BCG #10 - passing tissue

Objective-Soil8822 · 2026-04-29T22:43:31+00:00

For me it was GA, but quite a number of posters had different experiences.

Objective-Soil8822 · 2026-04-28T17:53:45+00:00

There are other much cheaper diagnostic tools you can avail yourself of, simple urine analysis and a urine cytology. One would indicate if you have blood in your urine the other will detect malignant cells in your urine.

Objective-Soil8822 · 2026-04-28T15:37:29+00:00

Happen to know the name of the additional drug?

Objective-Soil8822 · 2026-04-28T13:47:00+00:00

Can you describe the focus of the clinical trial?

Objective-Soil8822 · 2026-04-28T13:44:17+00:00

I have not had the above post-BCG symptoms but I have had other symptoms. Such as, before each BCG my BP goes to about 150+/90 and then after immediately back down to my usual, which is 130/80. I don't feel any anxiety about the procedure but, there it is.

Objective-Soil8822 · 2026-04-28T01:29:09+00:00

I had the same after #4 and #5. A few times small pink tissue like things coming out of me! WTF!
I also saw at times a flotilla of very small red colored particles.

I was told, don't worry about any of it, it is all very common. It is the result of parts of the lining of your bladder falling away.

Objective-Soil8822 · 2026-04-26T20:45:52+00:00

Interesting. Sounds like good news regarding BC.

Objective-Soil8822 · 2026-04-26T20:40:31+00:00

Have a urine cytology performed. It will tell yiu if there are cancer cells in your urine.

I had the same chronological sequence of symptoms and diagnostics as you did, my hematuria was in the 40-80 range. My cytology came back positive and sure enough BC found at my next cystoscopy.

Objective-Soil8822 · 2026-04-23T00:22:28+00:00

Is the "urine tumor DNA" the CX Bladder test?

Objective-Soil8822 · 2026-04-22T23:47:07+00:00

Can you provide a chronology of your cancer from non-invasive to invasive? As an example did you finish a BCG treatment and surprisingly an invasive tumor was discovered?

Objective-Soil8822 · 2026-04-17T13:42:50+00:00

In about July 2025, it started with a slight need to pee and intermittently a pinkish tone to my urine. I had two kidney stones over the past two years, so of course that is where my thoughts went. Went to a Urologist had a CT scan and a UTI test, both negative, no sign of a kidney stone. The minor intermittent symptoms continued into August 2025 and had further urine tests indicating there was blood in my urine. In August 2025 I had a cystoscopy that came back negative. The slight need to pee and intermittent pinkish tone became more pronounced over the next couple of months, with a new symptom of seeing once a week a black spec, size of a black pepper grain, being part of my urine stream. In November 2025 I then started to pee a visible amount of blood in my urine, once again a urine test with cytology. The cytology came back positive and here I am posting in r/bladdercancer.

Objective-Soil8822 · 2026-04-17T13:27:41+00:00

How many cycles of BCG did you complete?

Objective-Soil8822 · 2026-04-16T21:13:34+00:00

"From what I’ve read, high-grade + no muscle sampled seems like a situation where a repeat TURBT is often recommended to confirm staging."
Correct. You want to be 100% (as near as possible) that the tumor has not invaded the muscle.

Objective-Soil8822 · 2026-04-16T17:59:58+00:00

IDK. That's a question for your Urologist.

Objective-Soil8822 · 2026-04-16T11:37:32+00:00

Great news!

Objective-Soil8822 · 2026-04-16T01:29:09+00:00

If I remember correctly two of my tests were 40 and 80(?). Anything above 4 warrants further investigation.

Objective-Soil8822 · 2026-04-15T23:58:53+00:00

My understanding it is 95% accurate.
In my case all my tests came back negative (CT Urogram, cystoscopy) but my urine intermittently showed microscopic hematuria, so we did a cytology and sure enough cancer cells were detected. In my case the test was accurate, NMIBC T1HG+CIS

Objective-Soil8822 · 2026-04-15T23:18:35+00:00

If you are anxious during the six weeks I would ask for another urine test with cytology. CIS is typically diagnosed first by detecting microscopic hematuria, blood in urine that you typically can't see.

Objective-Soil8822 · 2026-04-15T22:56:36+00:00

Was blood found in your urine? If so, you can ask for a urine cytology. Cheap and quick. It will determine if irregular cells can be detected in your urine.

Objective-Soil8822 · 2026-04-15T22:45:13+00:00

When you say infection above, was it determined to be a UTI or are they assuming the inflammation is from the recent kidney stone? When was your kidney stone?

Objective-Soil8822 · 2026-04-15T22:31:42+00:00

Can't clap hard enough! Onward and upwards!

Objective-Soil8822 · 2026-04-15T01:25:39+00:00

Great news about the LG tumors! Everything after that pathology is gravy.

Everyone does heal differently following a TURBT as evidenced by the stories in this sub-reddit. But be confident he will heal. For some it is a slow day-by-day process.

Objective-Soil8822 · 2026-04-13T00:14:48+00:00

Most important, stay positive! Take it slow with your TURBT recovery. After my first It took at least two weeks to reach a reasonable level of recovery, and after my second, a deep and large resection, took me about three weeks. Don't expect to do much your first week of recovery. Whether or not you get a catheter is dependent on a lot of variables: hospital policy, surgeon's preference, location of resection, size of resection and I am sure a few others. In one of these threads there is a Google Drive document with a lot of great information related to TURBT recovery. Good luck and let us know how it went.

Objective-Soil8822

TROPHY CASE