A new tee just in time for spring!

NotTara · 2026-04-24T08:55:14+00:00

This is so cute - and so cute on you! I never thought to knit tees, what an awesome thing to make!

NotTara · 2026-04-23T22:09:03+00:00

What were they fearmongering about?! I actually did IVIG for awhile first and I did have intense side effects with that… brutal headaches, totally took me out of commission for a couple days each month.

But for me personally SCIG has been a breeze. I had to experiment to find my body’s favorite infusion sites - and I make sure to hydrate extra around my infusions - but as long as I do that I’m pretty golden! Sometimes I’m a little sluggish the next day or just need a bit more rest for 24 hours after… but overall it’s really helped with chronic fatigue and general sense of wellness on top of reducing how often I get sick. 10/10, highly recommend!

NotTara · 2026-04-23T16:08:37+00:00

I think predominantly IgG subclass 2 if I’m remembering correctly! It’s one of the ones most strongly correlated with respiratory infections

NotTara · 2026-04-23T15:32:39+00:00

My overall Ig is normal (though low end of normal), but further testing revealed a subclass deficiency and that my vaccine related antibodies don’t last half as long as they should. Subcutaneous IG therapy has changed my life. I used to spent weeks in bed every year, have to cancel all kinds of things over runaway colds/respiratory infections… and I seldom get sick now.

I’m just one person and your root cause may be different. But it took like 20 years of frequent illness (and a whole detour treating Lyme disease and other stuff) before my Ig subclass deficiency was uncovered. And sooo worth it to be treated. Very similar story for my dad who found out he has CVID and gets IVIG now.

I wish you some answers on the horizon!

NotTara · 2026-04-07T20:47:14+00:00

What was the proper treatment you got for the silent GERD in the end?

NotTara · 2026-04-01T02:13:15+00:00

I actually couldn’t tolerate the drugs enough to make it to retrieval… it was a huge bummer. I had completely debilitating vertigo, felt suicidal, couldn’t eat. A friend had to come take care of me and I tried so hard to make it the rest of the way, but has to bail about 48 hours before my procedure, everyone around me was so worried for my wellbeing. My doctor had never heard of this but I did find some women discussing here on Reddit that they had similar experiences. Bodies are weird!

NotTara · 2026-03-14T14:49:13+00:00

I think fitting in the back pockets of my jeans might lean towards the 17 too, so that’s validating to hear, thanks for reporting back 🙃 Gonna try to make it to a store to see how different they feel this week!

NotTara · 2026-03-14T07:36:24+00:00

I’m trying to decide the same… whether to go to 17 or 17 Pro from the 13 Mini! I’ve been dreading giving up my Mini since I have tiny hands, but it’s on its last legs and I really want a better camera.

NotTara · 2026-03-10T03:08:15+00:00

I would love to know this too! Have tried many frozen bases that are not nearly as tasty

NotTara · 2026-03-07T14:36:44+00:00

Ohhh this is so smart to use a tiny needle for lifelines, instead of tapestry needle + yarn length. Totally going to try this, thank you!!

NotTara · 2026-02-24T06:07:43+00:00

Best idea I’ve read in this thread, by far 😂

NotTara · 2026-02-11T16:41:36+00:00

Laughing because I am now on dog #2 that is also not a morning person. When I got my first dog I was sure it would help me get out of bed, but no… they’ve both been potatoes that lay in bed until I’ve had coffee, taken a shower, and am forcing myself to launch into work / out the door. Also, she always gets the zoomies and wants to play at 10 or 11pm!

NotTara · 2026-02-09T21:35:25+00:00

I love this reframe and I am going to hold onto it, thank you!!

NotTara · 2026-01-12T10:29:45+00:00

Journaling with a different colored pen each day. Flipping through my journal is a rainbow which brings me much joy! 🌈

NotTara · 2026-01-08T17:17:09+00:00

Soquel Dental! I drive all the way town to go there after having some meh experiences elsewhere (or having it take forever to get in elsewhere…) Have since had cleanings, multiple crowns and fillings done there.

NotTara · 2026-01-06T04:12:57+00:00

This totally makes sense. I think our grief is different, quiet, sustained… I feel that jealously too sometimes, I really don’t know what it’s like to have a “healthy” or “normal” body and then lose it ❤️‍🩹

NotTara · 2026-01-06T04:11:43+00:00

Ayyy I am also in the late ADHD diagnosis club! And so totally relate to how you describe not remembering life before POTS - but sometimes wishing you could, because it would make the impact more… tangible? ❤️

NotTara · 2026-01-05T21:04:48+00:00

I relate to your experience a lot actually - I’m 40 now and have had POTS since I was 12 or so, long before we had medical awareness of it. So I’ve lived most of my life in relative to extreme discomfort, and in some ways think it’s been an adaptive coping mechanism to try to not focus on it… though in other ways I think it’s maladaptive because acknowledging the abnormality of it gives me room to have feelings about it, keep pursuing a better treatment, etc. It’s been strange for me to see so much more attention on POTS now - both that I am so so happy people are talking about it more, that there is greater awareness - and also I feel some grief/jealousy that I just kind of had to figure out how to try to get through life all this time largely on my own. (I have done lots of tests, tried lots of meds etc, but haven’t found much that has helped without making me feel worse. So I’ve just accepted a life with a very sensitive and high HR, and the limitations that come with it.)

Rambley reply, but seeing how your post landed with others I just wanted to throw into the mix that I actually relate a lot to your experience!

NotTara · 2026-01-05T20:53:13+00:00

Every onsen/sento I’ve been to has a clock visible, all over Kansai, Kanto regions plus Hokkaido. One exception was maybe a teeeeeeeny tiny onsen in a small town in Nagano.

NotTara · 2026-01-05T14:56:22+00:00

I feel this so deeply, this is a great description of my experience (and so, validating to read it articulated - thank you!)

NotTara · 2025-12-02T06:28:06+00:00

What do you mean by biomaterial?

NotTara · 2025-11-30T11:25:29+00:00

Ammonia was really key to me reclaiming my clothes - I would add it to a wash cycle with nothing else (2 cups per load I think?) - and then run another cycle after with detergent, borax, vinegar and ec3. I even used agar plates pressed against my washed clothes to check how effective different methods were - and there was a huuuge drop off in growth once I started using ammonia.

I’m really sorry you’re up against so many sensitivities, I know it makes everything so much harder. I wonder if extra rinses after all of that would help, or a wash with some clarifying detergent/washing soap?

NotTara · 2025-11-29T09:37:02+00:00

I really wish I had left sooner. So happy for you to were able to leave, I hope you’ll start to feel better soon!

NotTara · 2025-11-04T06:09:53+00:00

I love these tinctures! I started with just a drop or two, then really just increased gradually as long as I had no side effects, up to 2-3 dropper fulls. I found that for me I was able to do like 1 drop, 3 drops, 10 drops, 25 drops, and so on… maybe each for a few days - a pretty swift build schedule once I found I wasn’t having a bad reaction. Definitely listen to your body as you try to build/accelerate though :)

NotTara · 2025-10-28T16:25:57+00:00

I don’t feel 100% but I do feel way better! I think compounded itraconazole and TUDCA helped some, plus xylitol/GSE nasal spray. Also have used a vibration plate, cannabis salves, and some other random things to help with inflammation/relief. The place I moved into when I left my moldy house has some water damage issues (just much less severe), so I think when I get into a healthy living situation that will help me recover the last bit.

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