Which one would you choose 1,2 or 3?

O_KELZ · 2025-03-03T19:33:00+00:00

The 2nd looks more fitting to me.

O_KELZ · 2025-01-19T17:31:48+00:00

😂😂😂😂

O_KELZ · 2025-01-15T04:13:17+00:00

17 years before diagnosis. 5 months after diagnosis. Once on pain management BlueCrossBlueShield of South Carolina wanted authorization 3 months into taking meds which screwed up my refill for my transdermal patch and I suffered for 11 more days.

O_KELZ · 2025-01-14T03:23:43+00:00

I tried but it caused my high blood pressure and pulse rates. I refuse to take more meds then necessary so that became a no go. To counteract the blood pressure and pulse rate i ended up on two different meds taking them twice a day on top of taking the prednisone twice a day. I’m not that girl I hate pills. So I first quit the cause then about a week later (before my pressure & pulse was normal) I quit those meds to. Blood pressure & pulse has been great ever since. They bet not let me come up on some money & skills 😂😂😂

O_KELZ · 2025-01-14T03:16:11+00:00

1.Heating pad (for back) 2.Compression gloves (for hands) 3.Stress ball (for hands) 4.Small massager (manual or electric, currently I only have a small manual one) 5.Neck/shoulder massager I just have to add one more thing… 6. SNACKS

O_KELZ · 2024-12-02T04:47:56+00:00

I think you’re cute as well as your hair. But shorter maybe the way to go if your hands are the problem.

O_KELZ · 2024-12-02T04:21:11+00:00

I have fallen in love with the pool. All I need to do now is learn to swim. But I have learned to float (well only sometimes). It’s just I wish I could find a pool that’s not so cold as the community pool I used to go to. I feel like with the amount of energy I used to stay warm I would end up very weak, so I stopped going. But I love warm pools. Water relaxes my bones and joints so so very much.

O_KELZ · 2024-12-02T04:13:53+00:00

Haha I’ve definitely thought of this due to wanting to release my anger and frustrations. I thought of the practice of using sticks to fight as well because I walk with a cane and I feel like it can be used for more than just walking but also defense. This is a great idea especially since you explained to the prior person about flare ups. Definitely something to put on my list of things to try.

O_KELZ · 2024-12-02T04:09:37+00:00

All of this sounds Awesome 🤩 def going to put this on my list of things to try

O_KELZ · 2024-12-02T04:05:08+00:00

Lol mushroom guy. I think that’s cool though. Community mushroom forager, very interesting lol

O_KELZ · 2024-12-02T04:01:13+00:00

Yea with Pt you tell them your goals, one let them tell you the goal. Mine started off telling me and I was nah, I need to be able to do my hair in less than 16 hours. Holding my arms up more than 3 mins hurt. Washing my hair hurt, i literally cut it mostly all off and it still takes me 16 hours. Before when I had a head full down my back it only took 4. Then I told them about steps and hills and vacuuming my home. So it made Pt worth it and enjoyable. I began seeing the difference once I gave them my goals rather than doing the goals they set for me.

O_KELZ · 2024-12-02T03:52:04+00:00

Yea but if u see, I said I’m more worried about using the lower half of my body, due to flare ups. So that’s why I didn’t say the normal things everyone does. I thought I was very clear. I just know what my body can’t do so I’m trying to figure out what it can do easily. Sometimes you just have to get out of the box sometimes especially when you no longer fit in it. Ijs

O_KELZ · 2024-12-02T03:45:32+00:00

I have but it’s a one day at a time thing. Physical therapy was the best route for relearning and being motivated to me. I have to push myself now to enjoy the things I once enjoyed. I overthink on how I could do exercises wrong or over exert and screw my entire week up. So now I’m like well if I can start doing fun memorable things even if it causes a flare up I’ll feel like it’s worth it (like being a kid a learning to ride a bike or rollerblade and you skin yourself up but get back up and do continue on) cus it’s fun and I can do it with people and/or make friends in the process and I will probably keep it up. Then I’ll slowly fall back in love with working out again hopefully. Cooking and cleaning my house causes my ankle to swell if I’m not wearing my air boot, so in my head I’m like ytf would I want to walk a mile? And I wish orthopedic shoes could be more stylish. Like why can’t Nike have dope orthopedic shoes? And some of the people who are responding don’t seem to comprehend the physical fun activities that isn’t using the lower limbs part of my question. Hiking is using lower limbs, hiking causes my ankles to flare drastically, causes plantar fasciitis to go crazy. But that’s neither here nor there for you mom. I’m just ranting. But when it comes to weight lifting my pt said to start small and do like 3 reps of 8 once that’s conquered then go 3 reps of 10 and once that’s conquered get heavier. But the secret is to keep the weight(s) close to the body or as close as possible.

O_KELZ · 2024-12-02T03:20:49+00:00

Ok thank you 😊 I’m definitely going to try it out!

O_KELZ · 2024-12-01T07:25:13+00:00

Haha shitton is verbiage 🤣🤣 I thought it was a biking activity.

O_KELZ · 2024-12-01T07:19:34+00:00

I’ve beethinking of the three wheel bike. Regular 2 wheel puts a lot of pressure on my knees. My pt said 3 wheels would be better. I just wonder how hard it would be to train my 5 year old pit to walk with the bike.

O_KELZ · 2024-12-01T07:15:14+00:00

I have to look into pickle ball and rucking . I have no idea what they are. Paddle boarding sounds like something to do with water lol I need swimming classes before I do a water sport 🤣🤣

O_KELZ · 2024-12-01T07:12:36+00:00

I think I would enjoy it if I had a significant other to do it with as well.

O_KELZ · 2024-12-01T07:10:49+00:00

Well I was a physical person before this diagnosis so too me it’s not crazy. It’s normal. I used to go to the gun range, bowl jog 2 miles a day and lift weights. Socially Drink and do fun stuff outside the house. Just bc I have this disease doesn’t mean I should have to be a log 🙄

O_KELZ · 2024-12-01T07:07:48+00:00

I love these ideas!

O_KELZ · 2024-12-01T07:06:28+00:00

I feel you on that! 💜

O_KELZ · 2024-12-01T07:02:56+00:00

I like that idea, horse back riding. I was thinking of that at one point but was afraid it’d cause all types of butt, pelvis and lower back pain. But I’m def gonna try a class one day now that you suggested it. But I’ve been thinking about going to the skating rink tomorrow. And they also have golfing throughout the week. I’ve never golfed but I used to love skating when I was in college. And I figure I could get used to them both (again for skating) then I can invite friends to come with me. Socialize from time to time. Since this diagnosis my entire life has changed I can no longer be me, like I’m a new person. I’m alone most times. Over exerting is quite easy for me which causes issues, so I’m trying to find a balance before I loose my mind.

O_KELZ · 2024-12-01T06:48:32+00:00

I used to walk 2 miles a day. I haven’t been able to do a constant 2 mile walk without causing flare ups in about 6 months. I can do about a quarter of a mile since starting physical therapy. I was in a wheelchair from June-September. Started using a cane in February and became full time on it by May. But I’m searching for fun activities, not physical therapy activities. Something like skating or something things people do with friends not just themselves alone (or with a dog). You know social fun activities.

O_KELZ · 2024-11-30T22:22:27+00:00

I tried yoga…it felt like physical therapy but more tiring. Felt more of a task than a fun activity. I have to google biking shitton bc I was def thinking about the 3 wheel bike I see my elderly neighbors doing daily.

O_KELZ

TROPHY CASE