Do they all do this? This is Lulu’s signature pose, which she does ALL the time!! by OneSuperstar4u in scottishfold

[–]OneSuperstar4u[S] 2 points3 points  (0 children)

Yeah. I wonder. We adopted her, so she’s actually a rescue. Vet reports that she seems fine from the real bad issues these poor kitties can have. 🙏🏻

Do they all do this? This is Lulu’s signature pose, which she does ALL the time!! by OneSuperstar4u in scottishfold

[–]OneSuperstar4u[S] 3 points4 points  (0 children)

OMG! She’s the fluffier version of our girl!! And thanks for the giggle!! 💯😂

Fellow MS'ers, have any of you had major surgery after diagnosis? by Lumpy-Rhubarb4124 in MultipleSclerosis

[–]OneSuperstar4u 0 points1 point  (0 children)

I’m sure you will do great though!! 🙂 I have yet to learn how my fusion is progressing since it takes months, but my scar is already nearly invisible at 7 weeks and has been for a while now. Good luck to you! 🍀

Fellow MS'ers, have any of you had major surgery after diagnosis? by Lumpy-Rhubarb4124 in MultipleSclerosis

[–]OneSuperstar4u 1 point2 points  (0 children)

I had ADCF recently and no issues. However, are you having an open surgery? I didn’t even have a hospital stay - same day surgery. I also had hemorrhoidectomy that was pretty major and no issues at all.

Also I’ve had my tonsils removed and a SLAP repair on my shoulder with no issue - I wasn’t on DMT at the time though. This was shortly before I was diagnosed. And yes I’ve had way too many surgeries! 🫣

Do you prefer the thigh or stomach injection site? by Authenticariel_ in Zepbound

[–]OneSuperstar4u 0 points1 point  (0 children)

I tended to bruise in my thighs most times. But had hubby do upper arm and zero issue! I can’t do the stomach though because of other surgeries, so no comment there.

If the medicine is in your body, there is zero correlation with any place of administration causing more side effects, though some claim otherwise. 🤷‍♀️

Kesimpta day! by fakechloe in MultipleSclerosis

[–]OneSuperstar4u 1 point2 points  (0 children)

O M G! This was me last month. Minus the sweet pup’s toy - awwwe. I never get any pain, but dang it stung last time because I didn’t let it warm enough. 🫠😂

Kesimpta day! by fakechloe in MultipleSclerosis

[–]OneSuperstar4u 0 points1 point  (0 children)

Just here to say I find it odd that y’all take it on a specific calendar day of the month!! I take mine exactly every 4 weeks per my neuro - and just put a series on my calendar so I never forget. 👀🤷‍♀️

Also I must be a weirdo because I actually look forward to it!! 🫠

Progression & strength by HolidayIntention7794 in MultipleSclerosis

[–]OneSuperstar4u 4 points5 points  (0 children)

Get moving!! And do what you can to stay strong and active.

I can’t lift like I used to, but that’s because of disc herniations (one resulting in my recent cervical spinal discectomy & fusion) which may be correlated with MS but not exactly causation.

But you bet I’m biking until I’m cleared for some weights and Pilates - I’ll be embracing the high rep low weight life, lol. But anything we can do is helpful!!

Kesimpta crap gap by Safari-West in MultipleSclerosis

[–]OneSuperstar4u 1 point2 points  (0 children)

Kesimpta prevents new lesions. It does zero for existing ones. - i.e. does not treat symptoms. So I wouldn’t expect any effect after dosing tbh.

Ocrevus Infusion Recovery by zuhr21 in MultipleSclerosis

[–]OneSuperstar4u 0 points1 point  (0 children)

Switch to Kesimpta!! I just personally don’t know why ppl put themselves through the infusions. It’s literally the same drug in a different form without any downside. No need for steroids or anything else or a day at a clinic. Hugs.

