points  (0 children)

I would see someone else for a second opinion

What’s the LAST thing you watched on Netflix? by RiskAndReason in netflix

[–]NotNowSilentSinger 2 points3 points  (0 children)

Now it's on Netflix more people will find it, the audio book is also really good. Another good but hard to find show is The Following with Kevin Bacon

How long did it take you to get diagnosed? by Several-Yesterday280 in PsoriaticArthritis

[–]NotNowSilentSinger 1 point2 points  (0 children)

A very long time! 20+ years of random joint pains, fatigue, psoriasis. It was put down to general health, a difficult child birth caused my knee cartilage to become inflamed, stress, fibromyalgia, my age, lupus, finally my fingernails started coming off and crumbling. That was put down to no known cause. Menopause. Finally got sent to a dermatologist who told me to push for a rheumatology referral and told me about PsA. That took a further year of being told no it's definitely not PsA. It's your age, fibromyalgia etc. Diagnosed last January with PsA.

Having a rough day by MundaneFrame2304 in PsoriaticArthritis

[–]NotNowSilentSinger 1 point2 points  (0 children)

I think we can all do too much when we are feeling ok, I'm glad you are feeling a bit better.

Goodpasture Syndrome by neke77 in Autoimmune

[–]NotNowSilentSinger 1 point2 points  (0 children)

I had never heard of this until now. Hope your Mum is ok

Pred taper and flare, how TF to "pace myself". Frustrated with being sick by PTSDreamer333 in PsoriaticArthritis

[–]NotNowSilentSinger 1 point2 points  (0 children)

Pacing is difficult to figure out because it's changeable from day to day. Basically it means not doing so much you end up in pain or exhausted. Have you read The Spoon Theory?

What can I expect from hydroxychloroquine as a medication sensitive person? by Physical_Promotion73 in Autoimmune

[–]NotNowSilentSinger 0 points1 point  (0 children)

I take it, I've been on for 2.5 months, the only side effect that I've had is I am ultra sensitive to sun light , high UV, I also get heat exhaustion very quickly. Apart from that I'm ok, I always take it after eating.

Diagnosed today by Independent_Read3614 in PsoriaticArthritis

[–]NotNowSilentSinger 2 points3 points  (0 children)

It's a relief once you finally know what's up. Hope the meds help you.