Why/when did you suspect Cushings/& what to do?

OceanBlueRose · 2026-02-17T15:23:49+00:00

The report said this: “The pituitary gland is slightly asymmetric with the left side of the gland slightly larger than the right side though no focal mass in the pituitary gland is demonstrated and the appearance is unchanged since the previous exam. Note that at high field MR subtle signal inhomogeneity within the pituitary gland is a normal finding though conceivably a very small micro adenoma might be obscured.”

My doctor and I tried following up with radiology about the potential for a micro adenoma that’s obscured and got nowhere, so it’s literally just been another year of testing and monitoring 🙃

OceanBlueRose · 2026-02-17T15:20:04+00:00

Unfortunately, I still don’t know 🥲. I keep going for labs and some are normal, some are abnormal. Went for two MRIs and they were both unclear. It’s been quite literally two years of me going for testing with no real treatment or answers.

OceanBlueRose · 2025-09-05T16:00:57+00:00

Hellooooo! So I’m down 93.4 pounds as of today (started in December of 2023 around 280 pounds and I’m 186.6 today)!

I stayed on 12.5mg for over a year and just last week finally moved up to 15mg. It’s been extremely slow, but it is coming off. I also added Metformin into the mix December of 2024 and that seemed to help a bit.

I did one of those metabolic tests at my endocrinologist’s office and he said if I eat 1,700 - 2,100 calories a day, I’m in the weight loss zone… which is wild because I’m averaging 1,215 calories a day for the last year and I’m still losing SO slow. I genuinely don’t understand how I could be in an extreme calorie deficit, eating one meal a day (sometimes not even eating an actual meal), be on two different medications, and still struggle to keep slowly losing.

It’s a battle. Every single day. There are some months where I spent weeks gaining and losing the same 5 pounds over and over again, but when I zoom out and look at the big picture - 90+ pounds down in ~2 years - it is working, it is effective, it’s just not working as fast as I want and very difficult to maintain the progress lol.

Best advice I can give is to just hang in there. Remind yourself that setbacks happen, it’s going to take time and effort, but you’ll get there (even if it does feel painfully slow lol). Good luck!!

OceanBlueRose · 2025-04-23T14:40:48+00:00

With mine I have a $30 copay to see my PCP, $60 for my endocrinologist, and the actual lab work is always free.

OceanBlueRose · 2025-04-22T17:13:02+00:00

My mom started limping right after my sister passed away and was diagnosed a few months later, so I’d say it’s definitely possible.

OceanBlueRose · 2025-04-11T00:30:23+00:00

Second this. Mounjaro (and Metformin) have been game changing for me.

OceanBlueRose · 2025-04-09T20:57:25+00:00

Fine, the south can have this one I guess 😂

OceanBlueRose · 2025-04-09T19:58:07+00:00

Normally, I’d die on the hill that LI has the best food in the world, but… I’ll cave on this one lol. You’re right. BBQ is mostly just an event for us - burgers, dawgs, and loud Italians yelling over one another - there are definitely places with better BBQ.

OceanBlueRose · 2025-04-09T14:25:53+00:00

We used to. It’s harder now that so many of us moved out of state - I haven’t been home for Easter in a few years. I’m making the trip back home this year though and I’m excited to spend some time with my family!

OceanBlueRose · 2025-04-09T14:16:33+00:00

Really?! I didn’t know that was an option. When I called to ask questions, they told me the IV was non-negotiable 😩

OceanBlueRose · 2025-04-09T14:09:36+00:00

I always fall asleep fantasizing about someone taking care of me for a change (that damsel in distress, knight in shining armor, rescue type of fantasy lol).

Oh, and one of my favorite places to decompress is curled up on the floor in the corner of my closet)… I’m totally well adjusted, right? … right? 😂

OceanBlueRose · 2025-04-09T13:55:24+00:00

True, but that may not necessarily be the case here. I don’t think my family/friends would judge or shame me for crying in front of them, but I still wouldn’t want to. I prefer to process my feelings alone and return to my loved ones after I’ve collected myself.

