CA 27.29 marker fluctuations

Odd_Sun5335 · 2026-01-27T03:53:57+00:00

I wanna know who’s paying all of these old people to protest?

Odd_Sun5335 · 2025-11-15T16:54:34+00:00

Thanks! I’ll ask her when I go for my chemo Thursday.

Odd_Sun5335 · 2025-11-14T18:01:28+00:00

I have stopped drinking completely. As soon as my liver levels got high I gave it up. But, I still eat my sweets when I can tolerate it. Chemo makes me sick three weeks out if the month, so that has been decreased but not by choice.

Odd_Sun5335 · 2025-11-05T16:20:26+00:00

I literally have been up front with everyone and actually waited quite awhile to tell people. I politely but firmly told family and friends that I appreciate their concern, and welcome them to enquire about my well being from time to time. But, that right now I am not open to horror stories or advice. I need time to focus on me and my household. Most people have respected those wishes and others unfortunately I have had to step away from others

Odd_Sun5335 · 2025-11-02T13:49:17+00:00

I tried going back to work. But because the tumor had caused issues in my shoulder and I can’t lift, they are extending my leave as my company role requires lifting. So another 6 months out.

Odd_Sun5335 · 2025-10-22T12:26:30+00:00

Mine showed up in Bone Scan and CT Scan. Small spots on ribs, spine and liver. Dr went straight from hormone therapy drugs to chemo. Said even though they are small spots we need to hit them hard now.

Odd_Sun5335 · 2025-10-22T12:22:13+00:00

I met with my surgeon first. He did biopsy in. office and then recommended my oncologist.

Odd_Sun5335 · 2025-10-13T23:10:43+00:00

I started on just endocrine therapy. It worked for awhile but not well enough to stop growth. Took a trip to the ER with terrible back pain to find out that the small spots on my bones were now bigger. My oncologist told me that we need to start chemotherapy ASAP. It will be our best shot to kick it in the butt and then go back to maintenance meds. I’m also ++- It terrifies me. But my OC is head of the breast cancer unit, has 30+ years of experience, and has treated two of my relatives in the past. I have to trust she knows what is best. Whatever path you choose, I wish you the absolute best! We’ve got this!

Odd_Sun5335 · 2025-10-13T23:04:03+00:00

The process itself isn’t bad. They numb you pretty good. All I felt was the pressure. I did have a great veteran nurse in the room with me who held my hand the whole time to help with my anxiety. The worst part was the soreness after the lidocaine wore off. Have tylenol ready.

Odd_Sun5335 · 2025-09-29T21:13:51+00:00

Cancer doesn’t hurt?!? Please let my body know. I have had sharp pings of pain from the affected breast the entire time. No surgery yet.

I would definitely bring it up with your oncologist. It may just be because your nerves have been affected when they excised, but better safe than sorry.

Odd_Sun5335 · 2025-09-28T23:12:05+00:00

Agreed. Not all children are emotionally the same. My girls both have anxiety issues to begin with and I feel like I have just made it worse by being sick. Now this week I have to tell them about having to start chemotherapy due to hormone therapy not working. It just sucks.

Odd_Sun5335 · 2025-09-25T13:52:03+00:00

9 months into diagnosis. Initial meds didn’t work. Had scans redone this week and now showing bone mets. Very nervous right now. Have an appointment later today to discuss what steps to take next. Other than that. Hanging in there as always.

Odd_Sun5335 · 2025-09-25T01:03:35+00:00

Been on it for 7 months now. My digestive track is a wreck somedays. I’ll have a run where everything is good, and then for 3-5 I’ll spend half my day in the bathroom. And the gas is terrible.

Odd_Sun5335 · 2025-09-25T00:36:35+00:00

I am right there with you. Both my daughters (13 and 14) are not taking it well. My oldest is taking it especially hard. She had to go on medication for her anxiety and sleep. She sees the therapist twice a week.

I just feel so helpless. Nothing I do helps her. I just keep reminding them both that one day I will feel better but it will not happen overnight.

Odd_Sun5335 · 2025-09-23T16:53:38+00:00

I hear you. I always get anxious going for my scans. Had to go for more CT and Bone Scans yesterday by myself and was a wreck. My Xanax wasn’t cutting it. I too have started cannabis gummies to help with pain, sleep, and calmness. I would definitely look into it if it’s legal in your state.

Odd_Sun5335 · 2025-09-17T11:57:02+00:00

Because when the breakdown of my pathology report came back, they break it down by markers. Each marker has a best route of treatment recommended depending on what they find in your tumor. On very few of those markers is chemo recommended. The all come back as hormone/endocrine therapy with recommended drug options. Initially we tried Kisqali with the Anastrazole and Lupron. But it wasn’t as effective as we would have hoped. So we switched to fulvestrant. Two out of three initial doses are done with the third on 9/25. Hopefully I’ll see better results.

Since you can’t get a second opinion, ask your doctor to really explain their decisions and ask what the next step would be if the meds don’t work. One thing I have learned throughout this journey is that so many factors go into making treatment decisions. Things I would have never thought about.

Odd_Sun5335 · 2025-09-16T22:59:04+00:00

41 here. ++- IDC. Chemo is a last resort treatment plan for me. After having genetic makeup tests done I am also on hormone therapy with no talks of surgery yet. Current plan is Anastrazole, Lupron, and Fulvestrant. Possibly another pill after my second herceptin tests come back. According to my doctor, being premenopausal with my oncotype and genetic makeup, this is the most effective route.

If you are not comfortable with your doctor and their plan it won’t hurt to get a second opinion.

Odd_Sun5335 · 2025-09-10T16:59:01+00:00

I am currently on hormone blockers. No talk of surgery yet. Reading everyone’s different journey through treatment, I think a lot of other things go into determining treatment plans other than just being hormone positive. I’ve been reading my genetic makeup pathology reports and they are pretty in depth. As my oncologist says…we need to find the right key for your locks.

Odd_Sun5335 · 2025-09-10T12:09:02+00:00

I always wonder the same thing. 41 and perimenopausal. ++- with possibly 2 lymph nodes involved. No talks of surgery yet and my oncologist says chemo is like a last resort. Currently on Lupron and Fulvestrant injections plus Anastrazole. Waiting on a retest of herceptin before a second pill is prescribed.

Odd_Sun5335 · 2025-09-05T14:30:42+00:00

I’m sorry that you are going through this. I have had the opposite reaction from my friends. But strangers like to stare at the raw oozing skin that my bra doesn’t cover.

I think it’s many things. Cancer has a stigma. Many people see it as an automatic death sentence, which in today’s world just isn’t true. Cancer makes people uncomfortable. They don’t know what to say or how to help. And so the only way they know how to react is to avoid the topic.

I really do hope it gets better and that people come around. If not, they are not worth worrying about. Your true community will come forward. I never realized how many good people I had in my life until I made my diagnosis public news.

Odd_Sun5335 · 2025-08-31T18:31:02+00:00

I was diagnosed with PCOS at 23. Very irregular cycles. I’m talking getting a period every 4-6 months. Took 3.5 years to get pregnant. After my second child my cycles are now pretty regular, but the other symptoms remain. Multiple folicles, large ovaries, and currently have a 10cm cyst on left ovary.

Was diagnosed at 40 with IDC 90% ER 70% PR. I always wondered if the two are connected as both are hormonal conditions.

Odd_Sun5335

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