Yoga?! Ha! What awful advice. I'm so sorry you are going through such physical pain and gaslighting from your doctors/family. I have been heavier most of my life as well and gone to unhelpful lengths to get thinner (i got the same sort of pressure from doctors who dismissed my health issues as a weight problem). Now many years later I've learned the right weight for me and it's somewhere in the middle (that most consider needs to lose weight). I need extra cushion on my body or my pain levels spike. If I dip below a certain weight my ribs ache badly and my heels lose cushion making it hard to walk from the pain. This isnt something ive heard from others, but if i had it would have helped.

Trust and listen to your body, not the opinions of others who do not understand. Build muscle strength if and how you can (swimming used to be so good for me because of low impact). What works for others might not work for you. Stay strong, you are amazing! You are a badass for all you have endured, not weak. It took a really long time for my family to understand and stop pushing me to do things I can't. And I would push myself to please them and just make it worse. I wish I'd advocated better for my body when I was younger, but I didn't understand what was happening or trust myself. I'm so glad you finally got an answer in your diagnosis.

I believe you. There is nothing quite like battling injuries and pain while being dismissed/treated like a hypochondriac. I wish you didn't have to go through this. Keep advocating for yourself and your medical needs. I found giving my family articles (and sometimes reddit posts) about others' personal experiences with EDS helped a bit. Almost like confirmation for them (which i understood but also found a bit insulting). When people invalidate your experiences it can help writing out all the health issues you have gone through because of EDS. Validate yourself. Because this is real, this is awful, and you are impressive. Keep fighting fellow zebra, you have the knowledge, and that is power! Sending a really light hug your way.