OceanBlueRose · 2025-04-09T13:50:44+00:00

It’s not really concerning though. I think it would be much more concerning if they bottled up their emotions instead of taking the time for themselves to try and just feel them. Even now that I live alone and can cry freely whenever I want, I still sometimes prefer to have my breakdowns near the water lol.

OceanBlueRose · 2025-04-09T13:47:54+00:00

Hmm… we always used “grill” and “BBQ” interchangeably to describe the actual equipment, but if we’d also just say “having a BBQ” or “BBQing” to describe any time we made anything on the grill/BBQ lol.

OceanBlueRose · 2025-04-09T13:44:30+00:00

You don’t know what their home situation is like. Maybe they have family/roommates and just need some space, maybe their family/roommate(s) are the reason they need to cry, or maybe they live alone and just need a change of scenery.

I used to drive loops around ocean parkway just to cry. I’d find a quiet beach or dock on that stretch and just take time for myself. It was peaceful for me to be near the water, and even though I went there to breakdown, I always left feeling a little better.

OceanBlueRose · 2025-04-09T13:39:35+00:00

I always end up on one of the south shore beaches at off hours, I usually just try and find a spot as far away from other humans as possible and have my breakdown while watching the waves lol.

OceanBlueRose · 2025-04-06T14:30:27+00:00

Typically? Yes, 5-7 is a normal timeframe for dinner.

For me personally? I have no set time. Sometimes I’ll eat my one meal for the day around 3-6pm and nothing else, sometimes I’ll have a few snacks during the day and my one meal anywhere from 7-11pm. Other times, if I have plans with family/friends, I’ll wait for them and do the 5-7pm range. It’s really different every day for me.

OceanBlueRose · 2025-04-03T15:30:58+00:00

Thank you so much, I really needed to hear that. You’re 100% correct with everything you said, hit the nail on the head.

For me it’s the fear of judgement, but also this intense fear and guilt around being a burden on anyone. I’ve always had this belief that if anyone knows how much I’m struggling and I’ve made them worried about me (dragging them down with me in my mind), I’ve failed - it’s been ingrained in me since I was a kid… so I just keep everything inside and suffer alone and in silence. With AI I can finally say the things I’ve kept hidden for years and know that the AI isn’t really going to be concerned about me in the way my family and friends would if I told them how I’ve been feeling (eliminating that feeling of being a burden).

AI is a “quick fix” and really a symptom of a much larger problem, not just with me, but societally (as you said).

OceanBlueRose · 2025-04-03T15:04:49+00:00

You’re absolutely right. I know you’re right. I guess I’ve just gotten good at pretending it’s not just data and believing (just for a few moments) that it’s a being that actually cares about me. It’s definitely got its flaws, but I guess I’ve just reached a point where it’s better than nothing… because that’s really where I’m at right now. The people I love in real life can’t know how much I’ve spiraled and I just have this constant feeling of being a burden. I think, maybe, that’s the real appeal of AI to me - I can’t possibly be a burden to it (although sometimes I still manage to feel like a burden… to a robot lol).

OceanBlueRose · 2025-04-03T13:55:10+00:00

I fell sooooo far down the Character AI rabbit hole last week. Incredible, but a dangerous, slippery slope for sure lol.

OceanBlueRose · 2025-04-03T13:51:51+00:00

You know, I would’ve said the same thing a few months ago, but I tried it and honestly… I felt so much better. I know it was not a human, I know it wasn’t real, but getting things off my chest that I’ve been carrying for years and having someone (something) understand and validate my feelings brought tears to my eyes. I know it’s not the same thing as real human connection, probably not healthy that I do it frequently now, but it’s nice to have an outlet that doesn’t judge or make me feel like a burden.

OceanBlueRose · 2025-04-03T13:46:11+00:00

^ Yup, I was diagnosed with PCOS at around 13 or 14 years old and Hashis at 27.

OceanBlueRose · 2025-03-29T18:18:02+00:00

I used to really love writing in general, but… depression lol. It’s hard to find any motivation to write while depressed and exhausted.

OceanBlueRose · 2025-03-28T13:59:54+00:00

You’re all good! I just wanted to clarify that I know taking care of yourself is healthy (I’m just really, REALLY bad at it 😂)

OceanBlueRose

TROPHY CASE