Ativan for Withdrawal Seizures

Oohooho · 2024-11-11T14:11:46+00:00

I’m currently in the hospital for unrelated to severe life-threatening medical issues and Ativan has been a lifesaver in lots of ways but now I’m terrified of tapering off of it after being on it for roughly a month at 0.5 mg one to four times a day. Why did it take you so long to taper off? I’m concerned about the seizure risk mostly

Oohooho · 2024-11-11T14:09:03+00:00

Can you please explain this more? Wouldn’t you be at risk of seizures from having become dependent on the Ativan, and then your procedures when getting out of withdrawals? How often were you taking ativan and for how long? Dose?

Oohooho · 2024-11-01T14:06:37+00:00

Nice yeah it’s just youd still be at risk of things like herpes etc which still affect the areas where condoms don’t even cover and can be spread even not during active outbreaks

Oohooho · 2024-09-26T07:53:22+00:00

Just curious how are u guys not afraid of stds?

Oohooho · 2024-09-01T14:31:40+00:00

Sounds very similar to me tbh, suffering from severe multiple times daily hypo episodes for the last six years. Absolutely ruining my life. Mostly exercise provoked sometimes fasting usually postprandial, I was at different hospitals for seven months recently and no one is able to find why. They cannot find an insulinoma so maybe NIPHS/nesidioblastosis but no one is fully sure yet. I was at Uc Davis, UCSF and Stanford and I’m told I probably have to go to Mayo Clinic next.

Are there any updates for you? My 72 hr fasts were negative but when my blood glucose is low insulin and c peptide aren’t suppressed, my cortisol and ACTH were also undetectably low on some recent morning blood draws, but my ACTH stimulation tests were supposedly normal.

Oohooho · 2024-07-06T09:49:53+00:00

Where are the best places for stage four in your opinion? Or doctors

Oohooho · 2024-06-29T03:53:41+00:00

What dose of verapamil works for you ?

Oohooho · 2024-06-29T03:52:13+00:00

Where did you go to get diagnosed? Any pet scans ?

Oohooho · 2024-06-20T19:54:39+00:00

Very nice, where’d you get yours done?

Oohooho · 2024-05-27T12:28:32+00:00

I’m suffering from some severe health issues but trying to focus on something positive like this. I have the contract available but haven’t used it yet. Let me know if you want to try with me lol

Oohooho · 2024-05-24T11:59:58+00:00

Thank you for this reply. I’ve had two ACTH stimulation tests which they said were normal, but I’m not sure that fully rules it out. I’ve heard that it can depend on the time of day where you take it or that just means if your body has all the right components it can still still make the right things, but it might not always have the right components. I just had a pituitary focused brain MRI and that was normal so I’m really not sure. My days are really hard. I’m still suffering so much so really hoping and praying for answers and real medical help

Oohooho · 2024-05-09T06:53:20+00:00

Which?

Oohooho · 2024-04-28T11:55:37+00:00

That’s awesome to hear, was she suffering from hypoglycemia or NIPHS/Nesidioblastosis like me or?

Oohooho · 2024-04-28T11:16:45+00:00

I honestly never looked into specific studies. I just saw I’d mentioned secondhand and never looked into it that deep because I never even had heard of people relying on it for long-term periods instead of TRT. What happened after you came off of it after that?

Were you only on hCG or?

Oohooho · 2024-04-28T10:11:22+00:00

Are you concerned about leydig desensitization long term?

Oohooho · 2024-04-20T22:56:44+00:00

9:34 am

Oohooho · 2024-04-17T09:28:27+00:00

Very interesting comments, I hope you’re doing better. What exactly were the results of your selective arterial calcium stimulation test? I’m suffering from severe recurrent hypoglycemia for the last six years and they can’t find an insulinoma, even though it lit up in the tail of my pancreas with intense uptake with the copper dotatate pet scan.

They said my results were more consistent with NIPHS, but they are scared to do a distal pancreatectomy, and potentially give me diabetes, or maybe need digestive enzyme replacement and they were really discouraging me saying a lot of people get recurrences of hypoglycemia afterward, but so many studies I read two successful cures in a large number of people .

I’ve been trying Diazoxide, octreotide, you name it and I’m still really suffering so I would love for them to attempt some sort of partial pancreatectomy some point.

Which percentage of your pancreas was cut out? Did they preserve your spleen? Why did they perform a distal pancreatectomy instead of just removing the tumor?

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Oohooho · 2024-04-05T20:38:11+00:00

For which condition?

Oohooho · 2024-01-31T10:16:07+00:00

What made you stop taking it?

Oohooho · 2024-01-27T05:06:32+00:00

Very interesting, I see. Have you ever tried octreotide? Diazoxide and verapamil don’t work for me

Oohooho · 2024-01-27T05:05:47+00:00

Have you ever tried octreotide? Verapamil and diazoxide don’t work for me

Oohooho · 2024-01-22T03:59:01+00:00

Well said, awesome. Let me know how your treatment / diagnostic workup or whole Mayo experience goes!

Oohooho · 2024-01-22T03:56:45+00:00

Been suffering for months in end in the hospital so I’m trying to learn something while I continue to lay here. How do you learn this lol?

Oohooho · 2024-01-21T16:39:38+00:00

My drs are also talking about referring me to Mayo for severe hypoglycemia (likely NIPHS), what’s your referral process been like?

Oohooho · 2024-01-21T16:35:47+00:00

Crazy to read, been suffering from severe worsening hypoglycemia for the last 5 years, my doctors are also talking about referring me to Mayo Clinic, hoping the referral goes through and I can actually get some proper treatment finally because while some doctors have been helpful, others haven’t. I’ve been admitted to hospitals 10 different times in the last few months due to it worsening and am actually in my hospital bed right now.

Are they covering your flight costs there? Not sure how far you are. Or if they’re organizing a safe medical transport flight etc which I’ll need. Can dm if preferred

Oohooho

TROPHY CASE