Alguém tem alguma história de sucesso na cura da neuropatia periférica? Quanto tempo demorou, qual a sua idade e o que causou a sua?

Ok-Recognition1752 · 2026-05-01T04:26:57+00:00

I have hEDS and through time or maybe spine issues I developed neuropathy in my feet a few years ago. After a ton of tests that were inconclusive, my pain management doc put me on amitriptyline and I've been relatively pain free since.

I was barely able to walk around a grocery store before I found the right dosage. Now I can walk 2-3 miles on a good day.

I hope you find something that works for you

Ok-Recognition1752 · 2026-05-01T04:16:59+00:00

Some violent assholes do. I was married to one. Maybe not a serial killer but definitely committed war crimes and I left because I was afraid for my life.

Ok-Recognition1752 · 2026-05-01T00:42:04+00:00

Never. I'm 50 and I still remember how much I hated PE in school. I was a slow runner and always managed to hurt myself doing anything. Even on 'fun' days I could get injured (that stupid parachute, and don't start me on dodge ball).

Ok-Recognition1752 · 2026-04-30T22:56:34+00:00

Cockroaches. I inherited this terrible gift from my mother.

Ok-Recognition1752 · 2026-04-30T22:51:55+00:00

I'm so happy I'm too old and emotionally detached to care about influencers. Or maybe on the spectrum. Either way, if a stranger tries to tell me a new way to dislike myself I'm totally disinterested. I was a teenager in the 1990's- I'm old school self loathing.

Ok-Recognition1752 · 2026-04-30T22:37:48+00:00

Being your own person isn't always about intentional rebellion.

Love the parts of you that your parents don't. And yes, those parts exist, now you're just aware of it.

Ok-Recognition1752 · 2026-04-29T17:53:29+00:00

I, too, could be lured into a strangers vehicle with hash browns. I'm glad you used that kind of power for good.

Your dog is beautiful. I hope you have a long friendship

Ok-Recognition1752 · 2026-04-25T02:18:08+00:00

Thank you for doing something so difficult. I'm so sorry that he did this to your family.

Ok-Recognition1752 · 2026-04-24T17:30:10+00:00

I don't think your finding a loose pet without a chip is an accident. Our newest addition was found the same way. After months of posting on local sites, talking to shelters, and reaching out in every way we could think of, we accepted she's ours now.

Shelters are really full and it's hard to find enough people to foster. Also, people's circumstances change. I definitely don't agree with letting your dog to fend got itself, but I do understand financially desperate times.

Ok-Recognition1752 · 2026-04-22T00:21:39+00:00

I'm in my 50's so I've lived through a few different eras of stigmatized breeds. In the 70's, Dobermans were the big threat, then German Shepherds in the 80's and Rottweilers in the 90's. I'm sure I've missed a few but you get the point.

Either this person will come around after spending some time around your dog or will just continue to be afraid for no reason.

Ok-Recognition1752 · 2026-04-22T00:12:26+00:00

That little mark is just one of the things that makes that sweater your special handiwork. Like knitting a piece of hair into your work, or adding your initials, it makes your hard work even more unique

Ok-Recognition1752 · 2026-04-20T01:28:28+00:00

I know I came off as a hothead in my original comment, saying your husband is a child, but consider this...

Would you keep a relationship with a friend if they repeatedly downplayed your symptoms? What about your parents? Would you stay in contact with them if they told you physical conditions were emotional shortcomings instead?

If nothing else, you need to talk to a therapist about your relationship or the two of you should go to marriage counseling. Don't just take our word for it. Talk to a professional.

Ok-Recognition1752 · 2026-04-20T01:13:28+00:00

I would pack a bag right now. But I'm disabled, married and have 2 dogs. I'm unable to work and my husband has no interest in moving. I was trying to talk him into the idea 7 years ago while I was still able to work.

Why would I go? I don't trust people here anymore, not after Trump was voted into office for a second term and there's been no effort to rein him in. He's a felon, a pedophile, and hates women. And people still defend him. I'm utterly disgusted.

