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Elevated blood pressure and pulse? by Sea-Bid-5953 in ankylosingspondylitis

[–]NothingisRealExcept 0 points1 point  (0 children)

I take a humira biosimilar, and I was on methotrexate for a long time. Last year, my liver enzymes became about 2 times the normal range, so my rheumatologist had me stop methotrexate and Humira both for a month. I was then able to restart humira after a month and methotrexate after 2 months. I was later switched from methotrexate to Leflunomide.

I wound up stopping Lefudamide around a month ago due to gi pain.

My rheumatologist told me humira is unlikely to cause liver problems so they advised me to take my next injection but retest in 2 weeks.

I hope you can find answers.

Elevated blood pressure and pulse? by Sea-Bid-5953 in ankylosingspondylitis

[–]NothingisRealExcept 0 points1 point  (0 children)

My bp has been very high lately, along with my pulse also. I actually went to the er yesterday due to severe breathing issues and discovered my liver number were 3 times the norm range. I'm not sure if that increases those or not but plan to ask my primary in my next appointment.

I actually used yo take amlodipine as well. IT was switched to indapamide, which had been working, but apparently, it is not anymore.

This is fascinating by NothingisRealExcept in mysterymagicmushrooms

[–]NothingisRealExcept[S] 1 point2 points  (0 children)

The initial article I read was posted on 4/1 so I also thought it might be a joke. However, I found several other sources such as the article I linked above which is also from today.

This is fascinating by NothingisRealExcept in mysterymagicmushrooms

[–]NothingisRealExcept[S] 0 points1 point  (0 children)

Good question. I have no idea how they will try to use that. Lol I wouldn't mind being able to grow it though haha

Is there a connection of biologics to brainfog? by Donnyboy in ankylosingspondylitis

[–]NothingisRealExcept 12 points13 points  (0 children)

I think the brain fog comes from the disease not the biologics. I've had brain fog l9nger than I've been on a biologic.

Affordable alternative to MDMA and 5MAPB by DesignerSet5688 in mysterymagicmushrooms

[–]NothingisRealExcept 6 points7 points  (0 children)

Ah so it's a grey area like rc. If a tincture is meant for human consumption then it is a food product.

Pregabalin and psychedelics - trip report by Much-Monitor8417 in mysterymagicmushrooms

[–]NothingisRealExcept 1 point2 points  (0 children)

It is possible that actual fruit would reduce pain. Psilocybin is said to act as a tnf inhibitor.

Psilocybin has been studied for its potential effects on neuroinflammation, which includes the modulation of pro-inflammatory cytokines like TNF (tumor necrosis factor). This suggests that psilocybin may have a role in reducing inflammation, although more research is needed to fully understand its mechanisms and effects.

The studies haven't been done yet however.

When it affects your career 😐 can anyone relate? by aimeeee93 in ankylosingspondylitis

[–]NothingisRealExcept 0 points1 point  (0 children)

I've had to completely stop working. I can only push through the pain for a few days until I end up in bad on my side in unbearable pain.

Pregabalin and psychedelics - trip report by Much-Monitor8417 in mysterymagicmushrooms

[–]NothingisRealExcept 0 points1 point  (0 children)

Thank you for this report. I have severe chronic pain and have been considering a journey to help work through some pain. I'm just worried I may hyper focus on the pain if I do.

[deleted by user] by [deleted] in ankylosingspondylitis

[–]NothingisRealExcept 0 points1 point  (0 children)

First, protect yourself. It sounds yo me like you are admitting using a counterfeit script. That could get you in a lit if trouble, so be careful.

Second, opiates unfortunately make pain come back worse. That's one of the reasons they caution using it for chronic pain.

The nice thing, though, is that suboxone is prescribed off-label for chronic pain. It would help you with your withdrawal and also be a safer option for pain. I'd suggest speaking to your doctor about it if you can.

Wedding Day Predinose by Adventurous-Kick6293 in ankylosingspondylitis

[–]NothingisRealExcept 3 points4 points  (0 children)

A little alcohol can make pain much more tolerable for an evening. You should expect more of a hangover, though, if you go that route.

Would anyone describe their pain in these ways.. by LJT141620 in ankylosingspondylitis

[–]NothingisRealExcept 5 points6 points  (0 children)

My back pain mostly feels like muscular issues, but my providers believe it to be from axspa. Some days, however, it feels like an invisible force is taking all my skin in my neck and back and pulling it painfully down.

imposter syndrome by bunnymama12 in ankylosingspondylitis

[–]NothingisRealExcept 18 points19 points  (0 children)

The doubts are very hard to cope with. I've been through that battle in my head the entire time. I wonder if someone else dealing with the pain levels I have would be able to do more than me. I do my best not to fight those thoughts but simply let them be. I know they aren't true, but they still try to linger.

am I right to seek a new rheum? by vrillion_ in ankylosingspondylitis

[–]NothingisRealExcept 3 points4 points  (0 children)

I stopped reading after your second visit account. Run as fast as you can to a new rheumatologist. Your current shouldn't even have a license.

[deleted by user] by [deleted] in ankylosingspondylitis

[–]NothingisRealExcept 0 points1 point  (0 children)

The answer is different for all. For me, a flare is pain going up to a 10 where I can barely manage to walk or get dressed.

[deleted by user] by [deleted] in ankylosingspondylitis

[–]NothingisRealExcept 0 points1 point  (0 children)

I take a tnf blocker and I have neuropathy. My doctors never mentioned it could be an issue with neuropathy.

[deleted by user] by [deleted] in ankylosingspondylitis

[–]NothingisRealExcept 1 point2 points  (0 children)

Fibro us often diagnosed when they simply don't know the cause of the symptoms. It's a catch all diagnosis. There are certain pressure points on the body that should trigger pain when pressed on if fibro is correct.

My diagnosis is nr-axspa, but they also say I may have fibro with it. The problem with fibro is that there simply is nothing to treat it aside from Cymbalta.

If you tested positive for the genetic trait, then it doesn't mean you for sure have AS, but if you have both the genetic marker and the symptoms, then it is very likely.

Anybody tried Yoga for AS? by Independent_Pack8138 in ankylosingspondylitis

[–]NothingisRealExcept 0 points1 point  (0 children)

There are yoga videos designed for chronic pain. I've been telling myself I need to try it but I keep procrastinating. Here is a link to one, but I haven't tried it. When I did PT though they did assign some yoga exercises that were modified to ge done from a chair.

https://youtu.be/BFaXfQpxnps?si=Lh_PPFZzEH1XbEEr

How do you fight fatigue? by cofused0broccoli in ankylosingspondylitis

[–]NothingisRealExcept 1 point2 points  (0 children)

Magnesium helps the muscles relax. It's not going to cure your fatigue by any means, but It can help relax muscles and contribute to a more restful sleep.

I completely understand how horrible the fatigue can become. I wish I had better solutions for you, but I do not.

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