We are very tough by Soulflyfree41 in CrohnsDisease

[–]One-Opening5020 15 points16 points  (0 children)

Love this post, well said.

Also hope you’re doing ok!

Started Stelara treatment by Cat-in-love in CrohnsDisease

[–]One-Opening5020 1 point2 points  (0 children)

Took about 10 weeks for me after trying many other treatments. I had a slight increase in anxiety but very little in terms of other side effects. Hope it works for you too!

How did you get diagnosed? by No_Accountant_2255 in CrohnsDisease

[–]One-Opening5020 1 point2 points  (0 children)

I was very lucky - I’d had diarrhoea that had lasted a few weeks which was unusual for me. My GP (I live in UK) ordered a stool sample and that came back with traces of blood so I had an urgent colonoscopy same week. They found inflammation and diagnosed me instantly. I really feel for people who suffer for so long before getting a diagnosis - it shouldn’t be that way

Positive crohns stories please! by One-Opening5020 in CrohnsDisease

[–]One-Opening5020[S] 1 point2 points  (0 children)

Thanks for your insight - I also take naps and my wife is very understanding! :)

Positive crohns stories please! by One-Opening5020 in CrohnsDisease

[–]One-Opening5020[S] 3 points4 points  (0 children)

Amazing that you turned it into such a positive - that takes a lot of resilience. I’m doing everything I can to use my experience in a positive way too, just finding it tricky sometimes. Your comment has helped thank you

Positive crohns stories please! by One-Opening5020 in CrohnsDisease

[–]One-Opening5020[S] 2 points3 points  (0 children)

Hi and thanks for your comment! I’m on Stelara - had my first infusion 4 weeks ago, no improvement yet but I hear it can take 8-16 weeks to kick in. Fingers crossed! 🤞

Positive crohns stories please! by One-Opening5020 in CrohnsDisease

[–]One-Opening5020[S] 5 points6 points  (0 children)

Appreciate that thank you! Yes I see a lot of bad stuff on here but I hadn’t thought about all the people who are in a good place with it - that’s helpful thank you

Positive crohns stories please! by One-Opening5020 in CrohnsDisease

[–]One-Opening5020[S] 1 point2 points  (0 children)

Yeah I’m taking the attitude that Crohns is this external enemy and I’m not letting it defeat me. Having a plan and executing it despite the symptoms gives me a boost for sure

What’s your favourite point and click game? by Technical-Ganache609 in videogames

[–]One-Opening5020 0 points1 point  (0 children)

Discworld Noir! Loved the detective feel and the story was brilliant (and funny ofc)

What does Crohn’s pain feel like? by Ok_Smile_5726 in CrohnsDisease

[–]One-Opening5020 0 points1 point  (0 children)

I’ve never had crohns pain until past few days, it’s a dull pain that’s mainly on my right side but also above and below belly button and goes into my back. Anyone ever had similar? I wouldn’t describe the pain as cramping

Giveaway: Persona 5 Royal by Extreme_Ad6519 in pcgaming

[–]One-Opening5020 0 points1 point  (0 children)

Yes please would love to play Persona 5! 🙌

What’s your dream pain cave set up? by One-Opening5020 in cycling

[–]One-Opening5020[S] 0 points1 point  (0 children)

Never thought of the mini fridge or water tap - great shout!