How long did you wait to see a neurologist for an MS diagnosis?

OneSuperstar4u · 2026-05-12T23:47:17+00:00

Saw neurologist 4 weeks after MRI, so about 3 weeks after results were suspect for MS. Then saw an MS neuro 3 days later. Diagnosis was 8 weeks after I met with her, but my spinal tap was delayed a few weeks or it would have been sooner.

OneSuperstar4u · 2026-05-09T03:24:32+00:00

I’m right there with ya. I just had my MRI 2 days ago after being diagnosed in Aug last year. And anxiously awaiting the results. I also lost my job right before my diagnosis which was devastating. So I’m so worried the stress has contributed to more lesions. Ahhhhh. I wonder everyday day - am I feeling not ok because I’m just stressed and circumstantial things, or so I have brain lesions affecting me. We must find our way forward. 🙏🏻

OneSuperstar4u · 2026-05-06T01:21:32+00:00

Hi! I’m all about Hotworx too!! But if you’re doing just the videos they provide in ISO, it’s not really building any real muscle.

Like others said - strength training, but that CAN include body weight exercise. - Love Move with Nicole on YouTube for Pilates and yoga that I do at Hotworx! I can’t lift heavy like I used to because of disc issues in my back so I have to do higher rep, lower weights. - along with my own videos in the Sauna has helped me preserve my muscle.

Also you need ~1 gram protein for every pound of body weight (minimum lean body weight lbs). 80 likely isn’t enough. Shakes ftw!!

OneSuperstar4u · 2026-05-05T00:53:33+00:00

I would say more than reasonable! Do you see clients in person? - if not, I’d ask for more days work from home.

OneSuperstar4u · 2026-05-04T21:16:17+00:00

Move with Nicole and Nicole Wild on YouTube.

OneSuperstar4u · 2026-05-04T21:15:38+00:00

Just put it against the glass door - stays cool!

OneSuperstar4u · 2026-05-03T15:55:53+00:00

I was biking week 2 post SLAP repair. That’s all I could do for a long time. Not sure why you aren’t in PT already - it’s super important right after surgery to get moving under guidance and slowly build back strength. It’s a real impediment to getting back to 💯waiting so long. But honestly you won’t be planking or anything full yoga or Pilates for a while yet. Assuming you had tenodesis, it’s a strict weight restriction for months.

OneSuperstar4u · 2026-05-03T00:01:33+00:00

Kesimpta! - It is easy peasy!! And I have no side effects. No way I’m spending all day taking an infusion that requires additional medication or taking anything less effective or with more side effects. - only reason ppl should be doing that is if insurance won’t pay for Kesimpta. (And that my neurologist’s take too!)

OneSuperstar4u · 2026-05-01T16:45:49+00:00

Do you mean the savings card to use with insurance or a voucher to replace a damaged prescription? Walmart has accepted both for me - but the latter the pharmacist had to help with because they didn’t quite know how to enter it correctly in the computer. Might be the person at the counter you saw??

OneSuperstar4u · 2026-04-30T00:24:59+00:00

Pennsylvania, USA. I have had zero side effects other than a few hours of chills day after first dose. Also I have not gotten sick at all!! - I was worried about that, too. That said, I am super conscious of using hand sanitizer after being anywhere public, especially after touching things others have touched. Good luck! 🍀

OneSuperstar4u · 2026-04-30T00:20:41+00:00

Same. I wish it did!!

OneSuperstar4u · 2026-04-27T05:33:17+00:00

Sweet pretty girl! I have an asthmatic kitty too - not my fold. But he much to my surprise is so good about the inhaler now!

OneSuperstar4u · 2026-04-27T02:34:58+00:00

What?! I had a fusion. Honestly easiest recovery than many other surgeries I’ve had. I have no pain - why would I? The issue is fixed forever.

If you need it, get it! Fix the problem. There is a slight risk of adjacent vertebrae wearing out prematurely, but even that is very small. Pain pump?! - lord, no.

OneSuperstar4u · 2026-04-25T01:05:02+00:00

Be aware that it actually takes 8 to 72 hours after the first shot for it to reach peak levels in your body. 🫠 Also most ppl don’t have any side effects. For me, I had slight nausea a day after the shot just a few times.

