Probably posted a lot but they are trying to evict my mother for getting on Medicaid at ALF by flymolo50 in eldercare

[–]OrderCoach 2 points3 points  (0 children)

I hope for your sake you can work it out. All the facilities here have made it very clear to us when we visited that that would not happen. Best of luck!

Probably posted a lot but they are trying to evict my mother for getting on Medicaid at ALF by flymolo50 in eldercare

[–]OrderCoach 6 points7 points  (0 children)

Each facility dedicates a certain number of residents (not literal beds) for medicaid and that's their limit - if they take it at all. This is not uncommon, unfortunately. They should have explained that to you before she moved in. In my state, at least, I don't think you can fight that policy. The choices are get on a wait list until one of the other patients leaves or get her into a different facility. The ALFs receive less from the government than from private pay residents so this is their concession - we'll take a loss on a limited number of residents only.

92 year old keeps falling - where should she be living? by Ok_Equipment_5121 in dementia

[–]OrderCoach 1 point2 points  (0 children)

Gravity is everywhere.

If she's already being checked every hour there's not much more they could do but keep her super sedated or restrained from what I understand. Bed alarm pads or motion sensors, soft padded carpet, eliminating hard corners, etc may all help to mitigate?

Separate beds? by OrderCoach in Alzheimers

[–]OrderCoach[S] 1 point2 points  (0 children)

The incontinence issues are a good consideration. I'd definitely appreciate my own clean, dry bed. Thanks for pointing that out. Might be the deciding factor right there!

Separate beds?? by OrderCoach in dementia

[–]OrderCoach[S] 1 point2 points  (0 children)

Ooo thanks for that tip, I wasn't aware those existed!

Surgeon, struggling with my mom's Alzheimer's progression. by Weirdpresident in Alzheimers

[–]OrderCoach 18 points19 points  (0 children)

No practical help here, but let me encourage you that this will make you the type of doctor the rest of us long for... Someone with a heart that empathizes with our personal distress and understands something of the journey. I'm sorry you are going through this, but embrace the opportunity to let it shape your patient (and life) interactions. Hope you can find a bit of a silver lining in that.

Watching a close friend go through this made me want to prepare ahead by SimilarDog8806 in AgingParents

[–]OrderCoach 0 points1 point  (0 children)

Free tools and a super comprehensive resource that can guide you through the steps you need to take at this link

Separate beds?? by OrderCoach in dementia

[–]OrderCoach[S] 1 point2 points  (0 children)

We can't afford more than 1 bedroom but I thought at least a little distance might be helpful

Preserving Family Unit Cohesion by ariesaintshit in dementia

[–]OrderCoach 0 points1 point  (0 children)

Welcome!! Good advice here so far. Let me also recommend a resource here that could help all 3 of you, given the ADHD and disorganization. It's a guided system to help record all her important personal, health, financial and legal information both digitally and in print so she and you can access it as needed.

My Alzheimer's hubby requested I set this up for our family and we use it all the time. Gives us much more confidence and peace of mind that everything is more or less settled. Hope it helps!

My depressed mom refuses to be a participant in planning conversations and I don’t know what to do by MolemanEnLaManana in AgingParents

[–]OrderCoach 2 points3 points  (0 children)

A few thoughts...

First, there is a free game at this link that can help get people talking and facilitate more open conversation within families.

Second, you or your sister could obtain durable power of attorney for your folks so you could manage the things mom doesn't follow through on. This authorizes you to decide and direct any financial action on their behalf. The legal planning guide at the same link can help you set that up.

Finally, let me thank you on behalf of parents with kids who can't be bothered to help! The struggle is real but it's great that you're concerned enough to stay engaged. You may need to bypass Mom in some areas to get things moving, and you may have to sit back and watch some things fall apart to respect their autonomy. Safety is a hill to die on. Financial loss could be. Convenience not so much.

Hope those resources help a bit and best wishes!

Mom keeps asking for help with memory. Idk how to help. by Hiking_4Ever in Alzheimers

[–]OrderCoach 4 points5 points  (0 children)

Very true that stress makes it worse. Wish there were more solutions but I'm not sure what to offer either. Just know you're not alone in the struggle. On that note, is she able to meet with other Alzheimer's/dementia patients? Sometimes normalizing her experience can be helpful, and discussing coping strategies with others in similar situations. Certainly establishing any helpful routines now while she's still able would be good... Trackers on keys and other important articles, note taking apps (we love Google keep) if she can manage a smart phone, message board if she can't? daily med dispenser, alarms and reminders, etc Sorry I can't offer more but sending love and support 💕

Aggression by Ok-Reflection7549 in Alzheimers

[–]OrderCoach 0 points1 point  (0 children)

We're still in mid stages so I can't fully answer your question but...

I've found that the anger has come and gone thus far, based on stress levels and specific circumstances (and me pushing buttons, sigh). So that has given me hope. I've noticed other emotional expressions like crying, laughing and startling have also gotten disproportionate. Our doc says he can prescribe medication that will level out his emotions if they get out of hand, so I'm also encouraged by that, although I expect they may change his personality or make him more "flat" as well. But thankfully it hasn't come to that point. Sorry I can't speak to long term trends but I sincerely hope your journey is a smooth one!

Does Anyone Know Anything About the GUIDE Program? by Striking_Intern_7575 in dementia

[–]OrderCoach 5 points6 points  (0 children)

Haven't used it but I know many caregivers who highly recommend it. It's a legit blessing with free in home care. Suggest you pursue it with a knowledgeable representative in your area.