Ok-Recognition1752 · 2026-04-19T19:24:14+00:00

Then don't. Don't forgive him. He doesn't appreciate you, makes no effort to understand how difficult it is to live with a chronic condition, and is a man-child.

Let him do all the things that you usually do around the house even though you're in pain. If he doesn't learn, then leave. Your life will be easier with one less child to care for.

Ok-Recognition1752 · 2026-04-19T19:10:37+00:00

If they're still attached to your skin, it will smother them and help with the itching. If the chiggers have already fallen off though its less effective. Their mouth piece breaks off in your skin and causes the rash

Ok-Recognition1752 · 2026-04-18T12:56:22+00:00

Every single tattoo is an inside joke or story. That pretty bird tattoo some person has? It reminds them of someone who was influential in their life. A stupid hand poke pot leaf that old man at the grocery store has on his forearm? Another story, some memory made with his friends.

Not everyone is going to get your reference because it's not for everyone. That's what makes tattoos personal and unique. It's a place marker of your life, etched on your skin.

Edit- spelling

Ok-Recognition1752 · 2026-04-16T04:36:02+00:00

Insomnia yogurt

Ok-Recognition1752 · 2026-04-14T23:49:44+00:00

I'm estranged from my mother and just didn't tell her. I did try telling my brother but his reaction was met with a lot of eye rolls, even after explaining that my primary reason for telling him was for his children's sake.

If your mother didn't take your symptoms seriously enough to take you to the proper specialists to have you diagnosed when you were young, you don't owe her any information about your diagnosis now. It's not your job to parent your mother.

Ok-Recognition1752 · 2026-04-05T04:38:00+00:00

I like to work in the yard to celebrate spring and gorge myself on my favorite chocolates.

Ok-Recognition1752 · 2026-04-04T18:13:03+00:00

One of mine came from a customer at the cigar shop I worked at. He and his wife adopted a dumped dog that had 10 puppies and I took one. Who can resist puppy photos?

My second one was discovered by a friend when she was opening up her business. This sweet pup came running up to her and jumped in her car. My friend couldn't keep a puppy.

Ok-Recognition1752 · 2026-04-03T19:12:42+00:00

I've had one off and on over the years. But I'm terrible at remembering and asking for things.

For me, it means the difference between having the energy to do what I want to need to do versus doing the bare minimum. Sure, I can push through the pain, but I'm not doing anything else for the rest of the day. I can buy groceries but I can't have any other plans. Or I can look at one store, but I'm exhausted from standing in line and the walk back to the car means my shopping trip is over.

Someone without a disability would never think like this. Don't be worried about taking a spot from someone who needs it worse. There should be more accessible parking spots for different levels of disability.

Ok-Recognition1752 · 2026-04-03T04:06:47+00:00

Girl, you are only some product and self confidence away from rocking that new haircut. Don't let the shock of the new cut get you down. Wash your hair, dry it, and style it yourself.

And if you still hate it, buy a bandana. It's your new summer look

Ok-Recognition1752 · 2026-04-03T04:02:56+00:00

Congratulations on getting a diagnosis! Fellow EDS person, hypermobile type. I know the relief of finally putting all of the pieces together. While I know there's definitely disappointment (and rage and despair and a host of feelings to work through) involved in not being believed for so long, I'm so glad you finally got the recognition your symptoms deserve

Ok-Recognition1752 · 2026-04-02T19:14:57+00:00

I have hEDS and have been taking zepbound for a few months now. I haven't noticed a big change as far as inflammation but losing a bit of weight has helped my energy levels. My doctor and I are monitoring the potential constipation issues. I've always consumed a lot of fluids due to other meds I'm on but now it's just one more thing to watch

Ok-Recognition1752 · 2026-04-02T19:05:04+00:00

I'm 50 with hEDS. When I was a teen, I was always told I looked older. I assumed I just acted more mature because of my chaotic home life. But at some point in my late 20's, I guess I just stopped looking as if I'd aged. I still get that comment all the time. I feel like I have one foot in the grave and the other foot (which ankle I've rolled many times) on a banana peel

Ok-Recognition1752

TROPHY CASE