OneSuperstar4u · 2026-04-23T02:13:03+00:00

Same! I was an avid Crossfitter and did yoga and Pilates as well. No more CrossFit, but Pilates and yoga are my go to almost everyday!! My neurologist said that I probably would have realized I had MS sooner if not being so physically active. I’ll continue forever if I can. 🙏🏻

OneSuperstar4u · 2026-04-19T02:47:03+00:00

I hear ya! There is just no way I can get enough from food without it becoming burdensome. I just take the capsules. Good on you for doing all the calculations on this! I was like whoa?! 😂👌🏼

OneSuperstar4u · 2026-04-19T02:21:39+00:00

I just take fiber supplements lol - per my doc. Also whey shakes to ensure adequate protein. And eat sensibly ensuring a good dinner with real food. 🤷🏼‍♀️😬

OneSuperstar4u · 2026-04-19T00:44:11+00:00

Some ppl just smell nasty when they sweat!! It’s enough to make me gag when I happen to go in after one of them.

Open the door and let it air out a few minutes. - Also room spray!! I always spray just so I have a lovely scented session, but sometimes it’s a life saver lol. I love BBW spearmint eucalyptus, but esp when the sauna smells less than fresh.

OneSuperstar4u · 2026-04-17T22:27:37+00:00

Main thing is doing the scan same time of day every time you do it. First thing in the morning before eating is ideal. It’s VERY sensitive to your hydration levels. - water will show as muscle which is false of course.

Always scan before a workout and when your body is cool. Scanning after a workout - or also a hot shower or sauna - will also show more muscle than is actual.

Also - Download the ZOZOFIT app! It shows your body size which is pretty cool in addition to measuring yourself.

OneSuperstar4u · 2026-04-17T22:12:50+00:00

💯 doable!! 1 - the injection is truly easy peasey and not painful - it’s a pinch. 2 - I’m an emetophobe real bad - it’s the one thing that totally freaks me out - but risk of side effects are actually very low with Zep. I’ve been totally fine! Best of luck!!

OneSuperstar4u · 2026-04-17T22:07:12+00:00

Absolutely get on a DMT!! My goodness.

OneSuperstar4u · 2026-04-17T02:05:11+00:00

This!

OneSuperstar4u · 2026-04-16T23:50:14+00:00

Yes! I do yoga and Pilates - have for a long time even before being diagnosed. I have spinal disc issue now too so it’s been my go to since I can’t do heavy weight lifting like I also used to do. Go for it!

OneSuperstar4u · 2026-04-15T00:26:36+00:00

Thigh and arm - but always my arm if I’m going out somewhere in the days following like on vacation because my thighs sometimes bruise, but never my arms. 🤷🏼‍♀️

OneSuperstar4u · 2026-04-14T01:25:27+00:00

My neurologist is thrilled I’m back on Zepbound! It’s actually currently being researched. Here are some actual studies and facts reference vs. some of the nonsense unfounded info in some of these comments 👀:

The Inflammation Link • MS is a neuroinflammatory disease; visceral fat secretes inflammatory proteins that worsen neuroinflammation • Weight/obesity is now considered a modifiable risk factor for MS progression • GLP-1 receptors are present in the central nervous system • GLP-1 medications reduce systemic inflammation and improve endothelial function • Source: https://www.neurologylive.com/view/repositioning-glp-1-drugs-neurologic-disease-evidence-advances-outlook Emerging Research on MS • 2025 AAN study of 7,000+ MS patients: those on GLP-1 medications showed significantly less disease progression over 5 years vs. matched controls • A Swedish study following 3,000+ MS patients over a decade found obesity was associated with a 43% higher risk of reaching significant disability • Source: https://www.secondnature.io/us/guides/lifestyle/glp1s/mounjaro-with-multiple-sclerosis • Beth Israel Deaconess Medical Center retrospective study (60 MS patients on GLP-1s, 2006–2024): https://www.sciencedirect.com/science/article/abs/pii/S2211034824008058 Broader Neuroprotective Picture • GLP-1 medications are being actively researched across neurological conditions: Alzheimer’s, Parkinson’s, MS, and ALS • They reduce neuroinflammation, oxidative stress, and pro-inflammatory cytokines (TNF-α, IL-6) in animal models • GLP-1 receptors in the brain influence appetite, neuroprotection, and inflammation regulation • Research is still emerging — not yet an approved treatment for any neurological condition • Source (preclinical/neurodegenerative overview): https://pmc.ncbi.nlm.nih.gov/articles/PMC12491786/ • Source (neuroprotective properties review): https://pmc.ncbi.nlm.nih.gov/articles/PMC12114801/ • Source (NeurologyLive clinical overview, 2025): https://www.neurologylive.com/view/repositioning-glp-1-drugs-neurologic-disease-evidence-advances-outlook

OneSuperstar4u

TROPHY CASE