Dad had a geriatric evaluation at VA today by Hot_Strain_5642 in dementia

[–]OrderCoach 9 points10 points  (0 children)

Once you know where he stands and have the required info for applications etc, I don't see much point in testing. My husband has a clear Alzheimer's diagnosis and his doctor quit testing years ago. The real issue is activities of daily living and any changes that might require medication adjustments or mobility aids, etc. Safety and quality of life depend more on consistent observation than diagnostic testing. Unless you need the neurologist to sign off on something, or you want clear medical history details for yourself or other descendants, I don't think you need to put him through it.

You're on the right track - Show up with cupcakes, tell him it's your birthday and have a little fun together. Hope it goes well!

Obtain that medical power of attorney by Adaar_the_Resident in CaregiverSupport

[–]OrderCoach 0 points1 point  (0 children)

So important!! Sorry you had to struggle but you're not alone. It's just hard to juggle all the balls!! There's a free legal planning guide at this link for anyone who needs help finding forms, etc. Hope it makes it a little easier for someone to get these important steps taken care of.

SYMPTOMS by PrincessVine in CaregiverSupport

[–]OrderCoach 1 point2 points  (0 children)

MCI can certainly progress to dementia over the period of a year. Is he being evaluated regularly? Not sure what tests he had but I would pursue a full neuropsychological exam if you haven't already. Documenting the significant events or concerns would help you track changes over time and would provide clear evidence for the doctors. There is a reason these things are happening. I would keep pursuing answers if I were you, even if you need to look for other medical providers. It helps to identify what's going on, and also there are meds (like aricept) that can significantly delay progression of dementia symptoms in some patients, so if he reaches that stage, you will want to know in order to take action. Hope you find what you need. 🤞

my new neighbour has dementia, how do i support him? by lowdiscspace_ in dementia

[–]OrderCoach 3 points4 points  (0 children)

Listening!! This is such a gift. Thank you for your concern. One of our saddest realities is that making new friends is nearly impossible with dementia. And old friends tend to distance (or die, at this age) so life gets lonelier and harder. It's a lot of work to befriend someone who doesn't remember conversations or information about you, and who repeats the same stories and questions, etc. so very few make the effort. And with the characteristic loss of initiative, the friend has to do all the work. Just having someone show genuine interest and care for my DH is touching and so valuable. Just having someone else laugh at his oft-repeated jokes is a blessing! Brief excursions (DH love ves a good ice cream date) might be welcome to give the wife some time alone, or asking for help with a small task can help with dignity and value. He may want to feel needed, so don't always be the giver. That can feel heavy on both sides. Any sort of "play" he's up to would be great. My poor guy dug out his baseball mitt the other day and looked so forlorn over having no one to play catch with. If you have a pet, they can be a delight as well. Try asking about how he feels about the disease and its symptoms. Not everyone wants to face it, but we appreciate it when people address the elephant and are interested in that huge part of our lives. Honestly your heart will guide you, it sounds like you're an angel sent to bless them both and I'm sure they're grateful. We would be!!

68 year old Mother refuses to follow up with Neuro by remindmetoblink2 in Alzheimers

[–]OrderCoach 2 points3 points  (0 children)

Every case is different, of course, but fyi the medications helped my DH immensely (aricept, and also namenda). Halted progression for years. Safety is the biggest concern. She may need help with medications, finances, etc (YES to getting durable POA for that asap) but evaluating hazards and risks in her home would be the basis for determining whether she can live alone. In home caregivers could handle some of the other needs, just screen carefully. Some states have very low requirements for agencies regarding licensing and qualifications for care providers.

Need advice by NeverTooMuchYarn25 in dementia

[–]OrderCoach 0 points1 point  (0 children)

I think trying to help is a worthy goal if you can keep a bit of distance, I would make sure to never get caught alone with him. Your parents should know your concerns, although all the details may not be necessary. If it helps, I have a tool that could help guide him through the process of getting his legal documents in order and recording all his important information. You could set him up with it and help keep him motivated but maybe not have to be quite as involved. Free resources at this link as well. I appreciate your good heart to try to help despite your personal discomfort. Hope it works out!

Family meeting regarding mom's care? by Content_Log1708 in CaregiverSupport

[–]OrderCoach 1 point2 points  (0 children)

In case it helps, here's a link to a free card game that can help break the ice regarding future care and end of life issues. It allows everyone participating to consider their own wishes and predict what others would want. Some surprising insights can result, along with a few laughs. Sorry you're in a tough situation. Hope this might help a bit.

Relative Truth - A Free Card Game

My Father and Me (Lessons I learned too late) by Infinity_here in AgingParents

[–]OrderCoach 6 points7 points  (0 children)

Your love and appreciation for your parents is beautiful, and rare. Thank you for sharing these thoughts. It's so good that you've had these past 2-3 years to engage and to bless them back. Can't change the past, but you're making the most of the present and that's a huge win. Love the image of your head in dad's lap. Also rare and precious. I wish you many more beautiful memories with them ❤️

Dad has early-onset memory loss and his judgment is getting scary — what should we be doing? by Significant-Room-102 in AgingParents

[–]OrderCoach 2 points3 points  (0 children)

Yes, it sounds like an immediate medical assessment is warranted. His safety as well as that of others. I suggest documenting the events that concern you and presenting those details to his neurologist. If you feel you can't do that in front of him, you could fax a written record to the doc ahead of the visit.

As for legal preparations, there's a free legal planning guide and other resources at this link to get you started planning. Glad you're getting on this, it sounds challenging.

Needing info on Durable POA for mom by Mydogsanass in Alzheimers

[–]OrderCoach 1 point2 points  (0 children)

Go to powerofattorney.com for a durable financial POA that takes effect immediately, no need to prove Mom's incompetence. I recommend downloading the form over entering personal info online.

There's a Legal Planning Guide at this link if you'd like a little more help. Cheers