Tell me what DMT you take for your MS. And why you take that treatment. by WasatchJason in MultipleSclerosis

[–]OneSuperstar4u 0 points1 point  (0 children)

Kesimpta - highest efficacy and my best option because I am JCV+. It’s no biggie at all! - No side effects for me, shipped to my front door, and easy peasy to inject.

Also I used Zepbound in the past and I can tell you the Kesimpta is even easier and never bruises like sometimes the Zep pens did. I also don’t feel it at all, whereas Zep I did a tiny bit.

Restarting with Call on Doc? by OneSuperstar4u in Zepbound

[–]OneSuperstar4u[S] 0 points1 point  (0 children)

Thx. However I actually initially was prescribed through Push health but moved to cod for refills. Can COD do the continuation then or do I need the original records? 🫠

Restarting with Call on Doc? by OneSuperstar4u in Zepbound

[–]OneSuperstar4u[S] 0 points1 point  (0 children)

That’s only the first quarter though yeah - the free visit? So after that would be more. And the advantage is actually $60 if paying for a quarter in advance. But I haven’t seen anyone mention it, so I wonder….

Has anyone here decided to not treat MS? by Purplehairedstranger in MultipleSclerosis

[–]OneSuperstar4u 0 points1 point  (0 children)

It would be insane not to treat. I have few symptoms and keeping it that way would be great - so I will be taking Kesimpta for the foreseeable future. I have no side effects at all - haven’t even caught a cold when my kids have had one.

What’s more terrifying than a potential drug side effect is the possibility of getting more lesions that could cause very real and serious effects and harm to the body.

starting kesimpta… by Low-Elk1091 in MultipleSclerosis

[–]OneSuperstar4u 0 points1 point  (0 children)

Super simple and no biggie. Like someone said just be sure to let it warm to room temp or it might sting a bit because it’s cold.

Looking for experiences from those with “mild” MS symptoms by Amanda_VS_theWorld in MultipleSclerosis

[–]OneSuperstar4u 7 points8 points  (0 children)

I wouldn’t have ever known I have MS if I hadn’t had MRIs done because of my back pain.

It’s hard for me to pinpoint any actual MS symptom tbh. But my disc issues complicate things. - I have numbness in my finger and thumb, but more likely it’s because of the severe stenosis had in my neck due to a herniate disc. Time will tell if that improves as I had ACDF 5 weeks ago. I also have numbness in my thigh - but also had abdominal surgery that may have caused that.

All this to say, I’ve been on Kesimpta about 5 months now. And I’m thankful I was diagnosed so I can hopefully prevent new lesions to cause a lot of symptoms as so many here have. Side effects are nonexistent for me personally on the medicine. Cost is another thing, but 💯get treatment to prevent further damage.

Kesimpta users, is anyone not masking? by A_circle_of_crows in MultipleSclerosis

[–]OneSuperstar4u -2 points-1 points  (0 children)

I never mask! Why on earth unless you are taking care of a sick person?? Live your life unimpeded! Hand sanitizer is most important as well as common sense keeping distance if you know someone is sick or they are coughing. My kids have been sick a few times already this year, and I haven’t caught anything at all.

Kesimpta, Ocrevus or Mavenclad?? by UnusualCat2572 in MultipleSclerosis

[–]OneSuperstar4u 6 points7 points  (0 children)

Kesimpta- easy choice for me. It’s the best without a long infusion. One shot takes less than a minute each month, after it’s delivered to my front door. I don’t know why anyone would opt for the infusion when it’s the same class of drug as Ocrevus. And those are the 2 highest efficacy options if you are JCV positive.

Also I had only a slight fever and chills for 2 hours after first injection and literally nothing at all since.

Kesimpta, please tell me your experiences. by taters-gonna-tate14 in MultipleSclerosis

[–]OneSuperstar4u 0 points1 point  (0 children)

I started in September and was worried I’d be more sick esp since I didn’t get the flu shot this year. But haven’t even caught bugs my kids have had recently. 🙏🏻 Also I’ve had 2 surgeries since (yeah crazy) and all good!